Speed
79 days to first decision for reviewed manuscripts only
65 days to first decision for all manuscripts
190 days from submission to acceptance
25 days from acceptance to publication
Usage
79,235 downloads
387 Altmetric mentions
Page 1 of 6
Chronic Hypersensitivity Pneumonitis (CHP) is caused by an immune mediated response in the lung tissue after exposure to an inhaled environmental antigenic stimulant. We previously documented the ways in which...
Citation: Journal of Patient-Reported Outcomes 2021 5:9
The patient is the person who experiences both the processes and the outcomes of care. Information held by the patient is vital for clinical and self-management, improving health outcomes, delivery of care, or...
Citation: Journal of Patient-Reported Outcomes 2021 5:8
Existing patient-reported outcome (PRO) measures may not be relevant to the full range of functional and vision-related quality of life (VR-QOL) concerns of individuals with vision impairment due to severe per...
Citation: Journal of Patient-Reported Outcomes 2021 5:7
This paper reports the duration of moderate and severe exacerbations in patients with house dust mite induced allergic asthma and the impact on patients’ quality of life.
Citation: Journal of Patient-Reported Outcomes 2021 5:6
As life expectancy of people with Down syndrome (DS) increases, so does the risk of Alzheimer’s disease (AD). Identifying symptoms and tracking disease progression is especially challenging whenever levels of ...
Citation: Journal of Patient-Reported Outcomes 2021 5:5
In oncology practice, eliciting the patient’s perspective on their quality of life (QOL) adds important information and value to their treatment and care. The European Organization for Research and Treatment o...
Citation: Journal of Patient-Reported Outcomes 2021 5:4
Hereditary transthyretin (hATTR) amyloidosis is a rare, systemic, progressive, and life-threatening disease in which transthyretin proteins misfold and aggregate as insoluble amyloid deposits, disrupting nervo...
Citation: Journal of Patient-Reported Outcomes 2021 5:3
Gains in cancer detection and treatment have meant that more patients are now living with both cancer and other chronic health conditions, which may become burdensome. We used the Patient Experience with Treat...
Citation: Journal of Patient-Reported Outcomes 2021 5:2
Patients suffering from exsudative retinal diseases may experience severe central vision loss and this might have impact on their daily activities and quality of life. To measure the disabilities these patient...
Citation: Journal of Patient-Reported Outcomes 2021 5:1
An amendment to this paper has been published and can be accessed via the original article.
Citation: Journal of Patient-Reported Outcomes 2020 4:107
Researchers and clinicians studying symptoms experienced by people with cancer must choose from various scales. It would be useful to know how the scores on one measure translate to another.
Citation: Journal of Patient-Reported Outcomes 2020 4:106
Caries Impacts and Experiences Questionnaire for Children (CARIES-QC) is a child-centred caries-specific quality of life measure. This study aimed to select, and validate with children, a classification system...
Citation: Journal of Patient-Reported Outcomes 2020 4:105
The Diabetes Injection Device Preference Questionnaire (DID-PQ) was designed to assess patient preference between two non-insulin injection devices. In a recent crossover study, people with type 2 diabetes (T2...
Citation: Journal of Patient-Reported Outcomes 2020 4:104
To develop a predictive risk model (PRM) for patient-reported anxiety after treatment completion for early stage breast cancer suitable for use in practice and underpinned by advances in data science and risk ...
Citation: Journal of Patient-Reported Outcomes 2020 4:103
Hypertrophic cardiomyopathy (HCM) is a primary myocardial disorder defined by left ventricular hypertrophy that cannot be explained by another cardiac or systemic disease. There is a general lack of knowledge ...
Citation: Journal of Patient-Reported Outcomes 2020 4:102
The use of Patient-Reported Outcome Measures (PROMs) in routine clinical care can help ensure symptoms are identified, acknowledged and addressed. In 2007, the provincial cancer agency, Cancer Care Ontario, be...
