Skip to main content

Table 1 Instrument characteristics (n = 31)

From: A review of HIV-specific patient-reported measures of perceived barriers to antiretroviral therapy adherence: what themes are they covering?

# Instrument/study name (if appropriate) First author of related publication Version year Countryb Description Patient involvement No. itemsa
Yes No
1 Adult AIDS Clinical Trials Group (AACTG), Adherence Baseline Questionnaire II, 2001, Section C Chesney et al. 2000 [21] 2001 USA “Reasons why people may miss taking their medications”c   14
2 AACTG, Adherence Barriers Questionnaire, 2008, Question 2 Chesney et al. 2000 [21] 2008 USA “Reasons why people may miss taking their medications”c   22
3 Amico et al. 2007 [22] 2007 USA “Reasons for last having missed a dose of ART medication”   14
4 AACTG adherence instrument -Modified Barfod et al. 2006 [23] 2006 Denmark “Reasons for missing a dose”c   22
5 Boretzki et al. 2017 [24] 2017 Germany “Reasons for nonadherence to antiretroviral therapy”   9
6 CEAT-VIH (Cuestionario para la Evaluacio’n de la Adhesio’n al Tratamiento Antirretroviral en Personas con Infeccio’n por VIH y Sida) -Romanian adaptation Dima et al. 2013 [25] (based on Remor 2002) 2013 Romania “Barriers to adherence” -“Antecedents of non-adherence behaviours”   3
7 Durante et al. 2003 [26] 2003 USA “Reasons for missing doses of medication”c   14
8 Gifford et al. 2000 [27] 2000 USA “Reasons for missing antiretroviral doses”   16
9 Questionnaire on Taking Antiretroviral Medication, Questions 3 and 4 Godin et al. 2003 [28] 2003 Canada “Situations that might have hampered […] regular adherence to medication”   8
10 HIV Futures 3 Survey Grierson et al. 2004 [29] 2004 Australia “Reasons for taking treatment breaks”- Lifestyle and clinical reasons   16
11 HIV Futures 7 Survey Grierson et al. 2013 [30] 2013 Australia “Reasons for stopping ARV”   7
12 HIV Futures 7 Survey Grierson et al. 2013 [30] 2013 Australia “Reasons for taking breaks” -Lifestyle and clinical reasons   14
13 Harzke et al. 2004 [31] 2004 USA “Perceived barriers to taking antiretrovirals” –“Forgetting to take medications” scale   3
14 HCSUS 2nd Follow-up, Section 4.5 Antiretroviral and Opportunistic Infection Medication n.a. 1997 USA “Reasons […] why you stopped taking this antiretroviral medication(s)”   11
15 Kalichman et al. 1999 [32] 1999 USA “Perceived barriers to treatment and reasons for non-adherence”   9
16 Kalichman et al. 2017 [33] 2017 USA “Barriers to adherence”   15
17 AACTG adherence instrument -Supplemented for the Vancouver Injection Drug Users Study (VIDUS) Kerr et al. 2004 [34] 2004 Canada “Reasons for missing doses of HAART”c   13
18 Vancouver Injection Drug Users Study (VIDUS) questionnaire Kerr et al. 2005 [35] 2005 Canada “Reasons for discontinuing HAART”   15
19 AACTG adherence instrument -Adapted for the Multicenter AIDS Cohort Study (MACS), Medication Adherence Form Kleeberger et al. 2001 [36] 2001 USA “Reasons for missing […] medications”c   15
20 The study to understand the natural history of HIV/AIDS in the era of effective therapy (SUN) study, questionnaire Kyser et al. 2011 [37] 2011 USA “Main reason […] for missing medication”   6
21 Macdonell et al. 2013 [38] 2013 USA “Barriers to medication adherence”   18
22 Community Programs for Clinical Research on AIDS (CPCRA), Antiretroviral Medication Self-Report -Form 646, Version 4, 2003, Section C, Question 2 Mannheimer et al. 2002 [39] 2003 USA “Reasons why people miss taking their antiretroviral drugs”   10
23 AACTG adherence instrument -Adapted Murphy et al. 2000 [40] 2000 USA “Barriers to adherence”c   23
24 AACTG adherence instrument -Supplemented by adolescent-specific issues for the Reaching for Excellence in Adolescent Care and Health (REACH) Project Murphy et al. 2003 [41] 2003 USA “Barriers to adherence”c   19
25 The HIV Epidemiology Research Study (HERS) and Women’s Inter-Agency HIV Study (WIHS), substudy interview instruments Schuman et al. 2001 [42] 2001 USA “Reasons that occasionally or frequently interfered with adherence”   11
26 US Military HIV Natural History Cohort Study (NHS), HIV Medication Adherence History, Form 168.40.1 n.a. 2010 USA “Reasons for missed doses”   23
27 HIV Medication Self-Reported Nonadherence Reasons (SNAR) Index Schönnesson et al. 2004 [43] 2004 Sweden “Reasons for nonadherence to HIV-medication” -Medication concerns and routine disruptionsc   11
28 AACTG adherence instrument -Modified for the New York City Study Stirratt et al. 2006 [44] 2006 USA “Reasons for missed ART doses”c   22
29 Walsh et al. 2001 [45] 2001 UK “Reasons for missing doses”   20
30 Zorilla et al. 2003 [46] 2003 USA (Puerto Rico) “Reasons for not taking medications”   8
31 Zorilla et al. 2003 [46] 2003 USA (Puerto Rico) “Reasons for taking medications at a different time”   7
  1. # = Number assigned to the instrument, as in Table 2
  2. aNumber of specific items (e.g., does not include space provided for “other” elements not included in the measure)
  3. bAs indicated by the publications considered in this review (may not be exhaustive)
  4. cAACTG adherence instrument or derivative thereof, as reported by developers