Speed
81 days to first decision for reviewed manuscripts only
69 days to first decision for all manuscripts
194 days from submission to acceptance
23 days from acceptance to publication
Usage
143,615 downloads
611 Altmetric mentions
Page 4 of 6
Ulcerative colitis (UC) often first presents during adolescence and early adulthood. Primary symptoms of UC are well known, yet similarities and differences of disease experience in adults and adolescents are ...
Citation: Journal of Patient-Reported Outcomes 2019 3:66
Chronic obstructive pulmonary disease (COPD) is a progressive chronic disease characterized by airflow obstruction that leads to shortness of breath and substantial negative impacts on health-related quality o...
Citation: Journal of Patient-Reported Outcomes 2019 3:65
Carcinoid syndrome is associated with a reduced quality of life that can be attributed to symptoms such as diarrhea and fatigue as well as social and financial issues. This study was conducted to psychometrica...
Citation: Journal of Patient-Reported Outcomes 2019 3:64
To examine the acceptability of a Patient Reported Outcome Measure (PROM) that assesses perceptions and experiences of implants for breast reconstruction or augmentation, and the feasibility of implementing it...
Citation: Journal of Patient-Reported Outcomes 2019 3:63
The Bladder Cancer Index (BCI) and Functional Assessment of Cancer Therapy-Bladder-Cystectomy (FACT-Bl-Cys) were developed to measure disease-specific health-related quality of life (HRQOL) in bladder cancer p...
Citation: Journal of Patient-Reported Outcomes 2019 3:62
The use of patient-reported outcome (PRO) could potentially contribute to the reorganization of the health care system. AmbuFlex is a PRO system used in remote patient monitoring, in which questionnaires are s...
Citation: Journal of Patient-Reported Outcomes 2019 3:61
The Memorial Anxiety Scale for Prostate Cancer (MAX-PC, 18 items) was developed to assess anxiety in prostate cancer patients. In the absence of a French version of this scale, we adapted the original English ...
Citation: Journal of Patient-Reported Outcomes 2019 3:60
Hyperhidrosis is estimated to affect ~ 4.8% of the US population, and most patients experience a negative psychological impact. Here, we describe development and psychometric evaluation of a patient-reported o...
Citation: Journal of Patient-Reported Outcomes 2019 3:59
Identifying symptoms experienced throughout the disease trajectory is pivotal to understanding management of patient symptoms. Patient interviews to solicit input from those who have experienced these symptoms...
Citation: Journal of Patient-Reported Outcomes 2019 3:58
To evaluate the psychometric characteristics of the 1-month recall Uterine Fibroid Symptom and Health-Related Quality of Life questionnaire (UFS-QOL), including the Revised Activities subscale.
Citation: Journal of Patient-Reported Outcomes 2019 3:57
Selection of specific patient-reported outcomes (PROs) for cancer patients requires careful consideration to the purpose and population at aim. Here we report the process of choosing which items to include in ...
Citation: Journal of Patient-Reported Outcomes 2019 3:56
To explore the relationship between illness perceptions and self-reported general health of patients with chronic heart disease, using some core elements from the Common Sense Model.
Citation: Journal of Patient-Reported Outcomes 2019 3:55
Group concept mapping (GCM) is a research method that engages stakeholders in generating, structuring and representing ideas around a specific topic or question. GCM has been used with patients to answer quest...
Citation: Journal of Patient-Reported Outcomes 2019 3:54
Management of cancer is often characterized by difficult decisions. The National Coalition for Cancer Survivorship (NCCS) has developed the “Know Yourself” tool, a question prompt list (QPL) to enable patients...
Citation: Journal of Patient-Reported Outcomes 2019 3:53
Translation and cross cultural adaptation of patient reported outcome measures (PROMs) involves a step referred to as harmonisation, following forward and backward translation of the measure. This article prop...
Citation: Journal of Patient-Reported Outcomes 2019 3:52
This paper is part of a series comparing different psychometric approaches to evaluate patient-reported outcome (PRO) measures using the same items and dataset. We provide an overview and example application t...
