Speed
81 days to first decision for reviewed manuscripts only
69 days to first decision for all manuscripts
194 days from submission to acceptance
23 days from acceptance to publication
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143,615 downloads
611 Altmetric mentions
Page 1 of 6
The International FD/MAS Consortium recently encouraged using the Pediatric Quality of Life Inventory (PEDS-QL) and the Hospital Anxiety and Depression scales (HADS) in clinical care. This study examines score...
Citation: Journal of Patient-Reported Outcomes 2021 5:34
Fatigue is a key symptom in patients with systemic lupus erythematosus (SLE), and regulatory bodies recommend its assessment in clinical trials of SLE therapies.
Citation: Journal of Patient-Reported Outcomes 2021 5:33
It is rare to find HIV/AIDS care providers in sub-Saharan Africa routinely providing mental health services, yet 8–30% of the people living with HIV have depression. In an ongoing trial to assess integration o...
Citation: Journal of Patient-Reported Outcomes 2021 5:32
Patient-reported outcome measurements (PROM) are instruments that seek a patient’s health or functional status. Inclusion of standardized PROMs in research studies and clinical practice provides a more compreh...
Citation: Journal of Patient-Reported Outcomes 2021 5:31
Lower limb deformities include conditions such as leg length discrepancy, lower limb deficiency and associated angular and rotational deformities of the hips, knees, ankles and feet. Children with lower limb d...
Citation: Journal of Patient-Reported Outcomes 2021 5:30
Differences in experiences of care reported by Asian Americans (Asians) compared to non-Hispanic Whites (Whites) may be due to lack of measurement invariance.
Citation: Journal of Patient-Reported Outcomes 2021 5:29
Transplantation of HIV-positive (HIV+) donor organs for HIV+ recipients (HIV D+/R+) is now being performed as research in the United States, but raises ethical concerns. While patient-reported outcome measures...
Citation: Journal of Patient-Reported Outcomes 2021 5:28
Fatigue is a prominent symptom in individuals with chronic lymphocytic leukemia (CLL). This work evaluates the content validity and psychometric properties of the Functional Assessment of Chronic Illness Thera...
Citation: Journal of Patient-Reported Outcomes 2021 5:27
Ordinal tasks are increasingly used to explore preferences for health states. This study aimed to determine the suitability of two ordinal preference elicitation tasks (discrete choice experiments (DCE) and be...
Citation: Journal of Patient-Reported Outcomes 2021 5:26
An amendment to this paper has been published and can be accessed via the original article.
Citation: Journal of Patient-Reported Outcomes 2021 5:25
Research on the management of complications of chemotherapy is important in facilitating the growing approaches to individualized patient management. Hence the need to document patient’s perspectives about che...
Citation: Journal of Patient-Reported Outcomes 2021 5:24
Scrolling is a perceived barrier in the use of bring your own device (BYOD) to capture electronic patient reported outcomes (ePROs). This study explored the impact of scrolling on the measurement equivalence o...
Citation: Journal of Patient-Reported Outcomes 2021 5:23
Even though traumatization is linked to substantially reduced health-related quality of life, help-seeking and service utilization among trauma survivors are very low. To date, there has not been available in ...
Citation: Journal of Patient-Reported Outcomes 2021 5:22
Pectus excavatum (PE) is the most common congenital chest wall deformity. Most individuals with PE suffer from psychosocial problems, with low self-esteem and poor body image. Correctional surgery for PE is av...
Citation: Journal of Patient-Reported Outcomes 2021 5:21
An amendment to this paper has been published and can be accessed via the original article.
Citation: Journal of Patient-Reported Outcomes 2021 5:20
A previous qualitative assessment of the psychosocial consequences of labelling hypertension describes the diagnosis of hypertension as a labelling event with potential unintended negative long-term psychosoci...
Citation: Journal of Patient-Reported Outcomes 2021 5:19
Many patients with hand osteoarthritis (HOA) experience reduced health-related quality of life. This study sought to better understand the disease and treatment experience of individuals with HOA, explore any ...
