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Journal of Patient-Reported Outcomes
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Page 4 of 15

  1. Refractory chronic cough (RCC), a cough lasting longer than 8 weeks with an unexplained underlying etiology and unresponsive to conventional treatment, can have substantial effects on patients’ quality of life...

    Authors: Margarita de la Orden Abad, Claudia Haberland, Hayley Karn, Anne Skalicky and Asha Hareendran
    Citation: Journal of Patient-Reported Outcomes 2023 7:65
    Content type: Research Published on:

  2. Dry eye disease (DED), Meibomian gland dysfunction (MGD), and Sjögren’s syndrome dry eye disease (SS-DED) are eye dryness conditions that show significant overlap in various symptoms of ocular discomfort. The ...

    Authors: Brigitte Sloesen, Alyson Young, Katie Forde, Nicola Hodson, Sarah Bentley, Oonagh Walsh, Christel Naujoks, Paul O’Brien and Garima Sharma
    Citation: Journal of Patient-Reported Outcomes 2023 7:64
    Content type: Research Published on:

  3. Fatigue is the most common symptom associated with paroxysmal nocturnal hemoglobinuria (PNH). The objective of this analysis was to estimate values that would suggest a clinically important change (CIC) for th...

    Authors: David Cella, Peter Johansson, Yasutaka Ueda, Ioannis Tomazos, Philippe Gustovic, Alice Wang, Ami S. Patel and Hubert Schrezenmeier
    Citation: Journal of Patient-Reported Outcomes 2023 7:63
    Content type: Research Published on:

  4. With its health risks and extensive disruption to everyday life, the SARS-CoV-2 (COVID-19) pandemic has affected the lives of billions of people. People with chronic conditions are particularly susceptible to ...

    Authors: Caroline Trillingsgaard Mejdahl, Pernille Bjørnholt Nielsen, Lise Arnth Nielsen, Astrid Fyrstenborg Christensen and Berit Kjærside Nielsen
    Citation: Journal of Patient-Reported Outcomes 2023 7:62
    Content type: Research Published on:

  5. As disease-modifying therapies do not reverse the course of multiple sclerosis (MS), assessment of therapeutic success involves documenting patient-reported outcomes (PROs) concerning health-related quality of...

    Authors: Nupur Greene, Stéphane Quéré, Denise P. Bury, Flora Mazerolle, Manal M’Hari, Angély Loubert, Antoine Regnault and Keiko Higuchi
    Citation: Journal of Patient-Reported Outcomes 2023 7:61
    Content type: Research Published on:

  6. Living with autoimmune thyroid disease is a longstanding challenge and can seriously affect the quality of life. We aimed to adapt and validate the Hungarian version of the Thyroid-Related Patient-Reported Out...

    Authors: Adrien Rigó, Katalin Malkov, Alexandra Szabó, Virág Katalin Bognár and Róbert Urbán
    Citation: Journal of Patient-Reported Outcomes 2023 7:60
    Content type: Research Published on:

  7. The Bristol Impact of Hypermobility questionnaire (BIoH) is the first condition-specific patient reported outcome measure for people with hypermobility-related conditions. The BIoH original version is in Engli...

    Authors: Najla Alsiri, Meshal Alhadhoud, Asma Alhumaid and Shea Palmer
    Citation: Journal of Patient-Reported Outcomes 2023 7:59
    Content type: Research Published on:

  8. Falls prevention in hospital continues to be a research priority because of the poor health outcomes and financial burdens that can arise. Recently updated World Guidelines for Falls Prevention and Management ...

    Authors: Elissa Dabkowski, Karen Missen, Jhodie Duncan and Simon Cooper
    Citation: Journal of Patient-Reported Outcomes 2023 7:58
    Content type: Review Published on:

  9. Establishing the psychometric reliability and validity of new measures is an ongoing process. More work is needed in to confirm the clinical utility of the TBI-CareQOL measurement development system in both an...

