Read the full profiles here
ISOQOL 2020 is Virtual
2020 THE FUTURE IS NOW: A Vision for the Future of Outcomes Measurement and Quality of Life Research
The year 2020 is commonly used by science-fiction writers to make predictions about the future. Similarly, the ISOQOL 2020 annual conference provides an ideal opportunity for the ISOQOL community to look forward. The 2020 conference in Prague will focus on important developments in collecting, analyzing, interpreting and disseminating patient-centered outcomes data, with an emphasis on what the future might look like for current and future generations of outcomes and quality of life researchers. Learn More
Virtual Conference Schedule: Live vs. On-demand Sessions
Live Sessions: Live conference content will include plenary sessions, roundtables*, workshops* and the Awards and Member Business Meeting. With the exception of plenary sessions, these events will only be available at their scheduled times. Plenary sessions will be recorded and available on-demand to all registrants for 30 days after the conference.
On-demand Sessions: Registrants will also have access to pre-recorded, on-demand sessions, which will be available for viewing anytime during the virtual conference and for 30 days after the event. These sessions include oral briefs, oral sessions, poster sessions, SIG symposia sessions, symposia sessions and the Tricks of the Trade Presentation.
Learn more about the conference content via the buttons below.
*Seating is limited and available on a first-come, first-served basis. Please be sure to sign up for these events in advance during the online registration process.
ISOQOL MWM Symposium
Development and Stakeholder Perspectives of Core Outcomes Sets
Core Outcome Sets (COS), standardized collection of patient outcome measures prescribed for specific populations, are being requested and defined by a range of stakeholders including researchers, regulators, payers, physicians, patients, and health care systems with increased frequency. The methods to define and maintain COS are varied. The differing perspectives of stakeholders may influence clinical research care and medical product development. While outcomes data from COS may help to better evaluate outcomes and quality of care in a standardized way, there remain questions regarding development, implementation, and use of COS, and acceptability of such endpoints for key stakeholders. Measuring What Matters provides a valuable space for exploration of these issues from a variety of perspectives. Learn More
This year's MWM Symposium will take place virtually.
The health of ISOQOL members and conference attendees is our top priority. The current status of the COVID-19 pandemic and associated global restrictions led ISOQOL leadership to cancel the Measuring What Matters Symposium 2020 as an in-person event. The content will instead be delivered virtually in September. Recordings of the symposium will be archived for future access for registrants unable to attend the live presentations in September.
-
-
The German RECAP questionnaire: linguistic validation and cognitive debriefing in German adults with self-reported atopic eczema and parents of affected children
-
Estimating health state utilities in hemophagocytic lymphohistiocytosis
-
State of the Journal of Patient-Reported Outcomes
-
Development and content validation of the Satisfaction and Experience Questionnaire for Granulocyte Colony-Stimulating Factor (SEQ-G-CSF)
-
How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis
-
Two-item PROMIS® global physical and mental health scales
-
Towards the use of mixed methods inquiry as best practice in health outcomes research
-
Psychometric validation of the Dysphagia Symptom Questionnaire in patients with eosinophilic esophagitis treated with budesonide oral suspension
-
The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: a systematic review of reviews
Editors-in-Chief
Ron Hays , Editor-in-Chief
University of California, Los Angeles, USA
Chih-Hung Chang , Editor-in-Chief
Washington University School of Medicine in St. Louis
Call for papers: PREMs
Journal of Patient-Reported Outcomes invites submissions to Thematic Series
The Editors of Journal of Patient-reported Outcomes are pleased to invite submissions to the journal’s ongoing Thematic Series on Patient-reported Experience Measures (PREMs)
Indexing
We are pleased to announce that all articles published in Journal of Patient-Reported Outcomes are included in Scopus, PubMed, PubMed Central and DOAJ.
Aims and scope
The Journal of Patient-Reported Outcomes (JPRO) is an international, open access, multi-disciplinary journal publishing original manuscripts in the field of patient-reported outcomes (PRO). JPRO will consider original research and review articles, brief communications, commentaries, editorials, and reviews of recent books and software advances relevant to the following topics:
- PROs in clinical trials.
- PROs in clinical practice.
- Patient, family, community, and public engagement.
- Qualitative studies on the development and application of PROs.
- Studies of the social and behavioural determinants of health using PRO measures.
- Patient-Reported Experience Measures.
About the Society
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.
- ISSN: 2509-8020 (electronic)
Follow
Annual Journal Metrics
-
Speed
79 days to first decision for reviewed manuscripts only
65 days to first decision for all manuscripts
190 days from submission to acceptance
25 days from acceptance to publicationUsage
79,235 downloads
387 Altmetric mentions