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Table 1 Protocol for the use of PROMs in routine post-discharge follow-up visits in both participating hospitals

From: Exploring patients’ experience using PROMs within routine post-discharge follow-up assessment after stroke: a mixed methods approach

 

UMCU

Erasmus MC

Time between admission and visit

6 weeks

3–4 weeks

Healthcare care provider

Neurology nurse specialist and a rehabilitation physician

Neurology nurse specialist

Selection of PROMs

- USER-Participation

- EQ-5D+C

- PROMIS-10

- HADS

ICHOM outcome set¹ [33]:

- PROMIS-10

- Simplified modified Rankin Scale

Location for completing the questionnaire

Home (on paper)

Waiting room or at home (digital)

Contact consultation

In-person, at the outpatient stroke clinic

In-person, at the outpatient stroke clinic

  1. Abbreviations: PROM patient reported outcome measure, USER-Participation utrecht scale evaluation rehabilitation-participation, EQ-5D+C five-dimensional EuroQol+ additional cognitive item, PROMIS-10 patient reported outcomes measurement information system 10-question short form, HADS hospital anxiety and depression scale, ICHOM international consortium of health outcomes measurements
  2. ¹ICHOM outcomes set is a standard global set of patient reported outcome measures developed for various conditions such as stroke