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  1. To develop the novel multidimensional health perceptions questionnaire (MHPQ), a self-reported assessment of health perceptions inclusive of (1) individuals beliefs about the causes and consequences of health ...

    Authors: Shannon B. Juengst, Marlene Vega, Alexandra B. Holland, Susan Herrera, Robin T. Higashi, Maria Boix Braga, Alka Khera, Chung Lin Kew and Valeria Silva
    Citation: Journal of Patient-Reported Outcomes 2022 6:104
  2. Pain is common among torture survivors and refugees. Clear communication about one’s pain is vital to timely and precise diagnosis and treatment but is rarely recognized as a social determinant of health. We e...

    Authors: S. Megan Berthold, Richard Feinn, Angela Bermudez-Millan, Thomas Buckley, Orfeu M. Buxton, Sengly Kong, Theanvy Kuoch, Mary Scully, Tu Anh Ngo and Julie Wagner
    Citation: Journal of Patient-Reported Outcomes 2022 6:103
  3. In palliative oncology settings, electronic patient-reported outcome (PRO) assessment can play an important role in supporting clinical activities for clinicians and patients. This scoping review aims to map t...

    Authors: Letteria Consolo, Greta Castellini, Silvia Cilluffo, Ilaria Basile and Maura Lusignani
    Citation: Journal of Patient-Reported Outcomes 2022 6:102
  4. The independent healthcare sector in the UK collects PROMs for several surgical procedures, but implementation has been challenging. We aimed to understand the enablers and barriers to PROMs implementation in ...

    Authors: Michael Anderson, Emma Pitchforth, Andrew Vallance-Owen, Elias Mossialos, Paul Millner and Jon Fistein
    Citation: Journal of Patient-Reported Outcomes 2022 6:101
  5. The Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F) scale has demonstrated good internal consistency and responsiveness to changes in clinical status among patients with ankylosing spondylit...

    Authors: David Cella, William R. Lenderking, Peter Chongpinitchai, Andrew G. Bushmakin, Oluwaseyi Dina, Lisy Wang, Joseph C. Cappelleri and Victoria Navarro-Compán
    Citation: Journal of Patient-Reported Outcomes 2022 6:100
  6. Patient-reported outcome (PRO) measures may be used in telehealth for the clinical assessment of mental health and diabetes distress, which are important aspects in diabetes care, but valid and reliable instru...

    Authors: Liv Marit Valen Schougaard, Tinne Laurberg, Kirsten Lomborg, Troels Krarup Hansen, Niels Henrik Hjollund and Annesofie Lunde Jensen
    Citation: Journal of Patient-Reported Outcomes 2022 6:99
  7. This study aimed to translate and validate an Arabic version of the Functional Assessment of Cancer Therapy Head and Neck Scale (FACT-H&N, v-4) for use among Sudanese oral cancer patients.

    Authors: M. El Sheikh, A. Suleiman, A. Satti and E. M. O’Sullivan
    Citation: Journal of Patient-Reported Outcomes 2022 6:98
  8. Aspirations refer to wishes, ways of defining quality of life (QOL), and life goals. Living with chronic illness likely impacts a person’s life aspirations. Duchenne Muscular Dystrophy (DMD) is an inherited di...

    Authors: Carolyn E. Schwartz, Elijah Biletch, Richard B. B. Stuart and Bruce D. Rapkin
    Citation: Journal of Patient-Reported Outcomes 2022 6:97
  9. The inevitable and progressive loss of independence in Duchenne Muscular Dystrophy (DMD) patients may have an impact on their siblings’ life aspirations. The present cross-sectional case-control study investig...

    Authors: Carolyn E. Schwartz, Elijah Biletch, Richard B. B. Stuart and Bruce D. Rapkin
    Citation: Journal of Patient-Reported Outcomes 2022 6:96
  10. Patient-reported outcome measures (PROMs) are an extensively used tool to assess and improve the quality of healthcare services. PROMs can be related to individual demographic and clinical characteristics in p...

