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  1. This study examined the content validity of the SF-36v2® Health Survey (SF-36v2) in patients with AL amyloidosis using qualitative interviews with physicians and patients. The study included three distinct pha...

    Authors: Michelle K. White, Martha S. Bayliss, Spencer D. Guthrie, Kimberly P. Raymond, Avery A. Rizio and Kristen L. McCausland
    Citation: Journal of Patient-Reported Outcomes 2017 1:13
  2. The US National Cancer Institute (NCI) has developed the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) to capture patients’ self-reported symptomatic adver...

    Authors: Tempei Miyaji, Yukiko Iioka, Yujiro Kuroda, Daigo Yamamoto, Satoru Iwase, Yasushi Goto, Masahiro Tsuboi, Hiroki Odagiri, Yu Tsubota, Takashi Kawaguchi, Naoko Sakata, Ethan Basch and Takuhiro Yamaguchi
    Citation: Journal of Patient-Reported Outcomes 2017 1:8
  3. This study evaluated the responsiveness of several PROMIS patient-reported outcome measures in patients with hand and upper extremity disorders and provided comparisons with the qDASH instrument.

    Authors: Man Hung, Charles L. Saltzman, Tom Greene, Maren W. Voss, Jerry Bounsanga, Yushan Gu, Angela A. Wang, Douglas Hutchinson and Andrew R. Tyser
    Citation: Journal of Patient-Reported Outcomes 2017 1:12
  4. Pediatric neuromuscular illnesses often result in decreased health-related quality of life (HRQL), notably in physical functioning. Generic HRQL measures have been developed for use in general populations, but...

    Authors: Angie Mae Rodday, Robert J. Graham, Ruth Ann Weidner, Nan E. Rothrock, Darren A. Dewalt and Susan K. Parsons
    Citation: Journal of Patient-Reported Outcomes 2017 1:10
  5. This study aimed to evaluate the patient-reported outcome (PRO) content of ovarian cancer randomised-controlled trial (RCT) publications, describe PRO compliance, and explore potential relationships among thes...

    Authors: Rebecca Mercieca-Bebber, Michael Friedlander, Melanie Calvert, Martin Stockler, Derek Kyte, Peey-Sei Kok and Madeleine T. King
    Citation: Journal of Patient-Reported Outcomes 2017 1:5
  6. The lack of an appropriate retina-specific patient-reported outcome instrument restricts the understanding of the full impact of hereditary retinal diseases and other less common but potentially blinding acqui...

    Authors: Mallika Prem Senthil, Jyoti Khadka, Jagjit Singh Gilhotra, Sumu Simon and Konrad Pesudovs
    Citation: Journal of Patient-Reported Outcomes 2017 1:15
  7. The primary objective of this study was to evaluate the content validity of the Psoriasis Symptom Scale (PSS), with a specific focus on understanding of the content of the PRO measure by conducting one-on-one ...

    Authors: A. M. Rentz, A. M. Skalicky, K. Burslem, K. Becker, D. Kaschinski, D. Esser and D. A. Revicki
    Citation: Journal of Patient-Reported Outcomes 2017 1:4
  8. Eosinophilic esophagitis (EoE) is characterized by high levels of eosinophils in the esophageal mucosa. Patients with the disease present with a range of symptoms, including dysphagia (difficulty swallowing). ...

    Authors: Stacie Hudgens, Christopher Evans, Elaine Phillips and Malcolm Hill
    Citation: Journal of Patient-Reported Outcomes 2017 1:3
  9. Self-reports of health provide useful information about function and well-being that can improve communication between patients and clinicians. Global health items provide summary information that are predicti...

    Authors: Ron D. Hays, Benjamin D. Schalet, Karen L. Spritzer and David Cella
    Citation: Journal of Patient-Reported Outcomes 2017 1:2
  10. The aim was to examine the feasibility, acceptability and clinical utility of electronic symptom surveillance with clinician feedback using a subset of items drawn from the Patient-Reported Outcomes version of...

    Authors: Christina Baeksted, Helle Pappot, Aase Nissen, Niels Henrik Hjollund, Sandra A. Mitchell, Ethan Basch, Pernille Envold Bidstrup, Susanne Oksbjerg Dalton and Christoffer Johansen
    Citation: Journal of Patient-Reported Outcomes 2017 1:1

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