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Table 2 Domains (n = 7) and components (n = 24) from the new conceptual model of resilience in dementia (from Windle et al. [9])

From: Development of an item pool for a patient reported outcome measure of resilience for people living with dementia

Resilience reserve

Individual resources

 

Psychological strengths

  

Maintaining sense of humour

  

Positivity, gratitude, hope and optimism

  

Acceptance of the diagnosis

  

Focus on what you can do

  

Openness about diagnosis

  

Faith or religious beliefs

  

Live for the day / in the present

  

Comparison to others less fortunate

 

Practical approaches for adapting to life with dementia

  

Maintaining pre-diagnosis activity

  

Adapting to new lifestyle/changing abilities

  

Comfort in the ordinary (e.g. listening to music/TV/coffee)

  

Practical adaptation

  

Educating oneself / seeking information

 

Continuing with hobbies, interests and activities

  

Participating in hobbies and activities

  

A sense of purpose

Community resources

 

Strong relationships with family and friends

  

Supportive carer

  

Support from family

  

Contact with others

 

Peer support and education

  

Advocacy and educating others about dementia

  

Joining and being part of a group

  

Support from peers (living with dementia)

 

Participating in community activities

  

Supportive community resources

  

Religious activity

Societal resources

 

The role of professional support services

  

Positive connections with healthcare professionals