    Authors: Davide Golinelli, Alberto Grassi, Dario Tedesco, Francesco Sanmarchi, Simona Rosa, Paola Rucci, Marilina Amabile, Monica Cosentino, Barbara Bordini, Maria Pia Fantini and Stefano Zaffagnini
    Citation: Journal of Patient-Reported Outcomes 2022 6:95
  11. Rehabilitation therapy during hospitalization is effective in improving activities of daily living (ADL) and physical function in patients with brain tumors. However, there are few studies on the effect of reh...

    Authors: Takahiro Watanabe, Shinichi Noto, Manabu Natsumeda, Shinji Kimura, Satoshi Tabata, Fumie Ikarashi, Mayuko Takano, Yoshihiro Tsukamoto and Makoto Oishi
    Citation: Journal of Patient-Reported Outcomes 2022 6:94
  12. Total hip arthroplasty (THA) is a successful procedure that provides pain relief, restores function, and improves quality of life (QOL) for patients with advanced arthritis in their hip joint. To date, little ...

    Authors: Carolyn E. Schwartz, Bruce D. Rapkin, Jhase Sniderman and Joel A. Finkelstein
    Citation: Journal of Patient-Reported Outcomes 2022 6:93
  13. In Canada, the prevalence of mental health challenges is highest in young people aged 12–24. Mental health challenges frequently cause marked functional impairment. Despite this, we are unaware of any existing...

    Authors: Skye Barbic, Emily Brooks, Natalia Lassak, Mo Khaleghi, Marco Zenone, Nikki Ow, Adelena Leon and Steve Mathias
    Citation: Journal of Patient-Reported Outcomes 2022 6:92
  14. Many patient reported outcome measures (PROMs) generate single number index scores that summarise responses to different questions within a questionnaire. Although these are valuable as unambiguous indicators ...

    Authors: David William Parkin, Bronwyn Do Rego and Rhonda Shaw
    Citation: Journal of Patient-Reported Outcomes 2022 6:91
  15. Patient-reported outcome measures are important in person-centered care, providing valuable information about patients’ experiences. Disease-specific questionnaires add important information about a certain di...

    Authors: Ulla Walfridsson, Håkan Walfridsson, Melissa E. Middeldorp, Prashanthan Sanders and Kristofer Årestedt
    Citation: Journal of Patient-Reported Outcomes 2022 6:90
  16. Multiple sclerosis (MS) is a chronic progressive neurological disease that influences an individual's physical, mental, emotional, and social functioning, otherwise known as health-related quality of life (HRQ...

    Authors: Erin Faraclas, Angela Merlo, Jeff Lynn and Jeffery D. Lau
    Citation: Journal of Patient-Reported Outcomes 2022 6:89
  17. Patient-reported outcome measures (PROMs) play an important role in promoting and supporting patient and family-centered care. Implementing interventions like PROMs in routine clinical care require key stakeho...

    Authors: Sumedh Bele, Sarah Rabi, Muning Zhang, Elizabeth Oddone Paolucci, David W. Johnson, Hude Quan and Maria J. Santana
    Citation: Journal of Patient-Reported Outcomes 2022 6:88
  18. The assessment of patients’ medication literacy skills (i.e., abilities to access, comprehend and interact with medication-related information) is an important step in assisting clinicians to plan for appropri...

    Authors: Jenny Gentizon, Mapi Fleury, Eric Pilet, Christophe Büla and Cedric Mabire
    Citation: Journal of Patient-Reported Outcomes 2022 6:87
  19. There is interest in participants using their own smartphones or tablets (“bring your own device”; BYOD) to complete patient-reported outcome (PRO) measures in clinical studies. Our study aimed to qualitativel...

    Authors: Louise Newton, Oliver Knight-West, Sonya Eremenco, Stacie Hudgens, Mabel Crescioni, Tara Symonds, David S. Reasner, Bill Byrom, Paul O’Donohoe and Susan Vallow
    Citation: Journal of Patient-Reported Outcomes 2022 6:86
  20. Given the urgent need for vaccines and treatments for coronavirus disease 2019 (COVID-19), the Symptoms of Infection with Coronavirus-19 (SIC), a comprehensive, patient-reported outcome (PRO) measure of signs ...