Citation: Journal of Patient-Reported Outcomes 2021 5:18
The 15- and 10-item short forms of the Singapore Caregiver Quality of Life Scale (SCQOLS-15 and SCQOLS-10) were recently developed as a quick assessment of caregiver quality of life. Reference values describin...
Citation: Journal of Patient-Reported Outcomes 2021 5:17
Epilepsy is one of the most common neurological disorders with physical, emotional, and social consequences. Previous studies indicate that epilepsy symptoms can highly affect the epileptic patients’ satisfact...
Citation: Journal of Patient-Reported Outcomes 2021 5:16
Patient Reported Outcome Measures (PROMs) are questionnaires that could be used in palliative care (PC) to evaluate patient well-being and monitor their care. PROMs enable a focus on what is important to patie...
Citation: Journal of Patient-Reported Outcomes 2021 5:15
Development is rapid in the first years of life. Developmental delays appearing during this critical period have the potential to persist throughout the child’s life. Available standardized assessments for thi...
Citation: Journal of Patient-Reported Outcomes 2021 5:14
Recap of atopic eczema (RECAP) is a patient-reported outcome measure (PROM) assessing eczema control. Long-term control of eczema is one of the four core outcome domains for atopic eczema trials. This instrume...
Citation: Journal of Patient-Reported Outcomes 2021 5:13
Hemophagocyti.c lymphohistiocytosis (HLH) is a rare and severe disorder characterized by abnormal activation of the immune system. Primary HLH causes prolonged fever, spleen and liver enlargement, and organ dy...
Citation: Journal of Patient-Reported Outcomes 2021 5:12
Citation: Journal of Patient-Reported Outcomes 2021 5:11
Several options for granulocyte colony-stimulating factor (G-CSF) prophylaxis of chemotherapy-induced febrile neutropenia are available to patients worldwide. We have developed a novel patient-reported outcome...
Citation: Journal of Patient-Reported Outcomes 2021 5:10
Chronic Hypersensitivity Pneumonitis (CHP) is caused by an immune mediated response in the lung tissue after exposure to an inhaled environmental antigenic stimulant. We previously documented the ways in which...
Citation: Journal of Patient-Reported Outcomes 2021 5:9
The patient is the person who experiences both the processes and the outcomes of care. Information held by the patient is vital for clinical and self-management, improving health outcomes, delivery of care, or...
Citation: Journal of Patient-Reported Outcomes 2021 5:8
Existing patient-reported outcome (PRO) measures may not be relevant to the full range of functional and vision-related quality of life (VR-QOL) concerns of individuals with vision impairment due to severe per...
Citation: Journal of Patient-Reported Outcomes 2021 5:7
This paper reports the duration of moderate and severe exacerbations in patients with house dust mite induced allergic asthma and the impact on patients’ quality of life.
Citation: Journal of Patient-Reported Outcomes 2021 5:6
As life expectancy of people with Down syndrome (DS) increases, so does the risk of Alzheimer’s disease (AD). Identifying symptoms and tracking disease progression is especially challenging whenever levels of ...
Citation: Journal of Patient-Reported Outcomes 2021 5:5
In oncology practice, eliciting the patient’s perspective on their quality of life (QOL) adds important information and value to their treatment and care. The European Organization for Research and Treatment o...
Citation: Journal of Patient-Reported Outcomes 2021 5:4
Hereditary transthyretin (hATTR) amyloidosis is a rare, systemic, progressive, and life-threatening disease in which transthyretin proteins misfold and aggregate as insoluble amyloid deposits, disrupting nervo...
Citation: Journal of Patient-Reported Outcomes 2021 5:3
Gains in cancer detection and treatment have meant that more patients are now living with both cancer and other chronic health conditions, which may become burdensome. We used the Patient Experience with Treat...
Citation: Journal of Patient-Reported Outcomes 2021 5:2
Patients suffering from exsudative retinal diseases may experience severe central vision loss and this might have impact on their daily activities and quality of life. To measure the disabilities these patient...
