Berry, D. L., Blumenstein, B. A., Halpenny, B., Wolpin, S., Fann, J. R., Austin-Seymour, M., … McCorkle, R. (2011). Enhancing patient-provider communication with the electronic self-report assessment for cancer: A randomized trial. J Clin Oncol, 29(8), 1029–1035. https://doi.org/10.1200/JCO.2010.30.3909.
Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient-physician communication: A randomized controlled trial. Jama, 288(23), 3027–3034.
Article
Google Scholar
Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., & Selby, P. J. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. J Clin Oncol, 22(4), 714–724. https://doi.org/10.1200/JCO.2004.06.078.
Article
PubMed
Google Scholar
Velikova, G., Keding, A., Harley, C., Cocks, K., Booth, L., Smith, A. B., … Brown, J. M. (2010). Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial. Eur J Cancer, 46(13), 2381–2388. https://doi.org/10.1016/j.ejca.2010.04.030.
Sloan, J. A., Halyard, M., El Naqa, I., & Mayo, C. (2016). Lessons from large-scale collection of patient-reported outcomes: Implications for big data aggregation and analytics. Int J Radiat Oncol Biol Phys, 95(3), 922–929. https://doi.org/10.1016/j.ijrobp.2016.04.002.
Article
PubMed
PubMed Central
Google Scholar
Sloan, J. A., Zhao, X., Novotny, P. J., Wampfler, J., Garces, Y., Clark, M. M., & Yang, P. (2012). Relationship between deficits in overall quality of life and non-small-cell lung cancer survival. Journal of clinical oncology, 30(13), 1498–1504. https://doi.org/10.1200/JCO.2010.33.4631.
Article
PubMed
PubMed Central
Google Scholar
Basch, E., Deal, A. M., Dueck, A. C., Scher, H. I., Kris, M. G., Hudis, C., & Schrag, D. (2017). Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine Cancer treatment. Jama, 318(2), 197–198. https://doi.org/10.1001/jama.2017.7156.
Article
PubMed
PubMed Central
Google Scholar
Bruera, E. (2008). Routine symptom assessment: Good for practice and good for business. Support Care Cancer, 16(6), 537–538. https://doi.org/10.1007/s00520-008-0433-1.
Article
PubMed
Google Scholar
Health USDo, Human Services FDACfDE, Research, Health USDo, Human Services FDACfBE, Research, Health USDo, Human Services FDACfD, Radiological H (2006). Guidance for industry: Patient-reported outcome measures: Use in medical product development to support labeling claims: Draft guidance. Health Qual Life Outcomes, 4, 79. https://doi.org/10.1186/1477-7525-4-79.
Article
Google Scholar
Aaronson, N. K., & Snyder, C. (2008). Using patient-reported outcomes in clinical practice: Proceedings of an International Society of Quality of life research conference. Qual Life Res, 17(10), 1295. https://doi.org/10.1007/s11136-008-9422-6.
Article
PubMed
Google Scholar
Niska, J. R., Halyard, M. Y., Tan, A. D., Atherton, P. J., Patel, S. H., & Sloan, J. A. (2017). Electronic patient-reported outcomes and toxicities during radiotherapy for head-and-neck cancer. Qual Life Res, 26(7), 1721–1731. https://doi.org/10.1007/s11136-017-1528-2.
Article
PubMed
PubMed Central
Google Scholar
Rathod, S., Gupta, T., Ghosh-Laskar, S., Murthy, V., Budrukkar, A., & Agarwal, J. (2013). Quality-of-life (QOL) outcomes in patients with head and neck squamous cell carcinoma (HNSCC) treated with intensity-modulated radiation therapy (IMRT) compared to three-dimensional conformal radiotherapy (3D-CRT): Evidence from a prospective randomized study. Oral Oncol, 49(6), 634–642. https://doi.org/10.1016/j.oraloncology.2013.02.013.
