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Journal of Patient-Reported Outcomes
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Articles

Page 3 of 15

  1. This proof-of-concept retrospective case study investigated whether patient-reported outcomes (PRO) instruments, designed to capture symptomatic adverse event data, could identity a known exposure–response (ER...

    Authors: Huiming Xia, Brian P. Booth, Yaning Wang, Chunling Fan, Vishal Bhatnagar, Paul Kluetz and Jeanne Fourie Zirkelbach
    Citation: Journal of Patient-Reported Outcomes 2023 7:116
    Content type: Research Published on:

  2. This study evaluated the content validity and psychometric properties of the Patient-Reported Outcomes Measurement Information System® (PROMIS)-Fatigue Short Form 7a (SF-7a) v1.0 scale to determine its suitabi...

    Authors: Brian G. Feagan, William J. Sandborn, Bruce E. Sands, Yan Liu, Marion Vetter, Susan D. Mathias, Kuan-Hsiang Gary Huang, Jewel Johanns, Matthew Germinaro and Chenglong Han
    Citation: Journal of Patient-Reported Outcomes 2023 7:115
    Content type: Research Published on:

  3. Hospitals and healthcare workers have been greatly impacted by the COVID-19 pandemic. The potential impacts upon the patient experience have been less documented, particularly in the pediatric setting. Our aim...

    Authors: Kyle A. Kemp, Paul Fairie, Brian Steele and Maria J. Santana
    Citation: Journal of Patient-Reported Outcomes 2023 7:114
    Content type: Research Published on:

  4. Chemotherapy-induced peripheral neuropathy (CIPN) is an under-recognized complication of several chemotherapy agents used as part of curative-intent therapy for Hodgkin Lymphoma (HL). In the absence of validat...

    Authors: Susan K. Parsons, Angie Mae Rodday, Qinglin Pei, Frank G. Keller, Yue Wu, Tara O. Henderson, David Cella, Kara M. Kelly and Sharon M. Castellino
    Citation: Journal of Patient-Reported Outcomes 2023 7:113
    Content type: Research Published on:

  5. Pyruvate kinase (PK) deficiency is a rare hereditary disorder characterized by chronic hemolytic anemia and serious sequalae which negatively affect patient quality of life. This study aimed to psychometricall...

    Authors: David A. Andrae, Rachael F. Grace, Adrian Jewett, Brandon Foster, Robert J. Klaassen, Sam Salek, Junlong Li, Feng Tai, Audra N. Boscoe and Erin Zagadailov
    Citation: Journal of Patient-Reported Outcomes 2023 7:112
    Content type: Research Published on:

  6. During transition to adulthood and transfer to adult healthcare, emerging adults with chronic conditions are at risk of deteriorating disease control, well-being, and acute, as well as long-term complications....

    Authors: Mikaela Vallmark, Anna Lena Brorsson, Carina Sparud-Lundin, Ewa-Lena Bratt, Philip Moons, Markus Saarijärvi and Mariela Acuña Mora
    Citation: Journal of Patient-Reported Outcomes 2023 7:111
    Content type: Research Published on:

  7. The Dysphagia Symptom Questionnaire (DSQ) is a patient-reported outcome measure that assesses the frequency and severity of dysphagia in patients with eosinophilic esophagitis (EoE); however, it has only been ...

    Authors: Robin M. Pokrzywinski, Bridgett Goodwin, Evan S. Dellon, Ellyn Kodroff, Anne Brooks, Adam Bailey, James Williams and Nirav K. Desai
    Citation: Journal of Patient-Reported Outcomes 2023 7:110
    Content type: Research Published on:

  8. To produce a culturally adapted translation of the Rapid Assessment of Physical Activity (RAPA) questionnaire for German speaking Austrians and to conduct a linguistic validation of the new language version.