    Authors: Carla Romano, Sheri Fehnel, Jeffrey Stoddard, Jerald Sadoff, Sandy Lewis, Pauline McNulty, Eric K. H. Chan, Emily Evans, Carol Jamieson, Ashley F. Slagle, Allen Mangel and Kelly McQuarrie
    Citation: Journal of Patient-Reported Outcomes 2022 6:85
  21. New treatments are being evaluated for lipodystrophy; however, limited information is available on the patient experience. Results of a prior patient panel showed that hunger and temperature-related symptoms w...

    Authors: Susan A. Martin, Robert J. Sanchez, Oyebimpe Olayinka-Amao, Charles Harris and Sheri Fehnel
    Citation: Journal of Patient-Reported Outcomes 2022 6:84
  22. Multimorbidity is both an individual and societal problem. For society, patients with multimorbidity increase healthcare costs. For the individual, living with multimorbidity is complex, and there is an invers...

    Authors: Kristine Bissenbakker, Anne Møller, John Brandt Brodersen and Alexandra Brandt Ryborg Jønsson
    Citation: Journal of Patient-Reported Outcomes 2022 6:83
  23. Fatigue is a highly prevalent and disabling symptom in cancer survivors. Although many measures have been developed to assess survivors’ fatigue, their ability to accurately capture change following interventi...

    Authors: Catherine E. Mosher, Ekin Secinti, Shelley A. Johns, Kurt Kroenke and Laura Q. Rogers
    Citation: Journal of Patient-Reported Outcomes 2022 6:82
  24. Patient-reported outcome measures (PROMs) are emerging tools used to capture a patient’s daily health status and enhance communication between patients and healthcare professionals. This study examined whether...

    Authors: Anna Sophie Belling Krontoft, Johanna Walsøe Jensen, Mette Charlotte Pedersen, Maria Pors, Diljit Kaur-Knudsen, Claus Zachariae and Lone Skov
    Citation: Journal of Patient-Reported Outcomes 2022 6:81
  25. Detecting anxiety in oncology patients is important, requiring valid yet brief measures. One increasingly popular approach is the Patient Reported Outcomes Measurement Information System (PROMIS); however, its...

    Authors: Kerrie Clover, Sylvie D. Lambert, Christopher Oldmeadow, Benjamin Britton, Alex J. Mitchell, Gregory Carter and Madeleine T. King
    Citation: Journal of Patient-Reported Outcomes 2022 6:80
  26. The quality of physiotherapy care for patients with chronic obstructive pulmonary disease (COPD) can be improved by comparing outcomes of care in practice.

    Authors: Arie C. Verburg, Jessica Zincken, Henri Kiers, Simone A. van Dulmen and Philip J. van der Wees
    Citation: Journal of Patient-Reported Outcomes 2022 6:79
  27. Third sector organisations such as charities and community groups are using Patient Reported Outcome Measures (PROMs) at an aggregated service level to demonstrate their impact to commissioners to generate or ...

    Authors: Alexis Foster, Alicia O’Cathain, Janet Harris, Guy Weston, Lucy Andrews and Olga Andreeva
    Citation: Journal of Patient-Reported Outcomes 2022 6:78
  28. Despite evidence for clinical benefits, recommendations in guidelines, and options for electronic data collection, routine assessment of patient-reported outcomes (PROs) is mostly not implemented in clinical p...

    Authors: Thomas Nordhausen, Katharina Lampe, Dirk Vordermark, Bernhard Holzner, Haifa-Kathrin Al-Ali, Gabriele Meyer and Heike Schmidt
    Citation: Journal of Patient-Reported Outcomes 2022 6:77
  29. Primary sclerosing cholangitis (PSC) is a rare incurable disease of the bile ducts and liver which can significantly impair quality of life (QoL). No existing QoL tools are entirely suitable for people living ...

    Authors: Elena Marcus, Patrick Stone, Douglas Thorburn, Martine Walmsley and Bella Vivat
    Citation: Journal of Patient-Reported Outcomes 2022 6:76
  30. PIK3CA-Related Overgrowth Spectrum (PROS) are rare syndromes caused by a mutation in the PIK3CA gene, including fibroadipose hyperplasia or overgrowth; congenital lipomatous overgrowth, vascular malformations,...