Citation: Journal of Patient-Reported Outcomes 2020 4:101
The intense itching associated with atopic dermatitis (AD) often causes patients to experience severe sleep disturbance. Here, we describe the results of a two-phase concept elicitation and cognitive interview...
Citation: Journal of Patient-Reported Outcomes 2020 4:100
Physiological and behavioral factors including hunger, satiety, food intake, and cravings are health determinants contributing to obesity. Patient-reported outcome (PRO) measures focused on eating-related fact...
Citation: Journal of Patient-Reported Outcomes 2020 4:99
Citation: Journal of Patient-Reported Outcomes 2020 4(Suppl 2):93
Measuring change in health-related quality-of-life (HRQoL) is important to assess the impact of disease and/or treatment. Ecological momentary assessment (EMA) comprises the repeated assessment of momentary HR...
Citation: Journal of Patient-Reported Outcomes 2020 4:98
To evaluate the psychometric and measurement properties of two patient-reported outcome instruments, the menstrual pictogram superabsorbent polymer-containing version 3 (MP SAP-c v3) and Uterine Fibroid Daily ...
Citation: Journal of Patient-Reported Outcomes 2020 4:97
To optimize home care, it is essential to determine how care recipients experience quality of care. Traditionally, quality of care is measured with normative quality indicators such as safety, efficiency, or p...
Citation: Journal of Patient-Reported Outcomes 2020 4:96
Smoldering multiple myeloma (SMM) is an early form of multiple myeloma (MM). SMM is typically considered asymptomatic, and research on how it affects health-related quality of life (HRQoL) is limited. This stu...
Citation: Journal of Patient-Reported Outcomes 2020 4:95
Despite the high burden of disease in younger children there are few tools specifically designed to estimate Health Related Quality of Life (HRQoL) in children younger than 3 years of age. A previous paper des...
Citation: Journal of Patient-Reported Outcomes 2020 4:94
There is a need to assess the quality of treatment for Substance Use Disorder (SUD), and document SUD patients’ health-related quality of life (HRQoL). The study aims to describe Norwegian SUD patients’ HRQoL ...
Citation: Journal of Patient-Reported Outcomes 2020 4:92
Hip and knee replacement are effective procedures for end-stage arthritis that has not responded to medical management. However, until now, there have been no validated, patient-reported tools to measure early...
Citation: Journal of Patient-Reported Outcomes 2020 4:91
Personal budgets for social and health care have been introduced in many European countries over recent decades. The assumption is that people with a personal budget are able to purchase care that matches thei...
Citation: Journal of Patient-Reported Outcomes 2020 4:90
Within current literature and practice, the category of patient-reported outcome (PRO) measures has been expanded into the broader category of clinical outcome assessments (COAs), which includes the subcategor...
Citation: Journal of Patient-Reported Outcomes 2020 4:89
A randomized controlled pilot trial was conducted to assess if melanoma patients treated with immunotherapy had the number of grade 3 or 4 adverse events during treatment reduced by 50% using a tailored electr...
Citation: Journal of Patient-Reported Outcomes 2020 4:88
PROMs can help healthcare professionals gain an improved understanding of patients’ physical burdens, functional levels, and (health-related) quality of life throughout disease and medical treatment. The aim o...
Citation: Journal of Patient-Reported Outcomes 2020 4:87
Endometriosis is a common problem in women of reproductive age and has impacts on health-related quality of life and productivity. Fatigue is an important part of the burden of endometriosis, it is not often i...
Citation: Journal of Patient-Reported Outcomes 2020 4:86
Two decades of research on quality-of-life (QOL) appraisal have demonstrated links between patient experience and health outcomes and have accounted for both intra-individual change and inter-individual differ...
Citation: Journal of Patient-Reported Outcomes 2020 4:85
To develop and evaluate a measurement scale for multi-domain assessment of the quality of life of family caregivers of persons with dementia (PWD) in Singapore, a multi-ethic society in South-East Asia where E...
Citation: Journal of Patient-Reported Outcomes 2020 4:84
Patient-Reported Outcomes provide an opportunity for patients to establish dialogue with pharmaceutical or biotechnology companies about their health conditions without interpretation by a clinician or anyone ...