Citation: Journal of Patient-Reported Outcomes 2019 3:50
Psychometric analyses of patient reported outcomes typically use either classical test theory (CTT), item response theory (IRT), or Rasch measurement theory (RTM). The three papers from the ISOQOL Psychometric...
Citation: Journal of Patient-Reported Outcomes 2019 3:49
The three articles in this issue from members of the Psychometric Special Interest Group (SIG) of the International Society for Quality of Life Research (ISOQOL) examine three different psychometric techniques...
Citation: Journal of Patient-Reported Outcomes 2019 3:48
The aim of this study is to illustrate an example application of Rach Measurement Theory (RMT) in the evaluation of patient-reported outcome (PRO) measures. RMT diagnostic methods were applied to evaluate the ...
Citation: Journal of Patient-Reported Outcomes 2019 3:47
Psychometric theory offers a range of tests that can be used as supportive evidence of both validity and reliability of instruments aimed at measuring patient-reported outcomes (PRO). The aim of this paper is ...
Citation: Journal of Patient-Reported Outcomes 2019 3:46
Adult and adolescent vaccination rates are far below coverage targets in the United States. Our objective was to identify the most influential factors related to vaccine uptake among adults, adolescents, and p...
Citation: Journal of Patient-Reported Outcomes 2019 3:51
Physical activity is a modifiable healthy behavior that has been shown to positively influence health-related quality of life. However, research examining the link between physical activity and health-related ...
Citation: Journal of Patient-Reported Outcomes 2019 3:45
Capturing the impact of caring for patients with debilitating rare disease is important for understanding disease burden. We aimed to develop and validate an instrument to measure the impact on caregivers of c...
Citation: Journal of Patient-Reported Outcomes 2019 3:44
Mild Cognitive Impairment (MCI) is a transitional state between normal cognition and dementia during ageing process. Early screening of elderly for MCI can help for early prevention and treatment of dementia. ...
Citation: Journal of Patient-Reported Outcomes 2019 3:38
To ensure that patients continue treatment, it is essential that the patient is satisfied with the decision-making process of the treatment. One way to address this is to assess the healthcare quality using th...
Citation: Journal of Patient-Reported Outcomes 2019 3:43
Atopic dermatitis (AD) is a common skin disorder characterized by chronic inflammation, altered skin barrier function, and inflammatory cell skin infiltration that decreases health-related quality of life (HRQ...
Citation: Journal of Patient-Reported Outcomes 2019 3:42
Patient performance status is routinely used in oncology to estimate physical functioning, an important factor in clinical treatment decisions and eligibility for clinical trials. However, validity and reliabi...
Citation: Journal of Patient-Reported Outcomes 2019 3:41
Community reintegration is one of the most important elements of disability rehabilitation globally. Hence, there is need for availability of psychometrically-sound and culturally-specific instruments for its ...
Citation: Journal of Patient-Reported Outcomes 2019 3:40
A concept elicitation, cognitive debriefing, and usability study was undertaken to: 1) ascertain the migraine experience with a particular focus on the impact on roles and daily functioning; 2) determine the c...
Citation: Journal of Patient-Reported Outcomes 2019 3:39
Citation: Journal of Patient-Reported Outcomes 2019 3:37
Citation: Journal of Patient-Reported Outcomes 2019 3:36
Novel, pragmatic, patient-centered strategies are needed to ensure fit-for-purpose patient-reported outcomes (PRO) instruments in clinical trial research for rare diseases such as myelodysplastic syndromes (MD...
Citation: Journal of Patient-Reported Outcomes 2019 3:35
Symptom assessment requires psychometrically validated questionnaires that are easy to use, relevant to the disease, and quick to administer. The MD Anderson Symptom Inventory for malignant pleural mesotheliom...
Citation: Journal of Patient-Reported Outcomes 2019 3:34
Parenting confidence is a key factor in predicting a range of outcomes for both parents and children, such as parental depression, parental stress, and child health development. This study examines maternal co...