    Authors: Noelle E. Carlozzi, Sung Won Choi, Zhenke Wu, Srijan Sen, Jonathan Troost, Angela K. Lyden, Jennifer A. Miner, Christopher Graves and Angelle M. Sander
    Citation: Journal of Patient-Reported Outcomes 2023 7:57
    Content type: Research Published on:

  10. The pediatric patient-reported outcomes version of the common terminology criteria for adverse event measure was developed and validated for use in pediatric cancer clinical trials to better capture the sympto...

    Authors: Kristin M. Schroeder, Tyler Rizzieri, Ryan R. Lion, Norbert Mtenga, Mwitasrobert Gisiri, Molly McFatrich and Bryce B. Reeve
    Citation: Journal of Patient-Reported Outcomes 2023 7:56
    Content type: Short report Published on:

  11. The Hyperhidrosis Quality of Life Index (HidroQoL ©) is a well-developed and validated patient-reported outcome measure assessing the quality-of-life impacts in hyperhidrosis with 18 items. Our aim was to exte...

    Authors: Theresa Donhauser, Christian Apfelbacher, Gesina Kann, Clarissa Masur, Paul Kamudoni, Sam Salek, Christoph Abels and Michaela Gabes
    Citation: Journal of Patient-Reported Outcomes 2023 7:55
    Content type: Research Published on:

  12. Research shows that feeding back patient-reported outcome information to clinicians and/or patients could be associated with improved care processes and patient outcomes. Quantitative syntheses of intervention...

    Authors: Sheng-Chieh Lu, I. Porter, J. M. Valderas, C. J. Harrison and Chris Sidey-Gibbons
    Citation: Journal of Patient-Reported Outcomes 2023 7:54
    Content type: Review Published on:

  13. Authors: Magdalena Vanya, Maureen Watt, Saeid Shahraz, Charlotte E. Kosmas, Stephanie Rhoten, Sara Costa-Cabral, Joan Mendivil, Giovanna Devercelli and Karsten Weller
    Citation: Journal of Patient-Reported Outcomes 2023 7:53
    Content type: Correction Published on:

    The original article was published in Journal of Patient-Reported Outcomes 2023 7:33

  14. Many large-scale population-based surveys, research studies, and clinical care allow for inclusion of proxy reporting as a strategy to collect outcomes when patients are unavailable or unable to provide reliab...

    Authors: Brittany Lapin, Matthew L. Cohen, Nadia Corsini, Alyssa Lanzi, Sarah C. Smith, Antonia V. Bennett, Nancy Mayo, Rebecca Mercieca-Bebber, Sandra A. Mitchell, Claudia Rutherford and Jessica Roydhouse
    Citation: Journal of Patient-Reported Outcomes 2023 7:52
    Content type: Review Published on:

  15. The Respiratory Infection Intensity and Impact Questionnaire (RiiQ™) is a patient-reported outcome measure designed to assess symptoms and impacts of respiratory syncytial virus (RSV) infection. This study eva...

    Authors: Richard H. Osborne, Lauren M. Nelson, Sheri Fehnel, Nicole Williams, Randall H. Bender, Ryan Ziemiecki, Efi Gymnopoulou, Els De Paepe, Yannick Vandendijck, Lindsey Norcross, Esther Heijnen, Gabriela Ispas, Christy Comeaux, Benoit Callendret, Eric K. H. Chan and Jane A. Scott
    Citation: Journal of Patient-Reported Outcomes 2023 7:51
    Content type: Research Published on:

  16. Patient Reported Outcomes (PROs) are an evidenced way of adding value to routine clinical care. As a source of unique information on the effect of a medical condition and its treatment from the patients’ persp...

    Authors: António Antunes, Ricardo Racha-Pacheco, Catarina Esteves, Ana Tavares, Josefina Mendez, Patrícia Pacheco and Duncan Short
    Citation: Journal of Patient-Reported Outcomes 2023 7:50
    Content type: Short report Published on:

  17. The ability to communicate is a prerequisite for participation in today’s society. To measure participation in adults with communication disorders, the Communicative Participation Item Bank (CPIB) was develope...