Citation: Journal of Patient-Reported Outcomes 2020 4:83
The Elements of Desire Questionnaire (EDQ) is a patient-reported outcome (PRO) measure developed to evaluate sexual desire and was included in two identically designed phase 3 clinical trials (RECONNECT) as an...
Citation: Journal of Patient-Reported Outcomes 2020 4:82
The U.S. National Cancer Institute’s Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE™) is a library of items for assessing symptomatic adverse events by patie...
Citation: Journal of Patient-Reported Outcomes 2020 4:81
Evolving regulatory guidelines recommend routine assessment of the acceptability of pediatric oral medicines throughout clinical development processes. However, such assessment is problematic owing to a lack o...
Citation: Journal of Patient-Reported Outcomes 2020 4:80
The aim of this study was to assess the validity and reliability of the Patient Enablement Instrument (PEI) in Finnish health care centre patients. A pilot study was conducted to assess the content validity of...
Citation: Journal of Patient-Reported Outcomes 2020 4:79
The Swedish National Quality Registries (NQRs) contain individual-level health care data for specific patient populations, or patients receiving specific interventions. Approximately 90% of the 105 Swedish NQR...
Citation: Journal of Patient-Reported Outcomes 2020 4:78
Issues arising from a lack of outcome standardisation in health research may be addressed by the use of core outcome sets (COS), which represent agreed-upon recommendations regarding what outcomes should be me...
Citation: Journal of Patient-Reported Outcomes 2020 4:77
Alopecia areata (AA) is characterized by hair loss that can affect the scalp and body. This study describes the psychosocial burden of AA.
Citation: Journal of Patient-Reported Outcomes 2020 4:76
Ulcerative Colitis (UC) is a chronic gastrointestinal disease that often presents during one’s most productive years and is characterized by colon inflammation. Key symptoms and impacts in adults are well-know...
Citation: Journal of Patient-Reported Outcomes 2020 4:75
Social media platforms give patients a voice by allowing them to discuss their health and connect with others. These unfiltered and genuine reports offer direct access to what matters most to patients. Explori...
Citation: Journal of Patient-Reported Outcomes 2020 4:74
One of the main aims of rehabilitation is to improve participation. Patient-Reported Outcomes Measurement Information System (PROMIS®) item banks ‘Ability to Participate in Social roles and Activities, (PROMIS...
Citation: Journal of Patient-Reported Outcomes 2020 4:73
Health related quality of life (HRQOL) is an important indicator of long-term well-being, influenced by environmental factors such as family, culture, societal norms and available resources. This study aimed t...
Citation: Journal of Patient-Reported Outcomes 2020 4:72
Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of thi...
Citation: Journal of Patient-Reported Outcomes 2020 4:71
Robust outcome measures are needed to assess and monitor the impact of chronic low back pain (CLBP) on physical functioning. The Roland Morris Disability Questionnaire (RMDQ) is a well-established measure desi...
Citation: Journal of Patient-Reported Outcomes 2020 4:70
The lower-risk (low and intermediate-1 risk based on IPSS) myelodysplastic syndrome (MDS) has a negative impact on patients’ health-related quality of life (HRQoL). Patient Reported Outcomes (PROs) instruments...
Citation: Journal of Patient-Reported Outcomes 2020 4:69
Published in 2019, a new addendum to the ICH E9 guideline presents the estimand framework as a systematic approach to ensure alignment among clinical trial objectives, trial execution/conduct, statistical anal...
Citation: Journal of Patient-Reported Outcomes 2020 4:68
Adaptation of a patient-reported outcomes survey into a new language requires careful translation procedures as well as qualitative and quantitative psychometric testing. This study aimed to evaluate the basic...
Citation: Journal of Patient-Reported Outcomes 2020 4:67
Speed
79 days to first decision for reviewed manuscripts only
65 days to first decision for all manuscripts
190 days from submission to acceptance
25 days from acceptance to publication
Usage
79,235 downloads
387 Altmetric mentions