    Authors: Stefan Tino Kulnik, Johanna Gutenberg, Kathrin Mühlhauser, Tari Topolski and Rik Crutzen
    Citation: Journal of Patient-Reported Outcomes 2023 7:109
    Content type: Research Published on:

  9. In patients with inflammatory bowel disease (IBD), a symptom with major impact on health-related quality of life is fatigue. To assess fatigue and conduct research regarding fatigue in IBD patients, a validate...

    Authors: Annemay M. H. Stoker, Angélique Gruters, Mirjam C. M. van der Ende-van Loon, Debby Postulart, Wladyslawa Czuber-Dochan and Lennard P. L. Gilissen
    Citation: Journal of Patient-Reported Outcomes 2023 7:108
    Content type: Research Published on:

  10. Neck pain is the fourth leading cause of years lost to disability in children warranting a comprehensive assessment of neck pain and its impact on activities and participation. Hence, the purpose of this study...

    Authors: Devashish Tiwari, Keshrie Naidoo, Emily Z. Eddy, Naseem Chatiwala and Maninderjit Kaur
    Citation: Journal of Patient-Reported Outcomes 2023 7:107
    Content type: Research Published on:

  11. Exercise therapy is considered effective for the treatment of motor impairment in patients with Parkinson’s disease (PD). During the COVID-19 pandemic, training sessions were cancelled and the implementation o...

    Authors: Lisa Lützow, Isabelle Teckenburg, Veronika Koch, Franz Marxreiter, Jelena Jukic, Sabine Stallforth, Martin Regensburger, Jürgen Winkler, Jochen Klucken and Heiko Gaßner
    Citation: Journal of Patient-Reported Outcomes 2023 7:106
    Content type: Research Published on:

  12. Patient-reported outcome measures that facilitate self-report by children are needed to reduce the bias of proxy report. We previously developed an electronic Pediatric Asthma Symptom Diary (ePASD) to assess t...

    Authors: Valerie Williams, Carla Romano, Marci Clark, Dane Korver, Nikki Williams, Diana Goss, Christel Naujoks and Jessica Marvel
    Citation: Journal of Patient-Reported Outcomes 2023 7:105
    Content type: Research Published on:

  13. Pediatric asthma has been identified by regulators, clinicians, clinical trial sponsors, and caregivers as an area in need of novel fit-for-purpose clinical outcome assessments (COAs) developed in accordance w...

    Authors: Helena Bradley, Claire Trennery, Amy M. Jones, Aoife Lydon, Frances White, Rebecca Williams-Hall, Rob Arbuckle, Erin Tomaszewski, Vivian H. Shih, John Haughney, Amanda Eisen, Tonya Winders, Stephen Joel Coons and Sonya Eremenco
    Citation: Journal of Patient-Reported Outcomes 2023 7:104
    Content type: Research Published on:

  14. Patient-reported outcome (PRO) measures can inform clinical decision making and planning of treatment in the health care system. The aim of this study was to examine whether patient-reported health domains inf...

    Authors: Stine Primdahl Rasmussen, Liv Marit Valen Schougaard, Niels Henrik Hjøllund and David Høyrup Christiansen
    Citation: Journal of Patient-Reported Outcomes 2023 7:103
    Content type: Research Published on:

  17. Colorectal cancer is the third most common cancer diagnosis globally and is increasing in both incidence and prevalence. Despite evidence showing that family members of persons diagnosed with cancer have suppo...

    Authors: Maria Samuelsson, Anne Wennick, Mariette Bengtsson, Marie-Louise Lydrup and Jenny Jakobsson
    Citation: Journal of Patient-Reported Outcomes 2023 7:100
    Content type: Research Published on:

  18. Patient-reported outcomes (PROs) are getting widely implemented, but little is known of the impact of applying PROs in specific cancer diagnoses. We report the results of a randomized controlled trial (RCT) of...