    Authors: Nicole ter Wal, Lizet van Ewijk, Johanna M.A. Visser-Meily, Anna Volkmer, Ellen Gerrits and Caroline B. Terwee
    Citation: Journal of Patient-Reported Outcomes 2023 7:49
    Content type: Review Published on:

  18. Symptom expression in SARS-CoV-2 infection (COVID-19) may affect patients already symptomatic with cancer. Patient-reported outcomes (PROs) can describe symptom burden during the acute and postacute stages of ...

    Authors: Loretta A. Williams, Meagan S. Whisenant, Tito R. Mendoza, Angela E. Peek, Donna Malveaux, Donna K. Griffin, Darcy A. Ponce, Bruno Palma Granwehr, Ajay Sheshadri, Katherine A. Hutcheson, Sara M. Ali, Susan K. Peterson, John V. Heymach, Charles S. Cleeland and Ishwaria M. Subbiah
    Citation: Journal of Patient-Reported Outcomes 2023 7:48
    Content type: Original Report Published on:

  20. COVID-19 put older individuals at high risk for morbidity and mortality, isolation, reduced coping, and lower satisfaction with life. Many older adults experienced social isolation, fear, and anxiety. We hypot...

    Authors: Nasreen Lalani, Xu Dongjuan, Yun Cai and Greg W. Arling
    Citation: Journal of Patient-Reported Outcomes 2023 7:46
    Content type: Research Published on:

  21. The Symptoms of Infection with Coronavirus-19 (SIC) is a 30-item patient-reported outcome (PRO) measure scored by body system composites to assess signs/symptoms of coronavirus disease 2019 (COVID-19). In addi...

    Authors: Eric K.H. Chan, Valerie Williams, Carla Romano, Sheri Fehnel, Ashley F. Slagle, Jeffrey Stoddard, Jerald Sadoff, Margaret Mayorga, Sandy Lewis, Stuart Yarr, Jia Ma, Yan Liu, Eva G. Katz, Pauline McNulty, Ilse van Dromme and Kelly McQuarrie
    Citation: Journal of Patient-Reported Outcomes 2023 7:45
    Content type: Research Published on:

  22. There has been an increased significance on patient-reported outcomes in clinical settings. We aimed to evaluate the feasibility of administering patient-reported outcome measures by computerized adaptive test...

    Authors: Riyad Bin Rafiq, Susan Yount, Sara Jerousek, Elliot J. Roth, David Cella, Mark V. Albert and Allen W. Heinemann
    Citation: Journal of Patient-Reported Outcomes 2023 7:44
    Content type: Research Published on:

  23. Fear of Hypoglycemia (FoH) in people with diabetes has a significant impact on their quality of life, psychological well-being, and self-management of disease. There are a few questionnaires assessing FoH in p...

    Authors: Jingwen Liu, Jiat-Ling Poon, Jeoffrey Bispham, Magaly Perez-Nieves, Allyson Hughes, Katherine Chapman, Beth Mitchell, Korey Hood, Frank Snoek and Lawrence Fisher
    Citation: Journal of Patient-Reported Outcomes 2023 7:43
    Content type: Research Published on:

  24. Cancer and its treatment can have significant impacts on health status, quality of life and functioning of patients. Direct information from patients regarding these aspects can be collected via electronic pla...

    Authors: Amelia Payne, Ashley Horne, Neil Bayman, Fiona Blackhall, Layla Bostock, Clara Chan, Joanna Coote, Marie Eaton, Jacqueline Fenemore, Fabio Gomes, Emma Halkyard, Margaret Harris, Colin Lindsay, Delyth McEntee, Hilary Neal, Laura Pemberton…
    Citation: Journal of Patient-Reported Outcomes 2023 7:42
    Content type: Research Published on:

  25. The use of patient-reported outcome measures (PROM) and patient-reported experience measures (PREM) provide health providers with valuable feedback on how to improve clinical care and patient outcomes. This pa...

