Speed
81 days to first decision for reviewed manuscripts only
69 days to first decision for all manuscripts
194 days from submission to acceptance
23 days from acceptance to publication
Usage
143,615 downloads
611 Altmetric mentions
Page 2 of 6
Hip and knee replacement are effective procedures for end-stage arthritis that has not responded to medical management. However, until now, there have been no validated, patient-reported tools to measure early...
Citation: Journal of Patient-Reported Outcomes 2020 4:91
Personal budgets for social and health care have been introduced in many European countries over recent decades. The assumption is that people with a personal budget are able to purchase care that matches thei...
Citation: Journal of Patient-Reported Outcomes 2020 4:90
Within current literature and practice, the category of patient-reported outcome (PRO) measures has been expanded into the broader category of clinical outcome assessments (COAs), which includes the subcategor...
Citation: Journal of Patient-Reported Outcomes 2020 4:89
A randomized controlled pilot trial was conducted to assess if melanoma patients treated with immunotherapy had the number of grade 3 or 4 adverse events during treatment reduced by 50% using a tailored electr...
Citation: Journal of Patient-Reported Outcomes 2020 4:88
PROMs can help healthcare professionals gain an improved understanding of patients’ physical burdens, functional levels, and (health-related) quality of life throughout disease and medical treatment. The aim o...
Citation: Journal of Patient-Reported Outcomes 2020 4:87
Endometriosis is a common problem in women of reproductive age and has impacts on health-related quality of life and productivity. Fatigue is an important part of the burden of endometriosis, it is not often i...
Citation: Journal of Patient-Reported Outcomes 2020 4:86
Two decades of research on quality-of-life (QOL) appraisal have demonstrated links between patient experience and health outcomes and have accounted for both intra-individual change and inter-individual differ...
Citation: Journal of Patient-Reported Outcomes 2020 4:85
To develop and evaluate a measurement scale for multi-domain assessment of the quality of life of family caregivers of persons with dementia (PWD) in Singapore, a multi-ethic society in South-East Asia where E...
Citation: Journal of Patient-Reported Outcomes 2020 4:84
Patient-Reported Outcomes provide an opportunity for patients to establish dialogue with pharmaceutical or biotechnology companies about their health conditions without interpretation by a clinician or anyone ...
Citation: Journal of Patient-Reported Outcomes 2020 4:83
The Elements of Desire Questionnaire (EDQ) is a patient-reported outcome (PRO) measure developed to evaluate sexual desire and was included in two identically designed phase 3 clinical trials (RECONNECT) as an...
Citation: Journal of Patient-Reported Outcomes 2020 4:82
The U.S. National Cancer Institute’s Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE™) is a library of items for assessing symptomatic adverse events by patie...
Citation: Journal of Patient-Reported Outcomes 2020 4:81
Evolving regulatory guidelines recommend routine assessment of the acceptability of pediatric oral medicines throughout clinical development processes. However, such assessment is problematic owing to a lack o...
Citation: Journal of Patient-Reported Outcomes 2020 4:80
The aim of this study was to assess the validity and reliability of the Patient Enablement Instrument (PEI) in Finnish health care centre patients. A pilot study was conducted to assess the content validity of...
Citation: Journal of Patient-Reported Outcomes 2020 4:79
The Swedish National Quality Registries (NQRs) contain individual-level health care data for specific patient populations, or patients receiving specific interventions. Approximately 90% of the 105 Swedish NQR...
Citation: Journal of Patient-Reported Outcomes 2020 4:78
Issues arising from a lack of outcome standardisation in health research may be addressed by the use of core outcome sets (COS), which represent agreed-upon recommendations regarding what outcomes should be me...
Citation: Journal of Patient-Reported Outcomes 2020 4:77
Alopecia areata (AA) is characterized by hair loss that can affect the scalp and body. This study describes the psychosocial burden of AA.
Citation: Journal of Patient-Reported Outcomes 2020 4:76
Ulcerative Colitis (UC) is a chronic gastrointestinal disease that often presents during one’s most productive years and is characterized by colon inflammation. Key symptoms and impacts in adults are well-know...
