Journal of Patient-Reported Outcomes

As a result of the significant disruption that is being caused by the COVID-19 pandemic we are very aware that many researchers will have difficulty in meeting the timelines associated with our peer review process during normal times. Please do let us know if you need additional time. Our systems will continue to remind you of the original timelines but we intend to be highly flexible at this time.

2021 ISOQOL Annual Conference

Making valid decisions: Learning from Patient Reported Outcomes

ISOQOL 2021 is a virtual event!

Important Dates

12-28 October 2021: Live Virtual Conference

12 October - 30 November 2021: View On-Demand Presentations

ISOQOL MWM Symposium

Intensive longitudinal measurement: Methodologies for collecting, analyzing and interpreting patient-generated data from daily diaries, wearables and sensors.

Scheduled for 19-20 July 2021, this virtual event will consist of session presentations and live Q&As with the speakers. Recordings of the symposium will be archived for future access for registrants unable to attend the live presentations in July.

Recent
Most accessed

Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep

Authors: Marci English, Boyka Stoykova, Christina Slota, Lynda Doward, Emad Siddiqui, Rebecca Crawford and Dana DiBenedetti

Content type: Research

26 April 2021
Patient-reported outcomes in breast cancer FDA drug labels and review documents

Authors: Kyungwan Hong, Kayleigh R. Majercak, Ester Villalonga-Olives and Eleanor M. Perfetto

Content type: Research

21 April 2021
Post-stroke fatigue: an exploratory study with patients and health professionals to develop a patient-reported outcome measure

Authors: Ingrid Johansen Skogestad, Marit Kirkevold, Petra Larsson, Christine Råheim Borge, Bent Indredavik, Caryl L. Gay and Anners Lerdal

Content type: Research

21 April 2021
Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

Authors: Amanda Konradi

Content type: Research

12 April 2021
Psychometric properties of FACIT-Fatigue in systemic lupus erythematosus: a pooled analysis of three phase 3 randomised, double-blind, parallel-group controlled studies (BLISS-SC, BLISS-52, BLISS-76)

Authors: Regina Rendas-Baum, Nishtha Baranwal, Ashish V. Joshi, Josephine Park and Mark Kosinski

Content type: Research

8 April 2021

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How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis

Authors: Joanne Greenhalgh, Kate Gooding, Elizabeth Gibbons, Sonia Dalkin, Judy Wright, Jose Valderas and Nick Black

Content type: Review

15 September 2018
Towards the use of mixed methods inquiry as best practice in health outcomes research

Authors: Antoine Regnault, Tom Willgoss and Skye Barbic

Content type: Commentary

11 April 2018
Describing the emotional exhaustion, depersonalization, and low personal accomplishment symptoms associated with Maslach Burnout Inventory subscale scores in US physicians: an item response theory analysis

Authors: Keri J. S. Brady, Pengsheng Ni, R. Christopher Sheldrick, Mickey T. Trockel, Tait D. Shanafelt, Susannah G. Rowe, Jeffrey I. Schneider and Lewis E. Kazis

Content type: Research

1 June 2020
What is an estimand & how does it relate to quantifying the effect of treatment on patient-reported quality of life outcomes in clinical trials?

Authors: Rachael Lawrance, Evgeny Degtyarev, Philip Griffiths, Peter Trask, Helen Lau, Denise D’Alessio, Ingolf Griebsch, Gudrun Wallenstein, Kim Cocks and Kaspar Rufibach

Content type: Commentary

24 August 2020
Two-item PROMIS® global physical and mental health scales

Authors: Ron D. Hays, Benjamin D. Schalet, Karen L. Spritzer and David Cella

Content type: Research

12 September 2017

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Editors-in-Chief

Read the full profiles here

Ron Hays , Editor-in-Chief

University of California, Los Angeles, USA

Chih-Hung Chang , Editor-in-Chief

Washington University in St. Louis, USA

Call for papers: PREMs

Journal of Patient-Reported Outcomes invites submissions to Thematic Series

The Editors of Journal of Patient-reported Outcomes are pleased to invite submissions to the journal’s ongoing Thematic Series on Patient-reported Experience Measures (PREMs)

Indexing

We are pleased to announce that all articles published in Journal of Patient-Reported Outcomes are included in Scopus, PubMed, PubMed Central and DOAJ.

Aims and scope

The Journal of Patient-Reported Outcomes (JPRO) is an international, open access, multi-disciplinary journal publishing original manuscripts in the field of patient-reported outcomes (PRO). JPRO will consider original research and review articles, brief communications, commentaries, editorials, and reviews of recent books and software advances relevant to the following topics:

PROs in clinical trials.
PROs in clinical practice.
Patient, family, community, and public engagement.
Qualitative studies on the development and application of PROs.
Studies of the social and behavioural determinants of health using PRO measures.
Patient-Reported Experience Measures.

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About the Society

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.

Journal of Patient-Reported Outcomes

2021 ISOQOL Annual Conference

ISOQOL MWM Symposium

Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep

Patient-reported outcomes in breast cancer FDA drug labels and review documents

Post-stroke fatigue: an exploratory study with patients and health professionals to develop a patient-reported outcome measure

Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

Psychometric properties of FACIT-Fatigue in systemic lupus erythematosus: a pooled analysis of three phase 3 randomised, double-blind, parallel-group controlled studies (BLISS-SC, BLISS-52, BLISS-76)

How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis

Towards the use of mixed methods inquiry as best practice in health outcomes research

Describing the emotional exhaustion, depersonalization, and low personal accomplishment symptoms associated with Maslach Burnout Inventory subscale scores in US physicians: an item response theory analysis

What is an estimand & how does it relate to quantifying the effect of treatment on patient-reported quality of life outcomes in clinical trials?

Two-item PROMIS® global physical and mental health scales