    Authors: Gry Assam Taarnhøj, Christoffer Johansen, Andreas Carus, Rikke Hedegaard Dahlrot, Line Hammer Dohn, Niels Henrik Hjøllund, Mark Bech Knudsen, Anders Tolver, Henriette Lindberg and Helle Pappot
    Citation: Journal of Patient-Reported Outcomes 2023 7:99
    Content type: Research Published on:

  19. Electronic patient-reported outcome (ePRO) systems are increasingly used in clinical trials to provide evidence of efficacy and tolerability of treatment from the patient perspective. The aim of this study is ...

    Authors: Christel McMullan, Ameeta Retzer, Sarah E. Hughes, Olalekan Lee Aiyegbusi, Camilla Bathurst, Alan Boyd, Jamie Coleman, Elin Haf Davies, Alastair K. Denniston, Helen Dunster, Chris Frost, Rosie Harding, Amanda Hunn, Derek Kyte, Rebecca Malpass, Gary McNamara…
    Citation: Journal of Patient-Reported Outcomes 2023 7:98
    Content type: Research Published on:

  20. Understanding which patient-reported outcome measures are being collected and utilized in clinical practice and research for patients with neck pain will help to inform recommendations for a core set of measur...

    Authors: Michelle M. Ramirez, Mark H. Shepherd, S. Jacob Melnick, Cannon Hanebuth, Caroline Bazemore, Logan Couce, Steph Hendren and Maggie E. Horn
    Citation: Journal of Patient-Reported Outcomes 2023 7:97
    Content type: Review Published on:

  21. Policies to support people living with dementia increasingly focus on strengths-based approaches, highlighting the importance of building resilience. This research responds to the lack of a suitable resilience...

    Authors: Jennifer Rhiannon Roberts, Catherine Anne MacLeod, Zoe Hoare, Mary Pat Sullivan, Emilie Brotherhood, Joshua Stott and Gill Windle
    Citation: Journal of Patient-Reported Outcomes 2023 7:96
    Content type: Research Published on:

  22. Classic Galactosemia (CG) is a rare, autosomal recessive condition. Newborn screening and a timely galactose-restricted diet can resolve acute symptoms and decrease fatalities, but significant chronic, progres...

    Authors: Jason A. Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Evan Bailey, Riccardo Perfetti, Shoshana Shendelman and Claire Burbridge
    Citation: Journal of Patient-Reported Outcomes 2023 7:95
    Content type: Research Published on:

  23. Multimorbidity is a burden for the individual and to the healthcare sector worldwide, leading to a rising number of intervention studies towards this patient group. To measure a possible effect of such interve...

    Authors: Kristine Bissenbakker, Volkert Siersma, Alexandra Brandt Ryborg Jønsson, Anne Møller, Karl Bang Christensen and John Brandt Brodersen
    Citation: Journal of Patient-Reported Outcomes 2023 7:94
    Content type: Research Published on:

  24. The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was wor...

    Authors: Carla Vlooswijk, Silvie H. M. Janssen, Lonneke V. van de Poll-Franse, Rhodé Bijlsma, Suzanne E. J. Kaal, J. Martijn Kerst, Jacqueline M. Tromp, Monique E. M. M. Bos, Roy I. Lalisang, Janine Nuver, Mathilde C. M. Kouwenhoven, Winette T. A. van der Graaf and Olga Husson
    Citation: Journal of Patient-Reported Outcomes 2023 7:93
    Content type: Short report Published on:

  25. The COMET-ICE trial demonstrated that sotrovimab clinically and statistically significantly reduces the risk of all-cause > 24-h hospitalization or death due to any cause among patients with COVID-19 at high r...

    Authors: Sacha Satram, Parima Ghafoori, Carolina M. Reyes, Tom J. H. Keeley, Helen J. Birch, Dimitra Brintziki, Melissa Aldinger, Elizabeth Alexander, Amanda Lopuski, Elias H. Sarkis, Anil Gupta, Adrienne E. Shapiro and John H. Powers III
    Citation: Journal of Patient-Reported Outcomes 2023 7:92
    Content type: Research Published on:

  26. The International Consortium for Health Outcomes Measurement (ICHOM) developed a standard set of patient-centered outcome measures for use in stroke patients. In addition to the Patie...