Citation: Journal of Patient-Reported Outcomes 2020 4:75
Social media platforms give patients a voice by allowing them to discuss their health and connect with others. These unfiltered and genuine reports offer direct access to what matters most to patients. Explori...
Citation: Journal of Patient-Reported Outcomes 2020 4:74
One of the main aims of rehabilitation is to improve participation. Patient-Reported Outcomes Measurement Information System (PROMIS®) item banks ‘Ability to Participate in Social roles and Activities, (PROMIS...
Citation: Journal of Patient-Reported Outcomes 2020 4:73
Health related quality of life (HRQOL) is an important indicator of long-term well-being, influenced by environmental factors such as family, culture, societal norms and available resources. This study aimed t...
Citation: Journal of Patient-Reported Outcomes 2020 4:72
Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of thi...
Citation: Journal of Patient-Reported Outcomes 2020 4:71
Robust outcome measures are needed to assess and monitor the impact of chronic low back pain (CLBP) on physical functioning. The Roland Morris Disability Questionnaire (RMDQ) is a well-established measure desi...
Citation: Journal of Patient-Reported Outcomes 2020 4:70
The lower-risk (low and intermediate-1 risk based on IPSS) myelodysplastic syndrome (MDS) has a negative impact on patients’ health-related quality of life (HRQoL). Patient Reported Outcomes (PROs) instruments...
Citation: Journal of Patient-Reported Outcomes 2020 4:69
Published in 2019, a new addendum to the ICH E9 guideline presents the estimand framework as a systematic approach to ensure alignment among clinical trial objectives, trial execution/conduct, statistical anal...
Citation: Journal of Patient-Reported Outcomes 2020 4:68
Adaptation of a patient-reported outcomes survey into a new language requires careful translation procedures as well as qualitative and quantitative psychometric testing. This study aimed to evaluate the basic...
Citation: Journal of Patient-Reported Outcomes 2020 4:67
Retinoblastoma is a childhood retinal cancer with lifelong consequences such as vision loss and increased risk of second cancer. Patient-reported outcome measures (PROMs) are instruments that measure outcomes ...
Citation: Journal of Patient-Reported Outcomes 2020 4:66
Approximately 7–10% of Parkinson’s disease (PD) patients carry a GBA (Glucocerebrosidase) mutation (GBA-PD patients), which may influence the disease’s clinical course.
Citation: Journal of Patient-Reported Outcomes 2020 4:65
Anemia is a frequent complication of chronic kidney disease (CKD) that negatively affects patients’ health-related quality of life.
Citation: Journal of Patient-Reported Outcomes 2020 4:64
An intensive care unit (ICU) diary is a relatively new concept in low middle-income countries (LMICs). Illiteracy and socio-cultural inhibitions may affect the use and utility of this intervention, which has p...
Citation: Journal of Patient-Reported Outcomes 2020 4:63
To assess participation of children with visual impairment, the Participation and Activity Inventory for Children and Youth (PAI-CY) was recently developed. This study assessed some initial psychometric proper...
Citation: Journal of Patient-Reported Outcomes 2020 4:62
The purpose of this study was to evaluate the psychometric properties of the PROMIS-Physical Function (PF) and Worst Stiffness Numeric Rating Scale (NRS) among patients with tenosynovial giant cell tumors (TGCT).
Citation: Journal of Patient-Reported Outcomes 2020 4:61
To assess the relationship between patient-reported quality-of-life (QOL) outcomes and provider-assessed adverse events (AEs) during head-and-neck (H&N) radiotherapy (RT).
Citation: Journal of Patient-Reported Outcomes 2020 4:60
The symptoms of post-polio syndrome (PPS) and its resulting disabilities can affect quality of life and the ability to perform daily activities. No study has comprehensively analysed how various patient-report...
Citation: Journal of Patient-Reported Outcomes 2020 4:59
Immune-checkpoint inhibitors (ICI) have shown significant benefits for overall survival across various cancer types. Patient-reported outcomes (PROs) are assessed in clinical trials as a measure of efficacy. H...
