Speed
79 days to first decision for reviewed manuscripts only
65 days to first decision for all manuscripts
190 days from submission to acceptance
25 days from acceptance to publication
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79,235 downloads
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Retinoblastoma is a childhood retinal cancer with lifelong consequences such as vision loss and increased risk of second cancer. Patient-reported outcome measures (PROMs) are instruments that measure outcomes ...
Citation: Journal of Patient-Reported Outcomes 2020 4:66
Approximately 7–10% of Parkinson’s disease (PD) patients carry a GBA (Glucocerebrosidase) mutation (GBA-PD patients), which may influence the disease’s clinical course.
Citation: Journal of Patient-Reported Outcomes 2020 4:65
Anemia is a frequent complication of chronic kidney disease (CKD) that negatively affects patients’ health-related quality of life.
Citation: Journal of Patient-Reported Outcomes 2020 4:64
An intensive care unit (ICU) diary is a relatively new concept in low middle-income countries (LMICs). Illiteracy and socio-cultural inhibitions may affect the use and utility of this intervention, which has p...
Citation: Journal of Patient-Reported Outcomes 2020 4:63
To assess participation of children with visual impairment, the Participation and Activity Inventory for Children and Youth (PAI-CY) was recently developed. This study assessed some initial psychometric proper...
Citation: Journal of Patient-Reported Outcomes 2020 4:62
The purpose of this study was to evaluate the psychometric properties of the PROMIS-Physical Function (PF) and Worst Stiffness Numeric Rating Scale (NRS) among patients with tenosynovial giant cell tumors (TGCT).
Citation: Journal of Patient-Reported Outcomes 2020 4:61
To assess the relationship between patient-reported quality-of-life (QOL) outcomes and provider-assessed adverse events (AEs) during head-and-neck (H&N) radiotherapy (RT).
Citation: Journal of Patient-Reported Outcomes 2020 4:60
The symptoms of post-polio syndrome (PPS) and its resulting disabilities can affect quality of life and the ability to perform daily activities. No study has comprehensively analysed how various patient-report...
Citation: Journal of Patient-Reported Outcomes 2020 4:59
Immune-checkpoint inhibitors (ICI) have shown significant benefits for overall survival across various cancer types. Patient-reported outcomes (PROs) are assessed in clinical trials as a measure of efficacy. H...
Citation: Journal of Patient-Reported Outcomes 2020 4:58
Patients’ behaviors play a key role in chronic disease management, but how effective they are may depend on how engaged they feel. The objective was to develop a short measure of how much patients felt engaged...
Citation: Journal of Patient-Reported Outcomes 2020 4:57
To give an overview of the multicenter Prostate Cancer Outcomes (PCO) study, involving paper-based and web-based collection of patient-reported outcome measures (PROM) in patients undergoing local treatment fo...
Citation: Journal of Patient-Reported Outcomes 2020 4:56
Effective management of patients with chronic kidney disease (CKD) relies on timely detection of clinical deterioration towards end stage kidney failure. We aimed to design an electronic Patient-Reported Outco...
Citation: Journal of Patient-Reported Outcomes 2020 4:55
Papulopustular rash is a common class effect of epidermal growth factor receptor inhibitors (EGFRI) that can affect patients’ health-related quality of life and cause disruptions to treatment. SWOG S1013 (NCT0...
Citation: Journal of Patient-Reported Outcomes 2020 4:54
Migraine has a severe impact on health-related quality of life (HRQoL) affecting physical, emotional, and social aspects of daily living of an individual. Preventive treatment has been demonstrated to improve ...
Citation: Journal of Patient-Reported Outcomes 2020 4:53
Between 1987 and 1990, the EuroQol Group developed a 5-dimension health-related quality of life instrument, originally known as ‘the EuroQol instrument’, which since 1995 has been called the ‘EQ-5D’. For sever...
Citation: Journal of Patient-Reported Outcomes 2020 4:52
Patient-reported outcomes (PROs) are increasingly collected in clinical trials as they provide unique information on the physical, functional and psychological impact of a treatment from the patient’s perspect...