Citation: Journal of Patient-Reported Outcomes 2021 5:1
An amendment to this paper has been published and can be accessed via the original article.
Citation: Journal of Patient-Reported Outcomes 2020 4:107
Researchers and clinicians studying symptoms experienced by people with cancer must choose from various scales. It would be useful to know how the scores on one measure translate to another.
Citation: Journal of Patient-Reported Outcomes 2020 4:106
Caries Impacts and Experiences Questionnaire for Children (CARIES-QC) is a child-centred caries-specific quality of life measure. This study aimed to select, and validate with children, a classification system...
Citation: Journal of Patient-Reported Outcomes 2020 4:105
The Diabetes Injection Device Preference Questionnaire (DID-PQ) was designed to assess patient preference between two non-insulin injection devices. In a recent crossover study, people with type 2 diabetes (T2...
Citation: Journal of Patient-Reported Outcomes 2020 4:104
To develop a predictive risk model (PRM) for patient-reported anxiety after treatment completion for early stage breast cancer suitable for use in practice and underpinned by advances in data science and risk ...
Citation: Journal of Patient-Reported Outcomes 2020 4:103
Hypertrophic cardiomyopathy (HCM) is a primary myocardial disorder defined by left ventricular hypertrophy that cannot be explained by another cardiac or systemic disease. There is a general lack of knowledge ...
Citation: Journal of Patient-Reported Outcomes 2020 4:102
The use of Patient-Reported Outcome Measures (PROMs) in routine clinical care can help ensure symptoms are identified, acknowledged and addressed. In 2007, the provincial cancer agency, Cancer Care Ontario, be...
Citation: Journal of Patient-Reported Outcomes 2020 4:101
The intense itching associated with atopic dermatitis (AD) often causes patients to experience severe sleep disturbance. Here, we describe the results of a two-phase concept elicitation and cognitive interview...
Citation: Journal of Patient-Reported Outcomes 2020 4:100
Physiological and behavioral factors including hunger, satiety, food intake, and cravings are health determinants contributing to obesity. Patient-reported outcome (PRO) measures focused on eating-related fact...
Citation: Journal of Patient-Reported Outcomes 2020 4:99
Citation: Journal of Patient-Reported Outcomes 2020 4(Suppl 2):93
Measuring change in health-related quality-of-life (HRQoL) is important to assess the impact of disease and/or treatment. Ecological momentary assessment (EMA) comprises the repeated assessment of momentary HR...
Citation: Journal of Patient-Reported Outcomes 2020 4:98
To evaluate the psychometric and measurement properties of two patient-reported outcome instruments, the menstrual pictogram superabsorbent polymer-containing version 3 (MP SAP-c v3) and Uterine Fibroid Daily ...
Citation: Journal of Patient-Reported Outcomes 2020 4:97
To optimize home care, it is essential to determine how care recipients experience quality of care. Traditionally, quality of care is measured with normative quality indicators such as safety, efficiency, or p...
Citation: Journal of Patient-Reported Outcomes 2020 4:96
Smoldering multiple myeloma (SMM) is an early form of multiple myeloma (MM). SMM is typically considered asymptomatic, and research on how it affects health-related quality of life (HRQoL) is limited. This stu...
Citation: Journal of Patient-Reported Outcomes 2020 4:95
Despite the high burden of disease in younger children there are few tools specifically designed to estimate Health Related Quality of Life (HRQoL) in children younger than 3 years of age. A previous paper des...
Citation: Journal of Patient-Reported Outcomes 2020 4:94
There is a need to assess the quality of treatment for Substance Use Disorder (SUD), and document SUD patients’ health-related quality of life (HRQoL). The study aims to describe Norwegian SUD patients’ HRQoL ...
Citation: Journal of Patient-Reported Outcomes 2020 4:92
Speed
81 days to first decision for reviewed manuscripts only
69 days to first decision for all manuscripts
194 days from submission to acceptance
23 days from acceptance to publication
Usage
143,615 downloads
611 Altmetric mentions