Citation: Journal of Patient-Reported Outcomes 2020 4:58
Patients’ behaviors play a key role in chronic disease management, but how effective they are may depend on how engaged they feel. The objective was to develop a short measure of how much patients felt engaged...
Citation: Journal of Patient-Reported Outcomes 2020 4:57
To give an overview of the multicenter Prostate Cancer Outcomes (PCO) study, involving paper-based and web-based collection of patient-reported outcome measures (PROM) in patients undergoing local treatment fo...
Citation: Journal of Patient-Reported Outcomes 2020 4:56
Effective management of patients with chronic kidney disease (CKD) relies on timely detection of clinical deterioration towards end stage kidney failure. We aimed to design an electronic Patient-Reported Outco...
Citation: Journal of Patient-Reported Outcomes 2020 4:55
Papulopustular rash is a common class effect of epidermal growth factor receptor inhibitors (EGFRI) that can affect patients’ health-related quality of life and cause disruptions to treatment. SWOG S1013 (NCT0...
Citation: Journal of Patient-Reported Outcomes 2020 4:54
Migraine has a severe impact on health-related quality of life (HRQoL) affecting physical, emotional, and social aspects of daily living of an individual. Preventive treatment has been demonstrated to improve ...
Citation: Journal of Patient-Reported Outcomes 2020 4:53
Between 1987 and 1990, the EuroQol Group developed a 5-dimension health-related quality of life instrument, originally known as ‘the EuroQol instrument’, which since 1995 has been called the ‘EQ-5D’. For sever...
Citation: Journal of Patient-Reported Outcomes 2020 4:52
Patient-reported outcomes (PROs) are increasingly collected in clinical trials as they provide unique information on the physical, functional and psychological impact of a treatment from the patient’s perspect...
Citation: Journal of Patient-Reported Outcomes 2020 4:51
The aim of this study was to evaluate the usefulness of EQ-5D as a patient-reported outcome measure using different analytical methods. Especially we used the Paretian Classification of Health Change, to see i...
Citation: Journal of Patient-Reported Outcomes 2020 4:50
Patient-reported outcomes (PROs) refer to any report of the status of a patient’s health condition, health behavior, or experience with healthcare directly from the patient, without interpretation of the patie...
Citation: Journal of Patient-Reported Outcomes 2020 4:49
Reducing non-completion of quality-of-life assessment in clinical trials is an important challenge in obtaining accurate data and unbiased interpretation of patients’ quality-of-life for each regimen. We evalu...
Citation: Journal of Patient-Reported Outcomes 2020 4:48
Little research has focused on implementation of electronic Patient Reported Outcomes (e-PROs) for meaningful use in patient management in ‘real-world’ oncology practices. Our quality improvement collaborative...
Citation: Journal of Patient-Reported Outcomes 2020 4:47
The quality of life (QoL) of patients with lung cancer (LC) may be affected by disease-related limitations such as patients’ functioning, the severity of symptoms, financial problems resulting along with the s...
Citation: Journal of Patient-Reported Outcomes 2020 4:46
Individuals with Down syndrome exhibit particular oro-facial characteristics that may increase their risk of oral health problems. However, there is little research on the oral health of children and adults wi...
Citation: Journal of Patient-Reported Outcomes 2020 4:45
Citation: Journal of Patient-Reported Outcomes 2020 4:44
Pulmonary Hypertension (PH) impacts negatively on patients’ health-related quality of life (HRQoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) was the first PH-specific and validated instrum...
Citation: Journal of Patient-Reported Outcomes 2020 4:43
Current US health policy discussions regarding physician burnout have largely been informed by studies employing the Maslach Burnout Inventory (MBI); yet, there is little in the literature focused on interpret...
Citation: Journal of Patient-Reported Outcomes 2020 4:42
Speed
81 days to first decision for reviewed manuscripts only
69 days to first decision for all manuscripts
194 days from submission to acceptance
23 days from acceptance to publication
Usage
143,615 downloads
611 Altmetric mentions