UNAIDS (2018). Factsheet- world AIDS day 2018. Available at: http://www.unaids.org/sites/default/files/media_asset/UNAIDS_FactSheet_en.pdf.
Google Scholar
Bezabhe, W., Peterson, G., Bereznicki, L., Chalmers, L., & Gee, P. (2013). Adherence to antiretroviral drug therapy in adult patients who are HIV-positive in Northwest Ethiopia: A study protocol. BMJ Open, 3(10), e003559.
Article
PubMed
PubMed Central
Google Scholar
Iacob, S. A., Iacob, D. G., & Jugulete, G. (2017). Improving the adherence to antiretroviral therapy, a difficult but essential task for a successful HIV treatment—Clinical points of view and practical considerations. Frontiers in Pharmacology, 8, 831.
Article
PubMed
PubMed Central
Google Scholar
Viswanathan, S., Detels, R., Mehta, S. H., Macatangay, B. J. C., Kirk, G. D., & Jacobson, L. P. (2015). Level of adherence and HIV RNA suppression in the current era of highly active antiretroviral therapy (HAART). AIDS and Behavior, 19(4), 601–611.
Article
PubMed
PubMed Central
Google Scholar
Shubber, Z., Mills, E. J., Nachega, J. B., Vreeman, R., Freitas, M., Bock, P., et al. (2016). Patient-reported barriers to adherence to antiretroviral therapy: A systematic review and meta-analysis. PLoS Med, 13(11), e1002183.
Article
PubMed
PubMed Central
Google Scholar
U.S. Department of Health and Human Services, Panel on Antiretroviral Guidelines for Adults and Adolescents. (2017). Guidelines for the use of antiretroviral agents in HIV-1-infected adults and adolescents. Retrieved from https://aidsinfo.nih.gov/contentfiles/lvguidelines/adultandadolescentgl.pdf
Google Scholar
Genberg, B. L., Lee, Y., Rogers, W. H., & Wilson, I. B. (2015). Four types of barriers to adherence of antiretroviral therapy are associated with decreased adherence over time. AIDS and Behavior, 19(1), 85–92.
Article
PubMed
PubMed Central
Google Scholar
Wiering, B., de Boer, B. D., & Delnoij, D. (2017). Patient involvement in the development of patient-reported outcome measures: The developers’ perspective. BMC Health Services Research, 17, 1.
Article
Google Scholar
Crane, H. M., Crane, P. K., Tufano, J. T., Ralston, J. D., Wilson, I. B., Brown, T. D., Davis, T. E., et al. (2017). HIV provider documentation and actions following patient reports of at-risk behaviors and conditions when identified by a web-based point-of-care assessment. AIDS and Behavior, 21(11), 3111–3121.
Article
PubMed
PubMed Central
Google Scholar
Kozak, M. S., Mugavero, M. J., Ye, J., Aban, I., Lawrence, S. T., Nevin, C. R., Raper, J. L., McCullumsmith, C., Schumacher, J. E., Crane, H. M., Kitahata, M. M., Saag, M. S., et al. (2012). Patient reported outcomes in routine care: Advancing data capture for HIV cohort research. Clinical Infectious Diseases, 54(1), 141–147.
Article
PubMed
Google Scholar
Engler, K., Lessard, D., & Lebouché, B. (2017). A review of HIV-specific patient-reported outcome measures. The Patient, 10(2), 187–202.
Article
PubMed
Google Scholar
Terwee, C., Prinsen, C. A. C., Chiarotto, A., Westerman, M. J., Patrick, D. L., Alonso, J., et al. (2018). Cosmin methodology for evaluating the content validity of patient-reported outcome measures: A Delphi study. Quality of Life Research, 27(5), 1159–1170.
Article
CAS
PubMed
PubMed Central
Google Scholar
Engler, K., Lènàrt, A., Lessard, D., Toupin, I., & Lebouché, B. (2018). Barriers to antiretroviral therapy adherence in developed countries: A qualitative synthesis to develop a conceptual framework for a new patient-reported outcome measure. AIDS Care, 30(sup1), 17–28.
Article
PubMed
Google Scholar
McHugh, M. L. (2012). Interrater reliability: The kappa statistic. Biochemia Medica, 22(3), 276–282.
Article
PubMed
PubMed Central
Google Scholar
World Economic Situation and Prospects. (2012). Country classification. Retrieved from http://www.un.org/en/development/desa/policy/wesp/wesp_current/2012country_class.pdf
Google Scholar
Wiering, B. M., de Boer, B. D., & Delnoij, D. (2017). Patient involvement in the development of patient-reported outcome measures: A scoping review. Health Expectations, 20(1), 11–23.