    Authors: Daniëlla M Oosterveer, Winke van Meijeren-Pont, Frederike van Markus-Doornbosch, Etienne Stegeman, Caroline B Terwee, Gerard M Ribbers and Thea PM Vliet Vlieland
    Citation: Journal of Patient-Reported Outcomes 2023 7:91
    Content type: Research Published on:

  27. Comparison of patient-reported outcomes in multilingual studies requires evidence of the equivalence of translated versions of the questionnaires. The present study examines the factorial validity and comparab...

    Authors: Marina Zeldovich, Fabian Bockhop, Amra Covic, Isabelle Mueller, Suzanne Polinder, Ana Mikolic, Marjolein van der Vlegel and Nicole von Steinbuechel
    Citation: Journal of Patient-Reported Outcomes 2023 7:90
    Content type: Research Published on:

  28. Treatments for type 2 diabetes vary widely in their complexity. The simplicity or complexity of a treatment regimen may have an impact on patient preference, treatment adherence, and health outcomes. The purpo...

    Authors: Katie D. Stewart, Louis S. Matza, Hiren Patel and Kristina S. Boye
    Citation: Journal of Patient-Reported Outcomes 2023 7:89
    Content type: Research Published on:

  30. Practitioner and family experiences of pediatric re/habilitation can be inequitable. The Young Children’s Participation and Environment Measure (YC-PEM) is an evidence-based and promising electronic patient-re...

    Authors: Vivian C. Villegas, Dianna L. Bosak, Zurisadai Salgado, Michelle Phoenix, Natalie Parde, Rachel Teplicky and Mary A. Khetani
    Citation: Journal of Patient-Reported Outcomes 2023 7:87
    Content type: Research Published on:

  31. The guidelines for mechanical circulatory support of the International Society for Heart and Lung Transplantation do not recommend the routine replacement or repair of the mitral valve at the time point of lef...

    Authors: Kristin Klaeske, Constantin Schreiber, Sandra Eifert, Tillmann Dieterlen, Khalil Jawad, Diyar Saeed, Sandra Semmig-Könze, Anna Lassia Meyer, Michael Andrew Borger and Maja-Theresa Dieterlen
    Citation: Journal of Patient-Reported Outcomes 2023 7:86
    Content type: Research Published on:

  32. To further develop the Person-Centred Care instrument for outpatient care (PCCoc), evaluate its user-friendliness and content validity, and to explore its basic psychometric properties in various outpatient se...

    Authors: Fredrik Gasser, Sidona-Valentina Bala, Albert Westergren, Joakim Ekstrand and Peter Hagell
    Citation: Journal of Patient-Reported Outcomes 2023 7:85
    Content type: Research Published on:

  33. Dengue is the most prevalent arboviral infection causing an estimated 50–60 million cases of febrile illness globally per year, exacting considerable disease burden. Few instruments exist to assess the patient...

    Authors: Amy M. Jones, Todd L. Saretsky, Charlotte Panter, Jane R. Wells, Frances White, Verity Smith, Helen Kendal, Kevin Russell, Madelyn Ruggieri, Shawna R. Calhoun, Adam Gater, Justin O’Hagan, Kathryn B. Anderson, Valerie A. Paz-Soldan, Amy C. Morrison, Lisa Ware…
    Citation: Journal of Patient-Reported Outcomes 2023 7:84
    Content type: Research Published on:

  34. Post-thrombotic syndrome (PTS) is the most common complication of deep venous thrombosis (DVT). The index for the Clinical Assessment of Post-Thrombotic Syndrome in children (CAPTSure©) is a clinical tool for ...

    Authors: Marie-Claude Pelland-Marcotte, Angelika Stavrakoukas, Gina Wong, Raoul Santiago and Laura Avila
    Citation: Journal of Patient-Reported Outcomes 2023 7:83
    Content type: Short report Published on:

  35. Spontaneous intracranial hypotension (SIH) is an underdiagnosed and debilitating condition caused by a spinal cerebrospinal fluid (CSF) leak. Although SIH can lead to substantial morbidity and disability, litt...

