Journal of Patient-Reported Outcomes

ISOQOL 2019 in San Diego

Journal of Patient-Reported Outcomes in San Diego

The ISOQOL 26th Annual Conference will take place in San Diego, California, 20-23 October 2019.

Check the ISOQOL website for updates.

Featured article

Exploring the responsiveness of goal attainment scaling in relation to number of goals set in a sample of hemophilia-A patients

Lisa McGarrigle, Jonathan C. Roberts, Michael Denne and Kenneth Rockwood

The authors of this article investigated responsiveness of one- and two-goal GAS (goal attainment scaling) using data from a sample of patients with hemophilia A, finding that One-goal GAS is responsive to change in a clinical population.

PROMIS® Health Organization Conference

Catch the Wave 2019: PROMIS® Clinical and Methodology Advances

The 5th annual PROMIS® Health Organization Conference will take place on October 24 and 25, immediately following the ISOQOL annual conference.

This conference will focus on the use of PROMIS® health measures by researchers, clinicians and hospital administrators who are using PROMIS® to incorporate the patient’s voice in evaluating and improving health outcomes. Researchers from around the globe will share best practices for the development, translation, evaluation, and utilization of the PROMIS®.

Information will be presented in a two-day format comprised of workshops, plenary sessions, concurrent oral presentations, poster walks and informal networking opportunities for attendees.

For more information, visit the PROMIS® Health Organization website.

Recent
Most accessed

Content type: Research
| 20 May 2019

Content validity and psychometric evaluation of Functional Assessment of Chronic Illness Therapy-Fatigue in patients with psoriatic arthritis

Authors: David Cella, Hilary Wilson, Huda Shalhoub, Dennis A. Revicki, Joseph C. Cappelleri, Andrew G. Bushmakin, Elizabeth Kudlacz and Ming-Ann Hsu
Content type: Research
| 16 May 2019

Psychometric validation of three new condition-specific questionnaires to assess quality of life, symptoms and treatment satisfaction of patients with aortic aneurysm

Authors: Jacquelyn Romaine, George Peach, Matt Thompson, Robert J. Hinchliffe and Clare Bradley
Content type: Research
| 14 May 2019

Reliability and validity of the revised impact on family scale (RIOFS) in the hospital context

Authors: Yorschua F. Jalil, Gregory S. Villarroel, Alejandra A. Silva, Lilian S. Briceño, Vanessa Perez Ormeño, Nicolas S. Ibáñez, Paulina A. Méndez, Cristina F. Canales and Mireya A. Méndez
Content type: Research
| 2 May 2019

Patient voice on management of facial dermatological adverse events with targeted therapies: a qualitative study

Authors: Kaori Yagasaki, Hayato Takahashi, Takeshi Ouchi, Jun Yamagami, Yasuo Hamamoto, Masayuki Amagai and Hiroko Komatsu
Content type: Research
| 2 May 2019

Development, psychometric evaluation, and initial feasibility assessment of a symptom tracker for use by patients with heart failure (HFaST)

Authors: Eldrin F. Lewis, Theresa M. Coles, Sandy Lewis, Lauren M. Nelson, Amy Barrett, Carla DeMuro Romano, Donald E. Stull, Stuart J. Turner and Chunlan G. Chang

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Content type: Research
| 12 September 2017

Two-item PROMIS® global physical and mental health scales

Authors: Ron D. Hays, Benjamin D. Schalet, Karen L. Spritzer and David Cella
Content type: Research
| 12 September 2017

Psychometric validation of the Dysphagia Symptom Questionnaire in patients with eosinophilic esophagitis treated with budesonide oral suspension

Authors: Stacie Hudgens, Christopher Evans, Elaine Phillips and Malcolm Hill
Content type: Research
| 12 September 2017

The content validity of the PSS in patients with plaque psoriasis

Authors: A. M. Rentz, A. M. Skalicky, K. Burslem, K. Becker, D. Kaschinski, D. Esser and D. A. Revicki
Content type: Review
| 15 September 2018

How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis

Authors: Joanne Greenhalgh, Kate Gooding, Elizabeth Gibbons, Sonia Dalkin, Judy Wright, Jose Valderas and Nick Black
Content type: Research
| 19 December 2017

A comparison of three methods to generate a conceptual understanding of a disease based on the patients’ perspective

Authors: Louise Humphrey, Thomas Willgoss, Andrew Trigg, Stephanie Meysner, Mary Kane, Sally Dickinson and Helen Kitchen

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Editors-in-Chief

Read the full profiles here

David Feeny , Editor-in-Chief

McMaster University, Canada

Dennis A. Revicki , Editor-in-Chief

Evidera, USA

Call for papers: PREMs

Journal of Patient-Reported Outcomes launches new Thematic Series

The Editors of Journal of Patient-reported Outcomes are pleased to invite submissions to the journal’s new Thematic Series on Patient-reported Experience Measures (PREMs)

Indexing

We are pleased to announce that all articles published in Journal of Patient-Reported Outcomes are included in PubMed, PubMed Central and DOAJ.

Aims and scope

The Journal of Patient-Reported Outcomes (JPRO) is an international, open access, multi-disciplinary journal publishing original manuscripts in the field of patient-reported outcomes (PRO). JPRO will consider original research and review articles, brief communications, commentaries, editorials, and reviews of recent books and software advances relevant to the following topics:

PROs in clinical trials.
PROs in clinical practice.
Patient, family, community, and public engagement.
Qualitative studies on the development and application of PROs.
Studies of the social and behavioural determinants of health using PRO measures.
Patient-Reported Experience Measures.

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About the Society

The International Society for Quality of Life Research (ISOQOL), established in 1993, is a non-profit society to advance the scientific study of health-related quality of life and other patient-centered outcomes to identify effective interventions, enhance the quality of health care and promote the health of populations. ISOQOL provides the premiere opportunity for those in the quality of life research field to connect and network.

Quality of life has become a prominent subject in philosophy, social science, clinical medicine, health services, and outcomes research. ISOQOL fosters the worldwide exchange of information through: scientific publications, international conferences, educational outreach, and collaborative support for health related quality of life initiatives. We are an international society with activities focused on promotion of high quality research in the science of health-related quality of life (HRQOL) measurement and patient-reported outcomes (PRO).

Journal of Patient-Reported Outcomes

ISOQOL 2019 in San Diego

Featured article

PROMIS® Health Organization Conference

Content validity and psychometric evaluation of Functional Assessment of Chronic Illness Therapy-Fatigue in patients with psoriatic arthritis

Psychometric validation of three new condition-specific questionnaires to assess quality of life, symptoms and treatment satisfaction of patients with aortic aneurysm

Reliability and validity of the revised impact on family scale (RIOFS) in the hospital context

Patient voice on management of facial dermatological adverse events with targeted therapies: a qualitative study

Development, psychometric evaluation, and initial feasibility assessment of a symptom tracker for use by patients with heart failure (HFaST)

Two-item PROMIS® global physical and mental health scales

Psychometric validation of the Dysphagia Symptom Questionnaire in patients with eosinophilic esophagitis treated with budesonide oral suspension

The content validity of the PSS in patients with plaque psoriasis

How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis

A comparison of three methods to generate a conceptual understanding of a disease based on the patients’ perspective