Article
PubMed
Google Scholar
O’Brien, K. K., Bayoumi, A. M., Strike, C., Young, N. L., King, K., & Davis, A. M. (2010). How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV. Health and Quality of Life Outcomes, 8, 88.
Article
PubMed
PubMed Central
Google Scholar
Elo, S., & Kyngäs, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115.
Article
PubMed
Google Scholar
Bangsberg, D. R., Bronstone, A., & Hofman, R. (2002). A computer/ based assessment detects regimen misunderstandings and nonadherence for patients on HIV antiretroviral therapy. AIDS Care, 1, 3–15.
Article
Google Scholar
Heckman, B. D., Catz, S. L., Heckman, T. G., Miller, J. G., & Kalichman, S. C. (2004). Adherence to antiretroviral therapy in rural persons living with HIV disease in the United States. AIDS Care, 16(2), 219–230.
Article
CAS
PubMed
Google Scholar
Chesney, M. A., Chambers, D. B., Gifford, A. L., Neidig, J., Zwicki, B., Wu, A. W., & Patient Care Committee & Adherence Working Group of the Outcomes Committee of the Adult AIDS Clinical Trials Group. (2000). Self-reported adherence to antiretroviral medications among participants in HIV clinical trials: The AACTG adherence instruments. AIDS Care, 12, 255–266.
Article
CAS
PubMed
Google Scholar
Amico, R. K., Konkle-Parker, D. J., Cornman, D. H., Barta, W. D., Ferrer, R., Norton, W. E., et al. (2007). Reasons for ART non-adherence in the Deep South: Adherence needs of a sample of HIVpositive patients in Mississippi. AIDS Care, 19(10), 1210–1218.
Article
PubMed
PubMed Central
Google Scholar
Barfod, T., Sørensen, H., Nielsen, H., Rodkjær, L., & Obel, N. (2006). Simply forgot’ is the most frequently stated reason for missed doses of HAART irrespective of degree of adherence. HIV Medicine, 7(5), 285–290.
Article
CAS
PubMed
Google Scholar
Boretzki, J., Wolf, E., Wiese, C., Noe, S., Balogh, A., Meurer, A., et al. (2017). Highly specific reasons for nonadherence to antiretroviral therapy: Results from the German adherence study. Patient Preference and Adherence, 11, 1897–1906.
Article
PubMed
PubMed Central
Google Scholar
Dima, A., Schweitzer, A., Diaconita, R., Remor, E., & Wanless, R. (2013). Adherence to ARV medication in Romanian young adults: Self-reported behaviour and psychological barriers. Psychology, Health & Medicine, 18(3), 343–354.
Article
Google Scholar
Durante, A., Bova, C., Fennie, K., Danvers, K., Holness, D., Burgess, J., & Williams, A. (2003). Home-based study of anti-hiv drug regimen adherence among HIV-infected women: Feasibility and preliminary results. AIDS Care, 15(1), 103–115.
Article
CAS
PubMed
Google Scholar
Gifford, A., Bormann, J., Shively, M., Wright, B., Richman, D., & Bozzette, S. (2000). Predictors of self-reported adherence and plasma HIV concentrations in patients on multidrug antiretroviral regimens. Journal of Acquired Immune Deficiency Syndromes, 23(5), 386–395.
Article
CAS
PubMed
Google Scholar
Godin, G., Gagné, C., & Naccache, H. (2003). Validation of a self-reported questionnaire assessing adherence to antiretroviral medication. AIDS Patient Care and STDs, 17(7), 325–332.
Article
PubMed
Google Scholar
Grierson, J., Misson, S., & Pitts, M. (2004). Correlates of antiretroviral treatment breaks. HIV Medicine, 5(1), 34–39.
Article
CAS
PubMed
Google Scholar
Grierson, J., Pitts, M., & Koelmeyer, R. (2013). In La Trobe University (Ed.), HIV Futures Seven: the health and wellbeing of HIV positive people in Australia. Monograph series number 88, The Australian Research Centre in Sex. Melbourne, Australia: Health and Society.
Google Scholar
Harzke, A., Williams, M., Nilsson-Schönnesson, L., Ross, M., Timpson, S., & Keel, K. (2004). Psychosocial factors associated with adherence to antiretroviral medications in a sample of HIVpositive African American drug users. AIDS Care, 16(4), 458–470.
Article
CAS
PubMed
Google Scholar
Kalichman, S., Ramachandran, B., & Catz, S. (1999). Adherence to combination antiretroviral therapies in HIV patients of low health literacy. Journal of General Internal Medicine, 14(5), 267–273.
Article
CAS
PubMed
PubMed Central
Google Scholar
Kalichman, S., Kalichman, M., & Cherry, C. (2017). Forget about forgetting: structural barriers and severe non-adherence to antiretroviral therapy. AIDS Care, 29(4), 418–422.