Citation: Journal of Patient-Reported Outcomes 2019 3:33
The response rate on patient-reported outcome measurements (PROMs) necessary to adequately evaluate a treatment and improve patient care is unknown. Hospitals generally aim for the highest possible response ra...
Citation: Journal of Patient-Reported Outcomes 2019 3:31
The publisher has retracted this article [1] because the incorrect version of the article was published in error.
Citation: Journal of Patient-Reported Outcomes 2019 3:32
To evaluate the measurement properties (e.g., content validity, reliability, and ability to detect change) of the Functional Assessment of Chronic Illness Therapy (FACIT)-Fatigue scale in patients with active ...
Citation: Journal of Patient-Reported Outcomes 2019 3:30
To evaluate the psychometric properties of three new condition-specific questionnaires designed to assess outcomes amongst patients under pre-operative surveillance for a small abdominal aortic aneurysm (AAA) ...
Citation: Journal of Patient-Reported Outcomes 2019 3:29
The lack of formal instruments to measure Burden in primary caregivers of Children in a hospital context is limited because mostly of published instruments are related to cancer survivors, ambulatory environme...
Citation: Journal of Patient-Reported Outcomes 2019 3:28
With the increased use of targeted therapies in oncology, dermatological adverse events (dAEs) have drawn attention. Because the face is crucial for human identity and social interactions, facial dAEs have sig...
Citation: Journal of Patient-Reported Outcomes 2019 3:27
This study aimed to develop and provide a psychometric and feasibility pilot evaluation of the Heart Failure (HF) Symptom Tracker (HFaST), a new patient-reported tool designed to facilitate communication betwe...
Citation: Journal of Patient-Reported Outcomes 2019 3:26
Patient-reports of cancer treatments are sometimes used in oncology research and clinically when medical records are unavailable. We aimed to evaluate the accuracy of patient recall in this setting.
Citation: Journal of Patient-Reported Outcomes 2019 3:24
Finding the optimal treatment for a chronic condition can be a complex and lengthy endeavor for both the patient and the clinician. To address this challenge, we developed an “N-of-1” quality improvement infra...
Citation: Journal of Patient-Reported Outcomes 2019 3:25
Incidentally discovered silent brain infarcts (id-SBIs) are an understudied condition with probable clinical significance, but it is not known how patients respond to or prioritize this condition. We sought to...
Citation: Journal of Patient-Reported Outcomes 2019 3:23
The Asthma Symptom Diary was developed to assess severity of symptoms in patients with moderate to severe asthma, and has evidence supporting reliability and validity. Only limited information is available on ...
Citation: Journal of Patient-Reported Outcomes 2019 3:22
Guidelines for the use of goal attainment scaling (GAS) recommend that the patient specify at least three goals. Even so, this may not always be feasible or align with patient preferences. Investigations into ...
Citation: Journal of Patient-Reported Outcomes 2019 3:20
Patient-reported outcomes are central for the assessment and treatment of people with chronic disease. The primary aim of this study was to determine if people with arthritis differed from healthy individuals ...
Citation: Journal of Patient-Reported Outcomes 2019 3:21
Toxicity-monitoring plays an important role in all cancer treatment, however, early recognition is vital for detecting and treating immune-related symptoms. Preparing a Patient Reported Outcomes tool and inclu...
Citation: Journal of Patient-Reported Outcomes 2019 3:19
There are divergent findings on the impact of functional independence on psychosocial quality of life (QoL) of stroke survivors.
Citation: Journal of Patient-Reported Outcomes 2019 3:18
The achievement of age-specific developmental milestones in youth is of great importance to the adjustment in adult life. Young adults who were born preterm, might go through a different developmental trajecto...
Citation: Journal of Patient-Reported Outcomes 2019 3:17
Speed
81 days to first decision for reviewed manuscripts only
69 days to first decision for all manuscripts
194 days from submission to acceptance
23 days from acceptance to publication
Usage
143,615 downloads
611 Altmetric mentions