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  1. Research

    Content validation of the SF-36v2® health survey with AL amyloidosis patients

    This study examined the content validity of the SF-36v2® Health Survey (SF-36v2) in patients with AL amyloidosis using qualitative interviews with physicians and patients. The study included three distinct pha...

    Michelle K. White, Martha S. Bayliss, Spencer D. Guthrie, Kimberly P. Raymond, Avery A. Rizio and Kristen L. McCausland

    Journal of Patient-Reported Outcomes 2017 1:13

    Published on: 8 December 2017

  2. Research

    Japanese translation and linguistic validation of the US National Cancer Institute’s Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)

    The US National Cancer Institute (NCI) has developed the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) to capture patients’ self-reported symptomatic adver...

    Tempei Miyaji, Yukiko Iioka, Yujiro Kuroda, Daigo Yamamoto, Satoru Iwase, Yasushi Goto, Masahiro Tsuboi, Hiroki Odagiri, Yu Tsubota, Takashi Kawaguchi, Naoko Sakata, Ethan Basch and Takuhiro Yamaguchi

    Journal of Patient-Reported Outcomes 2017 1:8

    Published on: 5 December 2017

  3. Research

    The responsiveness of the PROMIS instruments and the qDASH in an upper extremity population

    This study evaluated the responsiveness of several PROMIS patient-reported outcome measures in patients with hand and upper extremity disorders and provided comparisons with the qDASH instrument.

    Man Hung, Charles L. Saltzman, Tom Greene, Maren W. Voss, Jerry Bounsanga, Yushan Gu, Angela A. Wang, Douglas Hutchinson and Andrew R. Tyser

    Journal of Patient-Reported Outcomes 2017 1:12

    Published on: 28 November 2017

  4. Research

    Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss

    Pediatric neuromuscular illnesses often result in decreased health-related quality of life (HRQL), notably in physical functioning. Generic HRQL measures have been developed for use in general populations, but...

    Angie Mae Rodday, Robert J. Graham, Ruth Ann Weidner, Nan E. Rothrock, Darren A. Dewalt and Susan K. Parsons

    Journal of Patient-Reported Outcomes 2017 1:10

    Published on: 20 November 2017

  5. Research

    A systematic evaluation of compliance and reporting of patient-reported outcome endpoints in ovarian cancer randomised controlled trials: implications for generalisability and clinical practice

    This study aimed to evaluate the patient-reported outcome (PRO) content of ovarian cancer randomised-controlled trial (RCT) publications, describe PRO compliance, and explore potential relationships among thes...

    Rebecca Mercieca-Bebber, Michael Friedlander, Melanie Calvert, Martin Stockler, Derek Kyte, Peey-Sei Kok and Madeleine T. King

    Journal of Patient-Reported Outcomes 2017 1:5

    Published on: 4 October 2017

  6. Research

    Psychometric validation of the Dysphagia Symptom Questionnaire in patients with eosinophilic esophagitis treated with budesonide oral suspension

    Eosinophilic esophagitis (EoE) is characterized by high levels of eosinophils in the esophageal mucosa. Patients with the disease present with a range of symptoms, including dysphagia (difficulty swallowing). ...

    Stacie Hudgens, Christopher Evans, Elaine Phillips and Malcolm Hill

    Journal of Patient-Reported Outcomes 2017 1:3

    Published on: 12 September 2017

  7. Research

    Feasibility and acceptability of electronic symptom surveillance with clinician feedback using the Patient-Reported Outcomes version of Common Terminology Criteria for Adverse Events (PRO-CTCAE) in Danish prostate cancer patients

    The aim was to examine the feasibility, acceptability and clinical utility of electronic symptom surveillance with clinician feedback using a subset of items drawn from the Patient-Reported Outcomes version of...

    Christina Baeksted, Helle Pappot, Aase Nissen, Niels Henrik Hjollund, Sandra A. Mitchell, Ethan Basch, Pernille Envold Bidstrup, Susanne Oksbjerg Dalton and Christoffer Johansen

    Journal of Patient-Reported Outcomes 2017 1:1

    Published on: 12 September 2017

  8. Research

    The content validity of the PSS in patients with plaque psoriasis

    The primary objective of this study was to evaluate the content validity of the Psoriasis Symptom Scale (PSS), with a specific focus on understanding of the content of the PRO measure by conducting one-on-one ...

    A. M. Rentz, A. M. Skalicky, K. Burslem, K. Becker, D. Kaschinski, D. Esser and D. A. Revicki

    Journal of Patient-Reported Outcomes 2017 1:4

    Published on: 12 September 2017

  9. Research

    Two-item PROMIS® global physical and mental health scales

    Self-reports of health provide useful information about function and well-being that can improve communication between patients and clinicians. Global health items provide summary information that are predicti...

    Ron D. Hays, Benjamin D. Schalet, Karen L. Spritzer and David Cella

    Journal of Patient-Reported Outcomes 2017 1:2

    Published on: 12 September 2017

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