Skip to main content

Articles

Page 1 of 15

  1. Illness-related communication and depressive symptoms within families may play an important role in caregivers’ ability to accurately understand patients’ symptom burden. We examined the associations between t...

    Authors: Meagan Whisenant, Stella Snyder, Shiao-Pei Weathers, Eduardo Bruera and Kathrin Milbury
    Citation: Journal of Patient-Reported Outcomes 2024 8:74
  2. Patient-focused approaches to capturing day-to-day variability in sleep disturbance are needed to properly evaluate the sleep benefits of new treatments. Such approaches rely on patient-reported outcome (PRO) ...

    Authors: Carla Dias-Barbosa, Jonathan I. Silverberg, Sonja Ständer, Danielle Rodriguez, Fatoumata Fofana, Dina Filipenko, Liliana Ulianov, Christophe Piketty and Jorge Puelles
    Citation: Journal of Patient-Reported Outcomes 2024 8:73
  3. To assess the validity and reliability of the Migraine-Specific Quality of Life Questionnaire 2.1 (MSQv.2.1) in a group of Greek migraineurs.

    Authors: Ermioni Giannouli, Eleni Giannouli, Athanasia Alexoudi, Chryssa Arvaniti, Nikolaos Fakas, Theodoros S. Constantinidis, Evangelos Kouremenos and Dimos-Dimitrios Mitsikostas
    Citation: Journal of Patient-Reported Outcomes 2024 8:72
  4. Cancer-associated malnutrition is associated with worse symptom severity, functional status, quality of life, and overall survival. Malnutrition in cancer patients is often under-recognized and undertreated, e...

    Authors: Katherine McLay, Nicole Stonewall, Laura Forbes and Christine Peters
    Citation: Journal of Patient-Reported Outcomes 2024 8:71
  5. Patients with COVID-19 often experience severe long-term sequelae. This study aimed to assess resilience and Quality of Life (QoL) of patients who underwent mechanical ventilation due to COVID-19, one year aft...

    Authors: David Rene Rodriguez Lima, Cristhian Rubio Ramos, Mateo Andrés Diaz Quiroz, Edith Elianna Rodríguez Aparicio, Leonardo Andrés Gómez Cortes, Laura Otálora González, Gilma Hernández-Herrera, Ángela María Pinzón Rondón and Ángela María Ruiz Sternberg
    Citation: Journal of Patient-Reported Outcomes 2024 8:70
  6. Despite a known risk of cellulitis recurrence, the management of the wider impact and risk factors has been neglected. The innovative National Cellulitis Improvement Programme (NCIP) addresses this by providin...

    Authors: Marie Gabe-Walters, Melanie Thomas and Linda Jenkins
    Citation: Journal of Patient-Reported Outcomes 2024 8:69
  7. The NFLymSI-18 is a patient-reported outcome measure comprised of the highest priority symptoms, emotional concerns, treatment side effects, and other concerns identified by lymphoma patients and oncologists. ...

    Authors: Courtney N. Hurt, Karen Kaiser, Sara Shaunfield, Kimberly A. Webster, Karen Keating, Lara Boyken, Sara Duffey, Jessica Garcia and David Cella
    Citation: Journal of Patient-Reported Outcomes 2024 8:68
  8. Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (OMIs) exist, for example from the COSMIN (COnsensus-based Standards for the selection o...

    Authors: Ellen B. M. Elsman, Lidwine B. Mokkink, Caroline B. Terwee, Dorcas Beaton, Joel J. Gagnier, Andrea C. Tricco, Ami Baba, Nancy J. Butcher, Maureen Smith, Catherine Hofstetter, Olalekan Lee Aiyegbusi, Anna Berardi, Julie Farmer, Kirstie L. Haywood, Karolin R. Krause, Sarah Markham…
    Citation: Journal of Patient-Reported Outcomes 2024 8:64
  9. Patient reported outcomes (PROs) are being used frequently in clinical practice. PROs often serve several purposes, such as increasing patient involvement, assessing health status, and monitoring and improving...

    Authors: Sine Rossen, Mette Thønnings Sandager, Dorte Thoning Hofland, Claus Vinther Nielsen and Thomas Maribo
    Citation: Journal of Patient-Reported Outcomes 2024 8:67
  10. As cancer centers have increased focus on patient-centered, evidenced-based care, implementing efficient programs that facilitate effective patient-clinician communication remains critical. We implemented an e...

