Exploring patients’ experience using PROMs within routine post-discharge follow-up assessment after stroke: a mixed methods approach

Mourits, B.M.P.; den Hartog, S.J.; de Graaf, J.A.; Roozenbeek, B.; Post, M.W.M.; Visser-Meily, J.M.A.; Scholten, E.W.M.

doi:10.1186/s41687-024-00724-w

Journal of Patient-Reported Outcomes

Table 3 Quotes per statement or interview question

From: Exploring patients’ experience using PROMs within routine post-discharge follow-up assessment after stroke: a mixed methods approach

Statements	Positive quotes	Negative quotes
The questionnaire provided my healthcare provider with insight into my well-being	“It helped enormously with mapping out what still needs to be done in the context of rehabilitation.”
	“It contains questions which you would not ask yourself otherwise or which you do not consider to be important. And of course, they are important for the healthcare provider.”
By completing the questionnaires, I was better prepared	“It helped me, as well as the doctor, to understand what is important to discuss during the consultation.”	“No questionnaire would have helped me with the preparation; I myself know what I want to discuss.”
By completing the questionnaires, I was better prepared	“The questionnaire made it clear what I could expect, and that expectation came true.”
Completing the questionnaire gave me insight into my own problems	“Now you look at the various levels of consequences specifically. This gave a clearer representation of my problems.”	“I realized what my problems were before I completed the questionnaire.” “I already knew what I was suffering from and what my problems were.”
	“I didn’t realise I had a problem. But the questionnaire opened my eyes.”
The questionnaire helped me during the conversation with the healthcare provider	“It gave a nice structure in the conversation and this ensured that issues were not forgotten.”	“The conversation with the healthcare provider would have ended the same way even though I did not complete the questionnaires in advance.”
	“With the questionnaire, I could express myself well.”
Additional open questions
Is it good that a broad range of consequences of stroke are addressed in the PROMs?	“Otherwise there is a risk that certain matters stay out of sight, but do play a role.”
	“I can imagine that it is very important for people who have more severe consequences from their stroke.”
What did you gain from completing the questionnaires?	“I told the healthcare provider a lot more because of the questionnaire. Including things I would otherwise not have told because I thought it would not be important.”	“Personally, the questionnaires did not make me think more about my problems.”
What did you gain from completing the questionnaires?	“It gives you a broad representation of how things are going on various levels.”	“We said to each other at the consultation that it is good for the doctor to ask these questions.”

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