Citation: Journal of Patient-Reported Outcomes 2020 4:51
The aim of this study was to evaluate the usefulness of EQ-5D as a patient-reported outcome measure using different analytical methods. Especially we used the Paretian Classification of Health Change, to see i...
Citation: Journal of Patient-Reported Outcomes 2020 4:50
Patient-reported outcomes (PROs) refer to any report of the status of a patient’s health condition, health behavior, or experience with healthcare directly from the patient, without interpretation of the patie...
Citation: Journal of Patient-Reported Outcomes 2020 4:49
Reducing non-completion of quality-of-life assessment in clinical trials is an important challenge in obtaining accurate data and unbiased interpretation of patients’ quality-of-life for each regimen. We evalu...
Citation: Journal of Patient-Reported Outcomes 2020 4:48
Little research has focused on implementation of electronic Patient Reported Outcomes (e-PROs) for meaningful use in patient management in ‘real-world’ oncology practices. Our quality improvement collaborative...
Citation: Journal of Patient-Reported Outcomes 2020 4:47
The quality of life (QoL) of patients with lung cancer (LC) may be affected by disease-related limitations such as patients’ functioning, the severity of symptoms, financial problems resulting along with the s...
Citation: Journal of Patient-Reported Outcomes 2020 4:46
Individuals with Down syndrome exhibit particular oro-facial characteristics that may increase their risk of oral health problems. However, there is little research on the oral health of children and adults wi...
Citation: Journal of Patient-Reported Outcomes 2020 4:45
Citation: Journal of Patient-Reported Outcomes 2020 4:44
Pulmonary Hypertension (PH) impacts negatively on patients’ health-related quality of life (HRQoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) was the first PH-specific and validated instrum...
Citation: Journal of Patient-Reported Outcomes 2020 4:43
Current US health policy discussions regarding physician burnout have largely been informed by studies employing the Maslach Burnout Inventory (MBI); yet, there is little in the literature focused on interpret...
Citation: Journal of Patient-Reported Outcomes 2020 4:42
The 12-item International Hip Outcome Tool (iHOT12) is a patient-reported outcome (PRO) designed to evaluate quality of life. We assessed the psychometric properties of the Greek version (iHOT12-Gr) in hip ost...
Citation: Journal of Patient-Reported Outcomes 2020 4:41
Research on outcomes after ankle fusion focuses on basic activities of daily living, fusion rates, and gait parameters. Little has been reported on the patient’s perspective after surgery. The purpose of this ...
Citation: Journal of Patient-Reported Outcomes 2020 4:40
Value-based healthcare models will require prioritization of the patient’s voice in their own care toward better outcomes. The Patient-Reported Outcomes Measurement Information System® (PROMIS) gives patients ...
Citation: Journal of Patient-Reported Outcomes 2020 4:39
Citation: Journal of Patient-Reported Outcomes 2020 4:38
Fatigue following breast cancer is a well-known problem, with both high and persistent prevalence. Previous studies suffer from lack of repeated measurements, late recruitment and short periods of follow-up. T...
Citation: Journal of Patient-Reported Outcomes 2020 4:37
Patients with cystic fibrosis (CF) experience significant disease burden, including progressive pulmonary decline and reduced survival. This multicenter qualitative study was conducted to develop a new patient...
Citation: Journal of Patient-Reported Outcomes 2020 4:36
Goal Attainment Scaling (GAS) is an individualized outcome measure that allows the setting of personalized treatment goals. We compared the responsiveness of GAS when individuals set only one goal instead of t...
Citation: Journal of Patient-Reported Outcomes 2020 4:35
Citation: Journal of Patient-Reported Outcomes 2020 4(Suppl 1):28
The Singapore Caregiver Quality of Life Scale (SCQOLS) was recently developed and validated in two languages - English and Chinese. The total and domain scores are scaled to range from 0 to 100. However, the s...
Citation: Journal of Patient-Reported Outcomes 2020 4:34
Endometriosis-related fatigue is common and negatively impacts multiple areas of many women’s lives, particularly in day-to-day activities, social activities, physical activities, mood and emotions, relationsh...