    Authors: Madison J. Lyleroehr, Kimberly A. Webster, Laura M. Perry, Elijah A. Patten, Jackelyn Cantoral, Justin D. Smith, David Cella, Frank J. Penedo and Sofia F. Garcia
    Citation: Journal of Patient-Reported Outcomes 2024 8:66
  11. The Insomnia Severity Index (ISI) is a widely used measure of insomnia severity. Various ISI research findings suggest different factor solutions and meaningful within-individual change (MWIC) to detect treatm...

    Authors: William R. Lenderking, Yulia Savva, Mark J. Atkinson, Renee Campbell, Isabelle Chabot, Margaret Moline, Genevieve Meier and Charles M. Morin
    Citation: Journal of Patient-Reported Outcomes 2024 8:65
  12. Breast cancer-related lymphedema (BRCL) is one of the most common causes of upper extremity (UE) lymphedema in developed nations and substantially impacts health-related quality of life. To advance our underst...

    Authors: Manraj N. Kaur, Sylvie D. Cornacchi, Elena Tsangaris, Lotte Poulsen, Louise M. Beelen, Louise Bordeleau, Toni Zhong, Mads Gustaf Jorgensen, Jens Ahm Sorensen, Babak Mehrara, Joseph Dayan, Andrea L. Pusic and Anne F. Klassen
    Citation: Journal of Patient-Reported Outcomes 2024 8:63
  13. The Good Life with osteoArthritis: Denmark (GLA:D™), an evidence-based education and exercise program designed for conservative management of knee and hip osteoarthritis (OA), has been shown to benefit participan...

    Authors: Ania Kania-Richmond, Lauren A. Beaupre, Geneviève Jessiman-Perreault, Danika Tribo, Jason Martyn, David A. Hart, Jill Robert, Mel Slomp and C. Allyson Jones
    Citation: Journal of Patient-Reported Outcomes 2024 8:62
  14. Cognitive impairment associated with schizophrenia (CIAS) represents a distinct, persistent, and core group of schizophrenia symptoms. Cognitive symptoms have been shown to have an impact on quality of life. T...

    Authors: William R. Lenderking, Mark J. Atkinson, Mary Kate Ladd, Yulia Savva, Stephanie Sommer, Matthew Sidovar and Claudia Hastedt
    Citation: Journal of Patient-Reported Outcomes 2024 8:61
  15. Cholestatic pruritus and fatigue are debilitating conditions associated with primary biliary cholangitis (PBC) and can significantly impact patients’ quality of life. Pruritus in PBC often worsens at night and...

    Authors: Robyn von Maltzahn, Marlyn J. Mayo, Helen T. Smith, April Thompson, Sugato Das, Andrea Ribeiro de Souza, Edoardo Lisi, Cynthia Levy, Megan M. McLaughlin and David Jones
    Citation: Journal of Patient-Reported Outcomes 2024 8:60
  16. Transition of care from hospitalisation to home is a complex process with potential patient safety risks, especially for patients with multimorbidity. Traditionally, the quality of transition of care has been ...

    Authors: Merete Ajstrup, Caroline Trillingsgaard Mejdahl, David Høyrup Christiansen and Lene Kongsgaard Nielsen
    Citation: Journal of Patient-Reported Outcomes 2024 8:58
  17. To translate Amyotrophic Lateral Sclerosis-Specific Quality of Life-Short Form (ALSSQOL-SF) and test its reliability and validity, so that explore feasibility in Chinese mainland and make up the gap of specifi...

    Authors: Zhijie Zhang, Xin He, Jialu Cui, Jing Wang and Baoxin Shi
    Citation: Journal of Patient-Reported Outcomes 2024 8:57
  18. Total knee arthroplasty (TKA) is a common procedure employed to treat end-stage osteoarthritis. While TKA is generally believed to have acceptable outcomes, many patients report pain or functional deficits not...

    Authors: Sascha Karunaratne, Ian Andrew Harris, Mark Horsley, Lyndal Trevena and Michael Solomon
    Citation: Journal of Patient-Reported Outcomes 2024 8:56
  19. To translate and cross-culturally adapt the Stroke Self-Efficacy Questionnaire (SSEQ) from English to Swedish and to evaluate psychometric properties of the questionnaire.

    Authors: Erika Klockar, Maya Kylén, Linnea McCarthy, Lena von Koch, Catharina Gustavsson, Fiona Jones and Marie Elf
    Citation: Journal of Patient-Reported Outcomes 2024 8:55
  20. Bowel urgency is an impactful core symptom of ulcerative colitis (UC). Patient-reported outcome (PRO) questionnaires have been developed and used to assess the patient experience of this important symptom. The...

