Table 3 Interview-reported frequency of CG difficulties
Sign/symptom area | Participants discussed in Interviewsa (N = 17) | Adults with CG (n = 7) | Children (under 18 years) with CGb (n = 10) | |||||
|---|---|---|---|---|---|---|---|---|
Total adult patients discussed | Self-reported (n = 5) | Caregiver-reported (n = 2) | Total pediatric patients discussed |  < 2 years (n = 2) | 2–6 years (n = 5) | 7–12 years (n = 3) | ||
Emotional difficulties | 16 | 6 | 4 | 2 | 10 | 2 | 5 | 3 |
Social difficulties | 16 | 7 | 5 | 2 | 9 | 1 | 5 | 3 |
Thinking, memory, & learning difficulties | 14 | 7 | 5 | 2 | 7 | 1 | 3 | 3 |
Speech articulation difficulties | 12 | 4 | 3 | 1 | 8 | 2 | 5 | 1 |
Movement difficulties | 12 | 6 | 4 | 2 | 6 | 0 | 5 | 1 |
Language & communication difficulties | 8 | 4 | 3 | 1 | 4 | 0 | 3 | 1 |
Ovarian failure | 6 | 4 | 3 | 1 | 2 | 0 | 1 | 1 |
Vision problems related to cataracts | 3 | 2 | 1 | 1 | 1 | 1 | 0 | 0 |