    Authors: Timothy J. Amrhein, Molly McFatrich, Kate Ehle, Michael D. Malinzak, Linda Gray, Peter G. Kranz, E. Hope Weant and Christina K. Zigler
    Citation: Journal of Patient-Reported Outcomes 2023 7:82
    Content type: Research Published on:

  36. Patient-reported outcome measures (PROMs) provide a measure of self-perceived health status or health-related quality of life. They have been used to support provider-patient decisions, healthcare delivery, an...

    Authors: David A Snowdon, Velandai Srikanth, Richard Beare, Kate E Noeske, Elizabeth Le, Bridget O’Bree and Nadine E Andrew
    Citation: Journal of Patient-Reported Outcomes 2023 7:81
    Content type: Research Published on:

  37. The Knee Injury and Osteoarthritis Outcomes Score (KOOS) is a free clinical tool commonly used to evaluate the symptoms and functional status of patients with knee injury. For people who speak Chinese, the Hon...

    Authors: Liying Yang, Jatuporn Suttiwong, Yanfen Fu and Komsak Sinsurin
    Citation: Journal of Patient-Reported Outcomes 2023 7:80
    Content type: Research Published on:

  38. Identifying the most relevant HRQOL domains for LBP from the perspective of individuals with lived experience with LBP is necessary to prioritize domains that will be most informative for evaluating the impact...

    Authors: O Eilayyan, A Gogovor, D Zidarov, N Mayo and S Ahmed
    Citation: Journal of Patient-Reported Outcomes 2023 7:79
    Content type: Research Published on:

  39. Goal Attainment Scaling (GAS) is an outcome measure that reflects the perspectives and experiences of patients, consistent with patient-centred care approaches and with the aims of patient-reported outcome mea...

    Authors: Paul Stolee, Sara Mallinson, Alison Kernoghan, Meaghan Brierley, Catherine Tong, Jacobi Elliott and Lama Abdallah
    Citation: Journal of Patient-Reported Outcomes 2023 7:78
    Content type: Research Published on:

  40. Longitudinal estimates of long COVID burden during Omicron remain limited. This study characterized long-term impacts of COVID-19 and booster vaccination on symptoms, Health-Related Quality of Life (HRQoL), an...

    Authors: Manuela Di Fusco, Xiaowu Sun, Mary M. Moran, Henriette Coetzer, Joann M. Zamparo, Mary B. Alvarez, Laura Puzniak, Ying P. Tabak and Joseph C. Cappelleri
    Citation: Journal of Patient-Reported Outcomes 2023 7:77
    Content type: Research Published on:

  41. Patient-reported outcome measures - PROMs - have been developed to provide an assessment of patients’ physical function, symptoms, and health-related quality of life. With patient-centered care becoming increa...

    Authors: Adriana N. König, Sebastian Himmler, Peter Buschner and Leonie Sundmacher
    Citation: Journal of Patient-Reported Outcomes 2023 7:76
    Content type: Short report Published on:

  42. Fatigue has a detrimental impact on health-related quality of life and functioning in patients with Crohn’s disease (CD). We aimed to confirm the relevance and importance of fatigue, establish the content vali...

    Authors: Miguel Regueiro, Laure Delbecque, Theresa Hunter, Larissa Stassek, Gale Harding and James Lewis
    Citation: Journal of Patient-Reported Outcomes 2023 7:75
    Content type: Research Published on:

  43. Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA) are rare inherited retinal degenerative disorders. The associated visual impairments have significant impacts on patients’ vision-dependent activi...