    Authors: Anna-Leena Lohiniva, Sanna Isosomppi, Sini Pasanen and Jussi Sutinen
    Citation: Journal of Patient-Reported Outcomes 2023 7:41
    Content type: Research Published on:

  26. Previous research on concepts that are important to people living with early-stage Parkinson’s indicated that ‘functional’ slowness, fine motor skills, and subtle gait abnormalities are cardinal concepts that are...

    Authors: Thomas Morel, Sophie Cleanthous, John Andrejack, Roger A. Barker, Milton Biagioni, Geraldine Blavat, Bastiaan R. Bloem, Babak Boroojerdi, William Brooks, Paul Burns, Stefan Cano, Casey Gallagher, Lesley Gosden, Carroll Siu, Ashley F. Slagle, Natasha Ratcliffe…
    Citation: Journal of Patient-Reported Outcomes 2023 7:40
    Content type: Research Published on:

  27. Sleep disturbance, pain, and fatigue are key symptoms/impacts of axial spondyloarthritis (axSpA). Three customized Patient-Reported Outcomes Measurement Information System (PROMIS®) Short Forms (Sleep Disturbance...

    Authors: Amy Findley, Jessica M. Middlehurst, Chloe A. Howse, Molly J. Clifford, William Neill, Sophi Tatlock, Wen-Hung Chen, Marguerite G. Bracher and Dharm S. Patel
    Citation: Journal of Patient-Reported Outcomes 2023 7:39
    Content type: Research Published on:

  28. Patients with Dupuytren disease experience various activity limitations. Treatment aims to reduce finger joint contractures to improve hand function and activity performance. For assessing improvement differen...

    Authors: Anna Lauritzson, David Eckerdal and Isam Atroshi
    Citation: Journal of Patient-Reported Outcomes 2023 7:38
    Content type: Research Published on:

  29. The BREAST-Q is the most used patient-reported outcome measure (PROM) in breast cancer surgery. The purposes of this study were to re-examine the content validity of BREAST-Q cancer modules (mastectomy, lumpec...

    Authors: Manraj N. Kaur, Sabrina Chan, Louise Bordeleau, Toni Zhong, Elena Tsangaris, Andrea L. Pusic, Stefan J. Cano and Anne F. Klassen
    Citation: Journal of Patient-Reported Outcomes 2023 7:37
    Content type: Research Published on:

  30. The World Health Organization Disability Assessment Schedule (WHODAS 2.0) is a generic questionnaire that captures health and disability-related functioning information corresponding to six major life domains: Co...

    Authors: Paulina Norén, Jan Karlsson, Emma Ohlsson-Nevo, Margareta Möller and Liselotte Hermansson
    Citation: Journal of Patient-Reported Outcomes 2023 7:36
    Content type: Research Published on:

  31. The Patient-Reported Outcomes Measurement Information System (PROMIS®) has the potential to harmonize the measurement of health-related quality of life (HRQL) across medical conditions. We evaluated responsive...

    Authors: Caroline B. Terwee, Esmee M. van der Willik, Fenna van Breda, Brigit C. van Jaarsveld, Marlon van de Putte, Isabelle W. Jetten, Friedo W. Dekker, Yvette Meuleman and Frans J. van Ittersum
    Citation: Journal of Patient-Reported Outcomes 2023 7:35
    Content type: Research Published on:

  32. No available studies demonstrate validity and meaningful change thresholds of Work Productivity and Activity Impairment (WPAI) questionnaire in patients with migraine. In this post-hoc analysis, we assessed re...

    Authors: Janet H. Ford, Wenyu Ye, David W. Ayer, Xiaojuan Mi, Swati Bhandari, Dawn C. Buse and Richard B. Lipton
    Citation: Journal of Patient-Reported Outcomes 2023 7:34
    Content type: Research Published on:

  33. There is considerable burden of illness in hereditary angioedema (HAE). However, instruments to assess health-related quality of life (HRQoL) in HAE are limited. The Angioedema Quality of Life Questionnaire (A...