    Authors: Vipul Jairath, Theresa Hunter Gibble, Richard Moses, Brittany Klooster, Leighann Litcher-Kelly, Marisa Walker, Madison C Bernstein, Kaelyn Rupinski, Megan McLafferty, Simon Travis and Marla Dubinsky
    Citation: Journal of Patient-Reported Outcomes 2024 8:54
  21. There is no gold standard patient-reported outcome measure (PROM) in hand surgery. As a result, a diverse array of PROM instruments have been utilized across centers over time. Lack of score interchangeability...

    Authors: Miranda J. Rogers, Joshua R. Daryoush, Chong Zhang, Amy Cizik, Angela P. Presson and Nikolas H. Kazmers
    Citation: Journal of Patient-Reported Outcomes 2024 8:53
  22. Almost all patients with Neurofibromatosis type 1 (NF1) develop cutaneous neurofibroma (cNF), benign dermal tumours that have a large impact on the patient’s Quality of Life (QoL). The French cNF-Skindex is th...

    Authors: Britt A. E. Dhaenens, Sarah A. van Dijk, Laura Fertitta, Walter Taal, Pierre Wolkenstein and Rianne Oostenbrink
    Citation: Journal of Patient-Reported Outcomes 2024 8:52
  23. Caregivers rate improved communication ability as one of the most desired outcomes for successful interventions for individuals with Angelman syndrome (AS). When measuring communication ability in clinical tri...

    Authors: Dandan Chen, Christina K. Zigler, Li Lin, Nicole Lucas, Molly McFatrich, Jennifer Panagoulias, Allyson Berent and Bryce B. Reeve
    Citation: Journal of Patient-Reported Outcomes 2024 8:50
  24. Patient-Reported Outcomes (PROs) are recommended for use in clinical oncology. However, they are not routinely used in professional palliative care practices in Japan. The reasons include both patient and heal...

    Authors: Nao Ito, Azusa Sato, Kana Takeuchi, Tomoko Shigeno, Hiroko Sasaki, Maho Aoyama and Mitsunori Miyashita
    Citation: Journal of Patient-Reported Outcomes 2024 8:49
  25. General population normative values for the widely used health-related quality of life (HRQoL) measure EORTC QLQ-C30 support the interpretation of trial results and HRQoL of patients in clinical practice. Here...

    Authors: Micha J. Pilz, Fanny L.C. Loth, Sandra Nolte, Anna M.M. Thurner, Eva-Maria Gamper, Amélie Anota, Gregor Liegl and Johannes M. Giesinger
    Citation: Journal of Patient-Reported Outcomes 2024 8:48
  26. The EvalUation of goal-diRected activities to prOmote well-beIng and heAlth (EUROIA) scale is a novel patient-reported measure that was administered to individuals with chronic heart failure (CHF). It assesses go...

    Authors: Robert P. Nolan, Fatima Syed, Nicolette Stogios, Robert Maunder, Sanjeev Sockalingam, E. Shyong Tai, Mark Cobain, Rachel G. Peiris and Ella Huszti
    Citation: Journal of Patient-Reported Outcomes 2024 8:47
  27. Patient Reported Outcomes Measures (PROMs) are being used increasingly to measure health problems in stroke clinical practice. However, the implementation of these PROMs in routine stroke care is still in its ...

    Authors: B.M.P. Mourits, S.J. den Hartog, J.A. de Graaf, B. Roozenbeek, M.W.M. Post, J.M.A. Visser-Meily and E.W.M. Scholten
    Citation: Journal of Patient-Reported Outcomes 2024 8:46
  28. Chronic obstructive pulmonary disease (COPD) and muscle weakness can cause impaired physical function, significantly impacting patients’ health-related quality of life (HRQoL). Loss of muscle strength is usual...

    Authors: Maggie Tabberer, Nicola Williamson, Sophi Tatlock, Adam Gater, Rebecca Grimes, Chika Akinseye, David Neil, Aoife Mahon-Smith and Linda Nelsen
    Citation: Journal of Patient-Reported Outcomes 2024 8:45
  29. The concept of Positive Health (PH) has gained increasing attention as a way of measuring individuals’ ability to adapt in the face of contextual challenges. However, a suitable measurement instrument for PH t...

