Rothrock, N. E., Hays, R. D., Spritzer, K., Yount, S. E., Riley, W., & Cella, D. (2010). Relative to the general US population, chronic diseases are associated with poorer health-related quality of life as measured by the patient-reported outcomes measurement information system (PROMIS). J Clin Epidemiol, 63(11), 1195–1204.
Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., et al. (2010). The patient-reported outcomes measurement information system (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. J Clin Epidemiol, 63(11), 1179–1194.
Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., et al. (2007). The patient-reported outcomes measurement information system (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Med Care, 45(5 Suppl 1), S3–S11.
Cook, K. F., Jensen, S. E., Schalet, B. D., Beaumont, J. L., Amtmann, D., Czajkowski, S., et al. (2016). PROMIS measures of pain, fatigue, negative affect, physical function, and social function demonstrated clinical validity across a range of chronic conditions. J Clin Epidemiol, 73, 89–102.
Stone, A. A., Broderick, J. E., Schwartz, J. E., & Schwarz, N. (2008). Context effects in survey ratings of health, symptoms, and satisfaction. Med Care, 46(7), 662–667.
Sprangers, M. A., & Schwartz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Soc Sci Med, 48(11), 1507–1515.
Arigo, D., Suls, J. M., & Smyth, J. M. (2014). Social comparisons and chronic illness: Research synthesis and clinical implications. Health Psychol Rev, 8(2), 154–214.
Stanton, A. L., Revenson, T. A., & Tennen, H. (2007). Health psychology: Psychological adjustment to chronic disease. Annu Rev Psychol, 58, 565–592.
Ubel, P. A., Loewenstein, G., & Jepson, C. (2003). Whose quality of life? A commentary exploring discrepancies between health state evaluations of patients and the general public. Qual Life Res, 12(6), 599–607.
Sinclair, V. G., & Blackburn, D. S. (2008). Adaptive coping with rheumatoid arthritis: The transforming nature of response shift. Chronic Illn, 4(3), 219–230.
Rapkin, B. D., & Schwartz, C. E. (2004). Toward a theoretical model of quality-of-life appraisal: Implications of findings from studies of response shift. Health Qual Life Outcomes, 2, 14.
Schwartz, C. E., & Rapkin, B. D. (2004). Reconsidering the psychometrics of quality of life assessment in light of response shift and appraisal. Health Qual Life Outcomes, 2, 16.
Roberts, G. (1999). Age effects and health appraisal: A meta-analysis. J Gerontol Ser B Psychol Sci Soc Sci, 54(1), S24–S30.
Ubel, P. A., Jankovic, A., Smith, D., Langa, K. M., & Fagerlin, A. (2005). What is perfect health to an 85-year-old?: Evidence for scale recalibration in subjective health ratings. Med Care, 43(10), 1054–1057.
Sargent-Cox, K. A., Anstey, K. J., & Luszcz, M. A. (2008). Determinants of self-rated health items with different points of reference: Implications for health measurement of older adults. Journal of aging and health, 20(6), 739–761.
Filus A, Junghaenel DU, Schneider S, Broderick JE, Stone AA. Age effects of frames of reference in self-reports of health, well-being, fatigue and pain. Applied Research in Quality of Life. in press.
Junghaenel, D. U., Broderick, J. E., Schneider, S., May, M., Bolton, A., McCarrier, K. P., et al. (2018). Frames of reference in self-reports of health, well-being, fatigue, and pain: A qualitative examination. Appl Res Qual Life, 13(3), 585–601.
Schneider, S., & Stone, A. A. (2016). The meaning of vaguely quantified frequency response options on a quality of life scale depends on respondents' medical status and age. Qual Life Res, 25(10), 2511–2521.
Ware JE, Kosinski M, Dewey JE. How to Score Version 2 of the SF-36 Health Survey. Lincoln, RI: QualityMetric Incorporated; 2000.
Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care, 30(6), 473–483.
Mendoza, T. R., Wang, X. S., Cleeland, C. S., Morrissey, M., Johnson, B. A., Wendt, J. K., et al. (1999). The rapid assessment of fatigue severity in cancer patients: Use of the brief fatigue inventory. Cancer-Am Cancer Soc, 85(5), 1186–1196.
Cleeland, C. S., & Ryan, K. M. (1994). Pain assessment: Global use of the brief pain inventory. Ann Acad Med Singap, 23(2), 129–138.
Cella, D., Lai, J. S., Jensen, S. E., Christodoulou, C., Junghaenel, D. U., Reeve, B. B., et al. (2016). PROMIS fatigue item Bank had clinical validity across diverse chronic conditions. J Clin Epidemiol, 73, 128–134.
Fayers, P. M., Langston, A. L., & Robertson, C. (2007). Group Pt. implicit self-comparisons against others could bias quality of life assessments. J Clin Epidemiol, 60(10), 1034–1039.
Guyatt, G. H., Osoba, D., Wu, A. W., Wyrwich, K. W., & Norman, G. R. (2002). Clinical significance consensus meeting G. Methods to explain the clinical significance of health status measures. Mayo Clin Proc, 77(4), 371–383.