    Authors: Magdalena Vanya, Maureen Watt, Saeid Shahraz, Charlotte E. Kosmas, Stephanie Rhoten, Sara Costa-Cabral, Joan Mendivil, Giovanna Devercelli and Karsten Weller
    Citation: Journal of Patient-Reported Outcomes 2023 7:33
    Content type: Research Published on:

    The Correction to this article has been published in Journal of Patient-Reported Outcomes 2023 7:53

  34. In the last decades, pediatric patient engagement has received growing attention and its importance is increasingly acknowledged. Pediatric patient engagement in health care can be defined as the involvement o...

    Authors: Lorynn Teela, Lieke E. Verhagen, Hedy A. van Oers, Esmée E. W. Kramer, Joost G. Daams, Mariken P. Gruppen, Maria J. Santana, Martha A. Grootenhuis and Lotte Haverman
    Citation: Journal of Patient-Reported Outcomes 2023 7:32
    Content type: Review Published on:

  35. The novel Coronavirus (COVID-19) has continued to present a significant burden to global public health efforts. The purpose of this study was to estimate the health-related quality of life, disability, and hea...

    Authors: Casey R. Tak
    Citation: Journal of Patient-Reported Outcomes 2023 7:31
    Content type: Research Published on:

  37. Long Covid is an unknown illness which has been shown to affect sufferers regardless of mild initial COVID-19 or age. There is still a lot unknown about long COVID illness. There has been a call to understand ...

    Authors: Lilian Skilbeck, Christopher Spanton and Michael Paton
    Citation: Journal of Patient-Reported Outcomes 2023 7:30
    Content type: Research Published on:

  38. The COVID-19 pandemic presents a unique, amplified threat to those living with a cancer diagnosis, but personal factors may play a role in how this affects well-being. This cross-sectional study (1) describes ...

    Authors: Erica E. Fortune, Alexandra K. Zaleta and Victoria G. Morris
    Citation: Journal of Patient-Reported Outcomes 2023 7:29
    Content type: Research Published on:

  39. The Venous Clinical Severity Score (VCSS) and the Venous Disability Score (VDS) represent assessment tools for chronic venous disease (CVD) combining physician and patient reported outcomes. To date, German ve...

    Authors: Amun Hofmann, Julia Deinsberger, Philip Kienzl, Eva Rigler, Florian Anzengruber and Benedikt Weber
    Citation: Journal of Patient-Reported Outcomes 2023 7:28
    Content type: Research Published on:

  40. A faecal or urinary ostomy may be lifesaving. However, it involves significant bodily change, and the adjustment process to life with an ostomy includes a broad spectre of physical and psychosocial challenges....

    Authors: Kirsten Lerum Indrebø, Anny Aasprang, Torill Elin Olsen and John Roger Andersen
    Citation: Journal of Patient-Reported Outcomes 2023 7:27
    Content type: Research Published on:

  41. In the transition towards value-based healthcare, patient-reported outcome and experience measures (PROM and PREM) are recommended by international collaborations and government programs to guide clinical prac...

    Authors: Anne L. Depla, Bettine Pluut, Marije Lamain-de Ruiter, Anna W. Kersten, Inge M. Evers, Arie Franx and Mireille N. Bekker
    Citation: Journal of Patient-Reported Outcomes 2023 7:26
    Content type: Research Published on:

  42. Discrepancies in symptom assessment between providers and patients are reported in cancer care, and the use of patient-reported outcome measures (PROMs) has been recommended for patients receiving palliative c...

    Authors: Nao Ito, Yoko Ishii, Maho Aoyama, Hirofumi Abo, Akihiro Sakashita, Yuko Matsumura and Mitsunori Miyashita
    Citation: Journal of Patient-Reported Outcomes 2023 7:25
    Content type: Research Published on:

  43. The use of patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) in pediatric clinical practice can enhance clinical care and bring children and families’ perspectives into...