Article
PubMed
Google Scholar
Kerr, T., Palepu, A., Barness, G., Walsh, J., Hogg, R., Montaner, J., et al. (2004). Psychosocial determinants of adherence to highly active antiretroviral therapy among injection drug users in Vancouver. Antiviral Therapy, 9(3), 407–414.
PubMed
Google Scholar
Kerr, T., Marshall, A., Walsh, J., Palepu, A., Tyndall, M., Montaner, J., et al. (2005). Determinants of HAART discontinuation among injection drug users. AIDS Care, 17(5), 539–549.
Article
CAS
PubMed
Google Scholar
Kleeberger, C., Phair, J., Strathdee, S., Detels, R., Kingsley, L., & Jacobson, L. (2001). Determinants of heterogeneous adherence to HIV-antiretroviral therapies in the Multicenter AIDS Cohort Study. Journal of Acquired Immune Deficiency Syndromes, 26(1), 82–92.
Article
CAS
PubMed
Google Scholar
Kyser, M., Buchacz, K., Bush, T., Conley, L., Hammer, J., Henry, K., et al. (2011). Factors associated with non-adherence to antiretroviral therapy in the SUN Study. AIDS Care, 23(5), 601–611.
Article
PubMed
Google Scholar
MacDonell, K., Naar-King, S., Huszti, H., & Belzer, M. (2013). Barriers to medication adherence in behaviorally and perinatally infected youth living with HIV. AIDS and Behavior, 17(1), 86–93.
Article
PubMed
PubMed Central
Google Scholar
Mannheimer, S., Friedland, G., Matts, J., Child, C., Chesney, M., & Terry Beirn Community Programs for Clinical Research on AIDS. (2002). The consistency of adherence to antiretroviral therapy predicts biologic outcomes for human immunodeficiency virus—infected persons in clinical trials. Clinical Infectious Diseases, 34(8), 1115–1121.
Article
PubMed
Google Scholar
Murphy, D., Roberts, K., Martin, D., Marelich, W., & Hoffman, D. (2000). Barriers to antiretroviral adherence among HIV-infected adults. AIDS Patient Care and STDs, 14(1), 47–58.
Article
CAS
PubMed
Google Scholar
Murphy, D., Sarr, M., Durako, S., Moscicki, A., Wilson, C., Muenz, L., & Adolescent Medicine HIV/AIDS Research Network. (2003). Barriers to HAART adherence among human immunodeficiency virus-infected adolescents. Archives of Pediatrics & Adolescent Medicine, 157(3), 249–255.
Article
Google Scholar
Schuman, P., Ohmit, S., Cohen, M., Sacks, H., Richardson, J., Young, M., et al. (2001). Prescription of and adherence to antiretroviral therapy among women with aids. AIDS and Behavior, 5(4), 371–378.
Article
Google Scholar
Schönnesson, L., Ross, M., & Williams, M. (2004). The HIV medication self-reported nonadherence reasons (SNAR) index and its underlying psychological dimensions. AIDS and Behavior, 8(3), 293–301.
Article
PubMed
Google Scholar
Stirratt, M., The SMART Couples Study Team, Remien, R., Smith, A., Copeland, O., Dolezal, C., & Krieger, D. (2006). The role of HIV serostatus disclosure in antiretroviral medication adherence. AIDS and Behavior, 10(5), 483–493.
Article
Google Scholar
Walsh, J., Horne, R., Dalton, M., Burgess, A., & Gazzard, B. (2001). Reasons for non-adherence to antiretroviral therapy: Patients' perspectives provide evidence of multiple causes. AIDS Care, 13(6), 709–720.
Article
CAS
PubMed
Google Scholar
Zorilla, C. D., Santiago, L. E., Knubson, D., Liberatore, K., Estronza, G., Colon, O., & Acevedo, M. (2003). Greater adherence to highly active antiretroviral therapy (HAART) between pregnant versus non-pregnant women living with HIV. Cellular & Molecular Biology, 49(8), 1187–1192.
Google Scholar
McAllister, J., Beardsworth, G., Lavie, E., MacRae, K., & Carr, A. (2013). Financial stress is associated with reduced treatment adherence in HIV-infected adults in a resource-rich setting. HIV Medicine, 14(2), 120–124.
Article
CAS
PubMed
Google Scholar
World Health Organization. (2003). Adherence to long-term therapies: Evidence for action. Geneva: Author.
Google Scholar
Engler, K., Ahmed, S., Lessard, D. Vicente, S., Lebouché, B. (under review). Assessing the content validity, actionability, and cross-cultural equivalence of a new patient-reported outcome measure of barriers to antiretroviral therapy adherence for electronic administration in routine HIV care: protocol for an online Delphi study. JMIR Research Protocols, JMIR Preprints. Retrieved from: https://preprints.jmir.org/preprint/12836