    Authors: Kimberly Raymond, Susan Vallow, Cory Saucier, Kristi Jackson, Michelle K. White, Andrew Lovley and Denise D’Alessio
    Citation: Journal of Patient-Reported Outcomes 2022 6:75
  31. Major depressive disorder (MDD) directly impacts patients’ lives including symptoms, functioning and health-related quality-of-life (HRQoL). Patient-reported outcomes can capture these impacts, however interpr...

    Authors: Heather Rozjabek, Nan Li, Holger Hartmann, Dong Jing Fu, Carla Canuso and Carol Jamieson
    Citation: Journal of Patient-Reported Outcomes 2022 6:74
  32. Patient reported outcome measures (PROMs) engage patients in co-evaluation of their health and wellbeing outcomes. This study aimed to determine the feasibility, response rate, degree of recovery and patient a...

    Authors: Natasha K. Brusco, Victoria Atkinson, Jeffrey Woods, Paul S. Myles, Anita Hodge, Cathy Jones, Damien Lloyd, Vincent Rovtar, Amanda M. Clifford and Meg E. Morris
    Citation: Journal of Patient-Reported Outcomes 2022 6:73
  33. As the COVID-19 pandemic evolves, more information is needed on its long-term impacts on health-related quality of life (HRQoL) and social determinants of health (SDoH). The aim of the study was to assess HRQo...

    Authors: Kathleen R. Case, Chen-Pin Wang, Meredith G. Hosek, Sarah F. Lill, Alexandra B. Howell, Barbara S. Taylor, James Bridges, Daniel J. MacCarthy, Paula Winkler and Joel Tsevat
    Citation: Journal of Patient-Reported Outcomes 2022 6:72
  34. To evaluate the measurement properties of the Oxford Hip Score (OHS), EQ-5D-5L utility index and EQ-5D-5L visual analogue scale (EQ-VAS) in patients undergoing elective total hip arthroplasty in Australia.

    Authors: D-Yin Lin, Tim Soon Cheok, Anthony J. Samson, Billingsley Kaambwa, Brigid Brown, Christopher Wilson, Hidde M. Kroon and Ruurd L. Jaarsma
    Citation: Journal of Patient-Reported Outcomes 2022 6:71
  35. To realize the broader benefits of electronic patient-reported outcome measures (ePROMs) in routine care, we used the RE-AIM (Reach, Effectiveness, Adoption, Implementation, and Maintenance) framework to infor...

    Authors: Afaf Girgis, Adeola Bamgboje-Ayodele, Orlando Rincones, Shalini K. Vinod, Sandra Avery, Joseph Descallar, Allan ‘Ben’ Smith, Belinda Arnold, Anthony Arnold, Victoria Bray, Ivana Durcinoska, Nicole M. Rankin and Geoff P. Delaney
    Citation: Journal of Patient-Reported Outcomes 2022 6:70
  36. Thirst is a powerfully distressing sensation that occurs most frequently in the immediate postoperative period. Postoperative thirst is prevalent, the moderate-to-severe type is estimated to affect 53.2–69.8% ...

    Authors: Kumlachew Geta Belete, Henos Enyew Ashagrie, Misganaw Mengie Workie and Seid Adem Ahmed
    Citation: Journal of Patient-Reported Outcomes 2022 6:69
  37. Activity Scale for Kids (ASK) is self reported, widely used tool to measure the physical disability in children aged 5–15 years. It has two versions; ASK-performance version and ASK-capability version, both wi...

    Authors: Regan Shakya, Renuka Suwal, Ishwar Adhikari, Jasmine Shrestha, Subham Gyawali and Archana Shrestha
    Citation: Journal of Patient-Reported Outcomes 2022 6:68
  38. Value-based health care represents a patient-centered approach by valuing Patient-Reported Outcome Measures (PROMs). Our aim was to describe the additional value of PROMs after an acute stroke over conventiona...

    Authors: Ester Sanchez-Gavilan, Estefania Montiel, Maria Baladas, Sofia Lallanas, Eva Aurin, Carolina Watson, Maria Gutierrez, Yolima Cossio, Marc Ribo, Carlos A. Molina and Marta Rubiera
    Citation: Journal of Patient-Reported Outcomes 2022 6:66
  39. Previous research has shown that the inclusion of patient-reported outcomes measures in the patient’s visit to the oncologists might improve the quality of global health care. The aim of the study was to asses...