Article
PubMed
Google Scholar
Rosenthal, D. I., Mendoza, T. R., Fuller, C. D., Hutcheson, K. A., Wang, X. S., Hanna, E. Y., … Gunn, G. B. (2014). Patterns of symptom burden during radiotherapy or concurrent chemoradiotherapy for head and neck cancer: A prospective analysis using the University of Texas MD Anderson Cancer Center Symptom Inventory-Head and neck module. Cancer, 120(13), 1975–1984. https://doi.org/10.1002/cncr.28672.
Trotti, A., Pajak, T. F., Gwede, C. K., Paulus, R., Cooper, J., Forastiere, A., … Curran, W. (2007). TAME: Development of a new method for summarising adverse events of cancer treatment by the radiation therapy oncology group. Lancet Oncol, 8(7), 613–624. https://doi.org/10.1016/S1470-2045(07)70144-4.
Huschka, M. M., Mandrekar, S. J., Schaefer, P. L., Jett, J. R., & Sloan, J. A. (2007). A pooled analysis of quality of life measures and adverse events data in north central cancer treatment group lung cancer clinical trials. Cancer, 109(4), 787–795. https://doi.org/10.1002/cncr.22444.
Article
PubMed
Google Scholar
Atherton, P. J., Watkins-Bruner, D. W., Gotay, C., Moinpour, C. M., Satele, D. V., Winter, K. A., … Sloan, J. A. (2015). The complementary nature of patient-reported outcomes and adverse event reporting in cooperative group oncology clinical trials: A pooled analysis (NCCTG N0591). J Pain Symptom Manag, 50(4), 470–479 e479. https://doi.org/10.1016/j.jpainsymman.2015.04.016.
Snyder, C. F., Blackford, A. L., Wolff, A. C., Carducci, M. A., Herman, J. M., Wu, A. W., & PatientViewpoint Scientific Advisory, B. (2013). Feasibility and value of PatientViewpoint: A web system for patient-reported outcomes assessment in clinical practice. Psychooncology, 22(4), 895–901. https://doi.org/10.1002/pon.3087.
Article
PubMed
Google Scholar
Bretscher, M., Rummans, T., Sloan, J., Kaur, J., Bartlett, A., Borkenhagen, L., & Loprinzi, C. (1999). Quality of life in hospice patients. A pilot study. Psychosomatics, 40(4), 309–313. https://doi.org/10.1016/S0033-3182(99)71224-7.
Article
CAS
PubMed
Google Scholar
Hyland, M. E., & Sodergren, S. C. (1996). Development of a new type of global quality of life scale, and comparison of performance and preference for 12 global scales. Qual Life Res, 5(5), 469–480. https://doi.org/10.1007/bf00540019.
Article
CAS
PubMed
Google Scholar
Cohen, J. (1988). Statistical power analysis for the behavioral sciences, (2nd ed., ). Hillsdale, NJ: Lawerence Earlbaum Associates.
Google Scholar
Fromme, E. K., Eilers, K. M., Mori, M., Hsieh, Y. C., & Beer, T. M. (2004). How accurate is clinician reporting of chemotherapy adverse effects? A comparison with patient-reported symptoms from the quality-of-life questionnaire C30. J Clin Ontara, 22(17), 3485–3490. https://doi.org/10.1200/JCO.2004.03.025.
Article
Google Scholar
Falchook, A. D., Green, R., Knowles, M. E., Amdur, R. J., Mendenhall, W., Hayes, D. N., … Chera, B. S. (2016). Comparison of patient- and practitioner-reported toxic effects associated with Chemoradiotherapy for head and neck Cancer. JAMA Otolaryngol Head Neck Surg, 142(6), 517–523. https://doi.org/10.1001/jamaoto.2016.0656.
Dueck, A. C., Mendoza, T. R., Mitchell, S. A., Reeve, B. B., Castro, K. M., Rogak, L. J., … National Cancer Institute PROCSG (2015). Validity and Reliability of the US National Cancer Institute's Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE). JAMA Oncol, 1(8), 1051–1059. https://doi.org/10.1001/jamaoncol.2015.2639.