    Authors: Brian M. Doornenbal, Tim van Zutphen, Lise F. E. Beumeler, Rimke C. Vos, Mark Derks, Hinke Haisma, M. Elske van den Akker-van Marle and Jessica C. Kiefte-de Jong
    Citation: Journal of Patient-Reported Outcomes 2024 8:44
  30. Cognitive assessment is a required component of the Medicare Annual Wellness Visit (AWV). In this prospective study, we evaluated acceptability and usefulness of a patient-reported outcome measure (the PROMIS®...

    Authors: Jordan M. Harrison, Natalie C. Ernecoff, Jin-Shei Lai, Janel Hanmer, Rebecca Weir, Anthony Rodriguez, Michelle M. Langer and Maria O. Edelen
    Citation: Journal of Patient-Reported Outcomes 2024 8:43
  31. This study compares clinical pain outcomes between patients in a pain treatment program that received a Fitbit, to patients that did not. We also explored: (1) cognitive, emotional, and psychological factors t...

    Authors: Tiffany Toor, Sarah Palyo, Kathryn Schopmeyer, Alan N. Simmons and Irina A. Strigo
    Citation: Journal of Patient-Reported Outcomes 2024 8:42
  32. The Near Visual Acuity Questionnaire Presbyopia (NAVQ-P) is a patient-reported outcome (PRO) measure that was developed in a phakic presbyopia population to assess near vision function impacts. The study refin...

    Authors: Joel Sims, Brigitte Sloesen, Sarah Bentley, Christel Naujoks, Rob Arbuckle, Sima Chiva-Razavi, Ben Pascoe, Jan Stochl, Amy Findley, Paul O’Brien and James S. Wolffsohn
    Citation: Journal of Patient-Reported Outcomes 2024 8:41
  33. Forcibly displaced populations are highly vulnerable to psychosocial distress and mental disorders, including alcohol misuse. In an ongoing trial that seeks to develop a transdiagnostic intervention addressing...

    Authors: C.F. van der Boor, D. Taban, K. Ismail, J. Simon, B. Roberts, D. Fuhr, W.A. Tol and G. Greco
    Citation: Journal of Patient-Reported Outcomes 2024 8:40
  34. The Swedish Inflammatory Bowel Disease Registry (SWIBREG) includes approximately 84% of all patients with inflammatory bowel disease (IBD) treated with immunomodulators, biologics or surgery in Sweden. Data on...

    Authors: Jack Latteur, Olivia Ernstsson, Evalill Nilsson, Susanna Jäghult and Emelie Heintz
    Citation: Journal of Patient-Reported Outcomes 2024 8:39
  35. The FROM-16 is a generic family quality of life (QoL) instrument that measures the QoL impact of patients’ disease on their family members/partners. The study aimed to assess the responsiveness of FROM-16 to c...

    Authors: R. Shah, A.Y. Finlay, M.S. Salek, H. Allen, S.J. Nixon, M. Nixon, K. Otwombe, F.M. Ali and J.R. Ingram
    Citation: Journal of Patient-Reported Outcomes 2024 8:38
  36. Goal attainment scaling (GAS), an established individualized, patient-centred outcome measure, is used to capture the patient’s voice. Although first introduced ~60 years ago, there are few published guideline...

    Authors: Kulpreet Cheema, Taylor Dunn, Chere Chapman, Kenneth Rockwood, Susan E. Howlett and Gunes Sevinc
    Citation: Journal of Patient-Reported Outcomes 2024 8:37
  37. The EuroQol Group recently developed two new instruments, the EQ Health and Wellbeing (EQ-HWB) and the EQ Health and Wellbeing short version (EQ-HWB-S). The EQ-HWB and EQ-HWB-S are intended to capture a broad ...

    Authors: Sara Masutti, Camilla Falivena, Fredrick Dermawan Purba, Claudio Jommi, Clara Mukuria and Aureliano Paolo Finch
    Citation: Journal of Patient-Reported Outcomes 2024 8:36
  38. As patient-reported outcome measures (PROMs) become available to clinicians for routine clinical decision-making, many wonder how to define a meaningful change in a patient’s PROM score. Some PROMs have a spec...

    Authors: David Cella, Kyle Nolla and John Devin Peipert
    Citation: Journal of Patient-Reported Outcomes 2024 8:35
  39. The ability to efficiently identify patients at higher risk of poor outcomes after joint replacement would enable limited resources for post-operative follow-up to be directed to those with the greatest clinic...

