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Journal of Patient-Reported Outcomes
Fig. 3 | Journal of Patient-Reported Outcomes

Fig. 3

From: Psychometric validation of the Pyruvate Kinase Deficiency Diary and Pyruvate Kinase Deficiency Impact Assessment in adults in the phase 3 ACTIVATE trial

Fig. 3

PKDIA item response distributions at baseline. aItems 1–8, 9b, 10, and 11b have response options coded to an 11-point numerical rating scale. Items 9 and 11 are two-part items where part a coded responses as to whether the topics were applicable to the patients and part b is only recorded if patients answered Yes to the part a items. Item 12 is rated on a 5-step verbal descriptor scale so only responses from 0 to 4 are available. See Table 1 for a full summary of PKDIA items. In brief, item 1, starting things you want to get done; 2, finishing things you want to get done; 3, bothered by appearance; 4, unwanted attention; 5, impact on household activities; 6, impact on social activities; 7, impact on leisure activities; 8, impact on social relationships; 9, impact on work/school; 10, concentration; 11, physical activity; 12, additional sleep or rest. PKDIA Pyruvate Kinase Deficiency Impact Assessment

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