From: Self-management of patients with tracheostomy in the home setting: a scoping review
Study | Managing the therapeutic regimen | Managing role & behavior changes | Managing emotions | ||
---|---|---|---|---|---|
Tracheostomy care | Tracheostomy- related physical/ functional changes | Changed roles | Changed everyday behavior | Negative emotions | |
Sluis et al. [51]; 2020; Netherlands | Altered voice | Altered self-identity: loss of femininity Altered social life: family | |||
Altered appearance | Stigma | ||||
Bickford et al. [35]; 2019; Australia | Altered speech Altered appearance | Altered self-identity Altered social life: social roles | Altered eating | ||
Bickford et al. [53]; 2018; Australia | Altered voice | Altered self-identity Altered social life: social roles Altered professional life | Altered social participation: social eating/ eating out in public | Shame: clothing selection | |
Mertl et al. [25]; 2018; Czech republic | Altered appearance | Stigma | |||
Altered voice | Altered self-identity | ||||
Offerman et al. [57]; 2015; Netherlands | Altered appearance: disfigurement | Altered social life: sexual life | Shame Fear / anxiety for breathing problems | ||
Dooks et al. [3]; 2012; Canada | Altered airway: protecting the stoma in cold or dusty environment | Altered respiratory function: secretion / bronchial discharge, cough | Altered social participation: social eating / eating out in public | Shame | |
Altered speech | Anger: frustration | ||||
Altered appearance: body image | Altered social participation in social activities: social eating / eating out in public | Stigma | |||
Danker et al. [32]; 2010; Germany | Altered voice | Altered social participation in social activities | Distress, depression Stigma Fear / anxiety | ||
Singer et al. [63]; 2007; Germany | Altered social participation: social withdrawal | Stigma | |||
Armstrong et al. [49]; 2001; Australia | Altered speech Altered swallowing | Altered social participation: social eating /eating out in public | |||
Lennie et al. [68]; 2001; USA | Altered senses: smell, taste | Altered social participation: social eating / eating out in public |