    Authors: Christine Kay, Isabelle Audo, Christel Naujoks, Claudio Spera, M. Dominik Fischer, Jane Green, Todd Durham, Nicola Williamson, Helena Bradley, Melissa Barclay, Joel Sims, Judit Banhazi and Francesco Patalano
    Citation: Journal of Patient-Reported Outcomes 2023 7:74
    Content type: Research Published on:

  44. Evaluating the criterion validity and responsiveness of the self-reported FitMáx©-questionnaire, Duke Activity Status Index (DASI) and Veterans Specific Activity Questionnaire (VSAQ) to monitor aerobic capacit...

    Authors: Anouk T.R. Weemaes, Renske Meijer, Milou Beelen, Martijn van Hooff, Matty P. Weijenberg, Antoine F. Lenssen, Lonneke V. van de Poll-Franse, Hans H.C.M. Savelberg and Goof Schep
    Citation: Journal of Patient-Reported Outcomes 2023 7:73
    Content type: Research Published on:

  45. Women with endometrial or ovarian cancer experience a variety of symptoms during chemotherapy. Patient-Reported outcomes (PROs) can provide insight into the symptoms they experience. A PRO tool tailored to thi...

    Authors: Mille Guldager Christiansen, Helle Pappot, Pernille Tine Jensen, Mansoor Raza Mirza, Mary Jarden and Karin Piil
    Citation: Journal of Patient-Reported Outcomes 2023 7:72
    Content type: Research Published on:

  46. Cancer survivors are at greater risk for poor health outcomes due to COVID-19. However, the pandemic's impact on patients’ health-related quality of life (HRQoL) is not well known. This study hypothesized that...

    Authors: Laura M. Perry, John D. Peipert, Sheetal M. Kircher, Jackelyn Cantoral, Frank J. Penedo and Sofia F. Garcia
    Citation: Journal of Patient-Reported Outcomes 2023 7:71
    Content type: Research Published on:

  47. Metachromatic leukodystrophy (MLD) is a rare lysosomal storage disease caused by deficient activity of arylsulfatase A (ASA). Treatment options for patients are limited; gene therapy based on haematopoietic st...

    Authors: Susan Martin, Nimanee Harris and Dorothy Romanus
    Citation: Journal of Patient-Reported Outcomes 2023 7:70
    Content type: Research Published on:

  48. Standardized measures for evaluating patients’ experiences with nonalcoholic steatohepatitis (NASH) and their perceived changes with treatment in clinical trials have been limited. To meet this need, a patient...

    Authors: James Twiss, Diane Whalley, Lynda Doward, Maria-Magdalena Balp, Clifford A. Brass, Donna Cryer, Arun Sanyal and Quentin M. Anstee
    Citation: Journal of Patient-Reported Outcomes 2023 7:69
    Content type: Research Published on:

  49. Congenital thrombotic thrombocytopenic purpura (cTTP) is an ultra-rare, life-threatening hereditary disorder that causes patients to experience significant morbidity and decreased health-related quality of lif...

    Authors: Abiola Oladapo, Diane Ito, Ana María Rodriguez, Stephanie Philpott, Robert Krupnick, Veleka Allen, Christopher Hibbard, Marie Scully and Bruce Ewenstein
    Citation: Journal of Patient-Reported Outcomes 2023 7:68
    Content type: Research Published on:

  50. This study characterized depression trajectories during the COVID pandemic and investigated how appraisal and changes in appraisal over time related to these depression trajectories.

    Authors: Carolyn E. Schwartz, Katrina Borowiec and Bruce D. Rapkin
    Citation: Journal of Patient-Reported Outcomes 2023 7:67
    Content type: Research Published on:
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Annual Journal Metrics

  • Citation Impact 2023
    Journal Impact Factor: 2.4
    5-year Journal Impact Factor: 3.1
    Source Normalized Impact per Paper (SNIP): 1.019
    SCImago Journal Rank (SJR): 0.872

    Speed 2023
    Submission to first editorial decision (median days): 10
    Submission to acceptance (median days): 173

    Usage 2023
    Downloads: 642,043
    Altmetric mentions: 559