    Authors: Erin McCabe, Sarah Rabi, Sumedh Bele, Jennifer D. Zwicker and Maria J. Santana
    Citation: Journal of Patient-Reported Outcomes 2023 7:24
    Content type: Research Published on:

  44. The EuroQol Group has developed an extended version of the EQ-5D-Y-3L with five response levels for each of its five dimensions (EQ-5D-Y-5L). The psychometric performance has been reported in several studies f...

    Authors: Lucky G. Ngwira, Hendramoorthy Maheswaran, Janine Verstraete, Stavros Petrou, Louis Niessen and Sarah C. Smith
    Citation: Journal of Patient-Reported Outcomes 2023 7:22
    Content type: Research Published on:

  45. Tardive dyskinesia (TD) is a persistent and potentially disabling movement disorder associated with antipsychotic use. Data from RE-KINECT, a real-world study of antipsychotic-treated outpatients, were analyze...

    Authors: Caroline M. Tanner, Stanley N. Caroff, Andrew J. Cutler, William R. Lenderking, Huda Shalhoub, Véronique Pagé, Ericha G. Franey, Michael Serbin and Chuck Yonan
    Citation: Journal of Patient-Reported Outcomes 2023 7:21
    Content type: Research Published on:

  46. Within pediatric health care services, Patient-reported Outcomes (PROs) regarding the patient’s health status are mainly used for research purposes in a chronic care setting. However, PROs are also applied in ...

    Authors: Rikke Bjerre Lassen, Caroline Bruun Abild, Kurt Kristensen, Lene Juel Kristensen, Jens Thusgård Hørlück and Annesofie Lunde Jensen
    Citation: Journal of Patient-Reported Outcomes 2023 7:20
    Content type: Research Published on:

  47. Internationally, patient-reported outcome measures are increasingly applied in clinical settings to patients undergoing total knee arthroplasty (TKA) and total hip arthroplasty (THA). Current literature does n...

    Authors: Laura Bjerg Mikkelsen, Niels Wedderkopp and Louise Schlosser Mose
    Citation: Journal of Patient-Reported Outcomes 2023 7:19
    Content type: Research Published on:

  48. While there are a few studies on measurement properties of PROMIS short forms for pain and function in patients with knee osteoarthritis, nothing is known about the measurement properties in patients with knee...

    Authors: Anika Stephan, Vincent A. Stadelmann, Stefan Preiss and Franco M. Impellizzeri
    Citation: Journal of Patient-Reported Outcomes 2023 7:18
    Content type: Research Published on:

    The Correction to this article has been published in Journal of Patient-Reported Outcomes 2023 7:47

  49. To capture the broad range of treatment burden issues experienced by adolescent and adult people with hemophilia (PWH), the Hemophilia Treatment Experience Measure (Hemo-TEM) was developed. We describe the dev...

    Authors: Meryl Brod, Donald M. Bushnell, Jesper Skov Neergaard, Laura Tesler Waldman and Anne Kirstine Busk
    Citation: Journal of Patient-Reported Outcomes 2023 7:17
    Content type: Research Published on:

  50. The present study aimed at the translation and cross-cultural adaptation of six PROMIS® pediatric self- and proxy- item banks and short forms to universal German: anxiety (ANX), anger (ANG), depressive symptoms (...

    Authors: J. Devine, A. Kaman, T. L. Seum, F. Zoellner, M. Dabs, V. Ottova-Jordan, L. K. Schlepper, A.-C. Haller, S. Topf, M. Boecker, J. Schuchard, C. B. Forrest and Ulrike Ravens-Sieberer
    Citation: Journal of Patient-Reported Outcomes 2023 7:16
    Content type: Research Published on:
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  • Citation Impact 2023
    Journal Impact Factor: 2.4
    5-year Journal Impact Factor: 3.1
    Source Normalized Impact per Paper (SNIP): 1.019
    SCImago Journal Rank (SJR): 0.872

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    Submission to first editorial decision (median days): 10
    Submission to acceptance (median days): 173

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