Citation: Journal of Patient-Reported Outcomes 2020 4:33
Alertness is an important part of attention which is different from the opposite of sleepiness. This study aimed to translate and assess the measurement properties of the Toronto Hospital Alertness Test (THAT)...
Citation: Journal of Patient-Reported Outcomes 2020 4:32
Human T-cell lymphotropic virus type 1 (HTLV-1) spreads silently in the world’s population and causes several syndromes. Among these, HTLV-1 associated myelopathy, also called tropical spastic paraparesis (HAM...
Citation: Journal of Patient-Reported Outcomes 2020 4:31
Neurotrophic keratopathy/keratitis (NK) is a rare disease of the cornea that can lead to anatomical loss of the eye. Little is known about the NK experience from the patients’ perspective. The objectives of th...
Citation: Journal of Patient-Reported Outcomes 2020 4:30
According to studies of phenylketonuria (PKU), the Brazilian population’s metabolic control shows unsatisfactory indexes from childhood. Research on patients’ perceived difficulties or barriers to adherence to...
Citation: Journal of Patient-Reported Outcomes 2020 4:29
Colorectal cancer (CRC) is prevalent in the developed world. Favourable survival rates highlight the need to better understand CRC survivors’ experiences of long-term impacts of treatment, which can in turn in...
Citation: Journal of Patient-Reported Outcomes 2020 4:27
A cancer diagnosis is potentially life-threatening, likely causing distress and uncertainty, which may be psychologically debilitating. Depression and anxiety are commonly underdiagnosed and undertreated in ca...
Citation: Journal of Patient-Reported Outcomes 2020 4:26
Burns are a global health problem affecting the survivors and disrupting many aspects of their lives. It is the second most common injury in rural Nepal accounting 5% of disabilities. Burn Specific Health Scal...
Citation: Journal of Patient-Reported Outcomes 2020 4:25
Successful community-engaged research depends on the quality of the collaborative partnerships between community -members and academic researchers and may take several forms depending on the purpose which dict...
Citation: Journal of Patient-Reported Outcomes 2020 4:24
The Health Utilities Index Mark 3 (HUI3) is a generic multi-attribute, preference-based system for assessing health-related quality of life. It is widely used overseas as an outcome measure and for estimating ...
Citation: Journal of Patient-Reported Outcomes 2020 4:23
The FACT-8D is a new cancer-specific, preference-based measure (PBM) of health, derived from the Functional Assessment of Cancer Therapy – General (FACT-G) questionnaire. The FACT-8D’s measurement properties h...
Citation: Journal of Patient-Reported Outcomes 2020 4:22
ASCQ-Me®, Neuro-QoL™, NIH Toolbox®, and PROMIS®, which are health-related quality of life measures collectively known as HealthMeasures, have experienced rapid uptake in the scientific community with over 1700...
Citation: Journal of Patient-Reported Outcomes 2020 4:21
Individuals with vitiligo have an increased risk of depression, anxiety, social isolation and detrimental effects on body image/self-esteem. However, assessments of quality of life (QoL) impact have not focuse...
Citation: Journal of Patient-Reported Outcomes 2020 4:20
Partners of young breast cancer survivors (BCS) are at increased risk for deficits in quality of life (QoL). To intervene effectively, it is important to understand how the breast cancer experience impacts par...
Citation: Journal of Patient-Reported Outcomes 2020 4:19
Insomnia is a frequent sleeping disorder in the general and clinical population. With an increasing proportion of health care services being provided as outpatient care, a short, valid and reliable tool is nee...
Citation: Journal of Patient-Reported Outcomes 2020 4:18
It is unclear whether data from patient-reported outcome measures (PROMs) are captured and used by clinicians despite policy initiatives. We examined the extent to which fall risk and urinary incontinence (UI)...
Citation: Journal of Patient-Reported Outcomes 2020 4:17
Speed
79 days to first decision for reviewed manuscripts only
65 days to first decision for all manuscripts
190 days from submission to acceptance
25 days from acceptance to publication
Usage
79,235 downloads
387 Altmetric mentions