    Authors: Ilana N. Ackerman, Kara Cashman, Michelle Lorimer, Emma Heath and Ian A. Harris
    Citation: Journal of Patient-Reported Outcomes 2024 8:34
  40. Half of the patients with Neurofibromatosis type 1 (NF1) develop one or more tumours called plexiform neurofibromas, which can have a significant impact on Quality of Life (QoL). The PlexiQoL questionnaire is ...

    Authors: Britt A. E. Dhaenens, Sarah A. van Dijk, Walter Taal, D. Christine Noordhoek, Anna Coffey, Stephen P. McKenna and Rianne Oostenbrink
    Citation: Journal of Patient-Reported Outcomes 2024 8:33
  41. In endoscopic care, favourable patient experiences before, during and after a colonoscopy are essential for the patient’s willingness to repeat the procedure. To ensure that significant experiences are measure...

    Authors: Annica Rosvall, Malin Axelsson, Ervin Toth, Christine Kumlien and Magdalena Annersten Gershater
    Citation: Journal of Patient-Reported Outcomes 2024 8:32
  42. In this hypothesis-generating analysis, we examined whether longitudinal changes in patient-reported outcomes (PROs), such as symptoms, over time would be prognostic for progression-free survival (PFS) and ove...

    Authors: Jessie T. Yan, Célia Bel, Peter C. Trask and Ernest Lo
    Citation: Journal of Patient-Reported Outcomes 2024 8:31
  43. The Upper Digestive Disease (UDD) Tool™ is used to monitor symptom frequency, intensity, and interference across nine symptom domains and includes two Patient-Reported Outcome Measurement Information System (P...

    Authors: Minji K. Lee, Mohamad K Abou Chaar, Shanda H Blackmon and Kathleen J Yost
    Citation: Journal of Patient-Reported Outcomes 2024 8:30
  44. There is increased emphasis on incorporating patient perspectives and patient-relevant endpoints in drug development. We developed a conceptual model of the impact of chronic hepatitis B (CHB) on patients’ liv...

    Authors: Jane Abbott, Natalie V. J. Aldhouse, Helen Kitchen, Hannah C. Pegram, Fiona Brown, Malcolm Macartney, Angelina Villasis-Keever, Urbano Sbarigia, Tetsuro Ito, Eric K. H. Chan and Patrick T. Kennedy
    Citation: Journal of Patient-Reported Outcomes 2024 8:29
  45. Quality of life is an important quality indicator for health and aged care sectors. However, self-reporting of quality of life is not always possible given the relatively high prevalence of cognitive impairmen...

    Authors: Claire Hutchinson, Jyoti Khadka, Matthew Crocker, Kiri Lay, Rachel Milte, David GT Whitehirst, Lidia Engel and Julie Ratcliffe
    Citation: Journal of Patient-Reported Outcomes 2024 8:28
  46. The study aimed to cross-culturally adapt the Patient-Reported Outcomes Measurement Information System Short Form v1.0 - Depression 8a (PROMIS SF v1.0 - Depression 8a) into Thai and evaluate its psychometric p...

    Authors: Ruetaichanok Sansatan, Rotsalai Kanlayanaphotporn, Mark P. Jensen, Helena Correia and Prawit Janwantanakul
    Citation: Journal of Patient-Reported Outcomes 2024 8:27
  47. Patient satisfaction is a vital metric for assessing healthcare quality and delivering patient-centered care. It can predict service utilization patterns by determining healthcare users’ contentment with their...

    Authors: Laxman Datt Bhatt, Sandhaya Ghimire and Kabita Khanal
    Citation: Journal of Patient-Reported Outcomes 2024 8:26
  48. Utilization of electronic patient-reported outcome (ePRO) tools to monitor symptoms in patients undergoing cancer treatment has shown clinical benefits. Tennessee Oncology (TO) implemented an ePRO platform in ...

    Authors: Natalie R Dickson, Karen D Beauchamp, Toni S Perry, Ashley Roush, Deborah Goldschmidt, Marie Louise Edwards and L Johnetta Blakely
    Citation: Journal of Patient-Reported Outcomes 2024 8:23

Annual Journal Metrics

  • Citation Impact 2023
    Journal Impact Factor: 2.4
    5-year Journal Impact Factor: 3.1
    Source Normalized Impact per Paper (SNIP): 1.019
    SCImago Journal Rank (SJR): 0.872

    Speed 2023
    Submission to first editorial decision (median days): 10
    Submission to acceptance (median days): 173

    Usage 2023
    Downloads: 642,043
    Altmetric mentions: 559