    Authors: Cecilia Castillo, Ana Laura Alfonso, Juan J. Dapueto, Natalia Camejo and Martín Silva
    Citation: Journal of Patient-Reported Outcomes 2022 6:65
  40. The COVID-19 pandemic has impacted the mental health and well-being of health care workers (HCWs). This study examined mental health outcomes and COVID-related stress impacts among a diverse sample of ambulato...

    Authors: Joshua Biber, Bethany Ranes, Shanieek Lawrence, Vishal Malpani, Trong Tony Trinh, Andrew Cyders, Steven English, Charles L. Staub, Kristen L. McCausland, Mark Kosinski, Nishtha Baranwal, Daniel Berg and Rodica Pop
    Citation: Journal of Patient-Reported Outcomes 2022 6:63
  41. Life engagement in the context of mental health is a broad term that describes positive health aspects relating to cognition, vitality, motivation and reward, and the ability to feel pleasure—concepts that are...

    Authors: Roger S. McIntyre, Zahinoor Ismail, Christopher P. Watling, Catherine Weiss, Stine R. Meehan, Primrose Musingarimi and Michael E. Thase
    Citation: Journal of Patient-Reported Outcomes 2022 6:62
  42. Long-term treatment adherence is a worldwide concern, with nonadherence resulting from a complex interplay of behaviors and health beliefs. Determining an individual’s risk of nonadherence and identifying the ...

    Authors: Béatrice Tugaut, Selam Shah, Kevin Dolgin, Hanna Rebibo Seror, Benoit Arnould, Marie-Eve Laporte, Aaron Lee, Lydiane Nabec, Reem Kayyali, Joshua Wells, John D. Piette and Guillaume Hubert
    Citation: Journal of Patient-Reported Outcomes 2022 6:61
  43. Patient-reported outcome (PRO) measures are critical for assessing treatment benefit of anticancer treatments. Although PRO measures have been developed with the intention of capturing patient-centric concepts...

    Authors: Carla Romano, Nimanee Harris, Ari Gnanasakthy, Denise D’Alessio and David Chandiwana
    Citation: Journal of Patient-Reported Outcomes 2022 6:60
  44. The Patient-Reported Outcome Measurement Information System® (PROMIS®) was developed to reliably measure health-related quality of life using the patient’s voice. To achieve these aims, PROMIS utilized Item Respo...

    Authors: Robert Chapman
    Citation: Journal of Patient-Reported Outcomes 2022 6:59
  45. As patient-reported outcome measures (PROMs) have become of significant importance in patient evaluation, adequately selecting the appropriate instrument is an integral part of pediatric orthopedic research an...

    Authors: J. P. Ruben Kalle, Tim F. F. Saris, Inger N. Sierevelt, Denise Eygendaal and Christiaan J. A. van Bergen
    Citation: Journal of Patient-Reported Outcomes 2022 6:58
  46. Real-world evidence (RWE) plays an increasingly important role within global regulatory and reimbursement processes. RWE generation can be enhanced by the collection and use of patient-reported outcomes (PROs)...

    Authors: Konrad Maruszczyk, Olalekan Lee Aiyegbusi, Barbara Torlinska, Philip Collis, Thomas Keeley and Melanie J. Calvert
    Citation: Journal of Patient-Reported Outcomes 2022 6:57
  47. This article describes qualitative interviews conducted with children (aged 6–11), adolescents (aged 12–17), and adults with the common cold as well as parents/caregivers of the 6–8-year-old children. The aim ...

    Authors: Rob Arbuckle, Chris Marshall, Laura Grant, Kate Burrows, Helmut H. Albrecht and Tim Shea
    Citation: Journal of Patient-Reported Outcomes 2022 6:56
  48. An observer-reported outcome (ObsRO) measure assessing both symptom control and health-related quality of life (HRQoL) in children with asthma younger than 6 years is lacking. The objective of this study was t...

    Authors: Yi Zhang, Jennifer L. Clegg, Shannon Keith, Shehan McFadden, Tara Symonds, Rajesh Kumar, Asif H. Khan, Siddhesh Kamat and Jingdong Chao
    Citation: Journal of Patient-Reported Outcomes 2022 6:55

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