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Table 1 Baseline demographics and clinical characteristics of children with EoE based on the caregiver report

From: Qualitative assessment of the suitability of the Dysphagia Symptom Questionnaire to monitor dysphagia in children aged 7–10 years with eosinophilic esophagitis

Demographic/clinical characteristic

Children with EoE (caregiver report)

7–8 years (n = 8)

9–10 years (n = 8)

Total (N = 16)

Age, years

  Mean (SD)

7.3 (0.5)

9.6 (0.5)

8.4 (1.3)

  Median (range)

7.0 (7.0–8.0)

10.0 (9.0–10.0)

8.5 (7.0–10.0)

Sex

  Male

5 (63)

7 (88)

12 (75)

  Female

3 (38)

1 (13)

4 (25)

Ethnicity

  Hispanic or Latino

1 (13)

1 (13)

2 (13)

  Not Hispanic or Latino

7 (88)

7 (88)

14 (88)

Race

  White

7 (88)

6 (75)

13 (81)

  Othera

1 (13)

2 (25)

3 (19)

Education level

  Primary/elementary schoolb

7 (88)

7 (88)

14 (88)

  Otherc

1 (13)

1 (13)

2 (13)

Age at diagnosis of EoE, years, mean (SD)

4.9 (1.1)

4.9 (2.1)

4.9 (1.6)

Has experienced difficulty swallowing food (ever)

7 (88)

8 (100)

15 (94)

Currently receiving dietary therapyd

7 (88)

6 (75)

13 (81)

Received prior dietary therapye

6 (75)

6 (75)

12 (75)

Frequency of EoE signs and symptoms exhibited by child

  Never

1 (13)

0 (0)

1 (6)

  1–2 days per week

4 (50)

5 (63)

9 (56)

  3–4 days per week

1 (13)

2 (25)

3 (19)

  5–6 days per week

1 (13)

0 (0)

1 (6)

  Every day

1 (13)

1 (13)

2 (13)

  1. All data are reported as n (%), unless otherwise stated
  2. aOther race includes: 'white and black/African American' (n = 2) and 'Latino' (n = 1)
  3. bPrimary/elementary school grades include: ‘1st’ (n = 1); ‘First Wesleyan’ (n = 1); ‘2nd’ (n = 3); ‘3rd’ (n = 1); ‘4th’ (n = 4); and ‘5th’ (n = 1). Three participants did not specify grade
  4. c'Homeschool' (n = 2)
  5. dCurrent dietary therapy reported by caregivers: 'avoiding dairy, chicken, turkey', 'no wheat and no dairy', 'no dairy, some nuts', 'soy, milk, peanuts, some tree nuts, gluten, eggs', 'gluten free', 'limitation', 'we avoid dairy (but not always) – reduced', 'strict avoidance (IgE): dairy, peanuts, tree nuts, eggs; twice daily swallowed budesonide slurry; once daily 30 mg PPI and not in remission', 'no dairy or wheat', 'elimination of egg, dairy, soy, almond, string beans', 'food elimination modified elemental', 'dairy, gluten, peanuts, tree nuts, bananas', and 'gluten, egg, dairy, soy, nuts'
  6. ePrior dietary therapy reported by caregivers: 'avoiding chicken, dairy, turkey, wheat, corn, eggs', '1st dairy elimination for 3 months (2017, wheat elimination for 3 months and dairy 2018)', '2 years', 'ages 2–3, allergies at all, milk, wheat, etc.', 'last 5 years', 'same, avoid dairy (but not always) – reduced', 'since birth/infancy for IgE since age 4 for EoE’, ‘always’, ‘eliminating: dairy, wheat, egg, soy, peanut, fish/shellfish, all meat, potatoes, rice, corn’, ‘top 8, beef and chicken ‘2017–2018', and '01/2017'
  7. EoE Eosinophilic esophagitis, IgE Immunoglobulin E, PPI Proton-pump inhibitor, SD Standard deviation