Table 1 Socio-demographic and clinical characteristics of AYA cancer survivors and matched normative population
|  |  | AYA cancer survivors (N = 407) | Matched normative Population (N = 108) | P value |
|---|---|---|---|---|
n (%) | n (%) | |||
Gender | Male | 129 (31.7%) | 34 (31.5%) | 0.9 |
Female | 278 (68.3%) | 74 (68.5%) | ||
Age (at time of questionnaire), (mean (SD) in years) | Â | 45.5 (6.9) | 44.4 (10.3) | 0.2 |
23–40 years | 78 (19.2%) | 21 (19.4%) | ||
40–50 years | 220 (54.1%) | 58 (53.7%) | ||
50–60 years | 109 (26.8%) | 29 (26.9%) | ||
Married/partnered | Partner | 334 (82.1%) | 59 (54.6%) |  < .00011 |
Education level | No education or primary education | 2 (0.5%) | 4 (3.7%) |  < .00011 |
Secondary (vocational) education | 117 (28.7%) | 71 (66.36%) | ||
Higher (vocational) and University education | 288 (70.8%) | 32 (29.9%) | ||
Treatment/follow up status | Currently being treated or have to start treatment | 16 (3.9%) | NA | Â |
Completed treatment, now in follow-up | 194 (47.7%) | |||
Completed treatment, not in follow-up | 197 (48.4%) | |||
Time since diagnosis, (mean (SD) in years) | Â | 12.4 (4.3) | NA | Â |
5–10 years | 131 (32.2%) | |||
 ≥ 11–15 years | 151 (37.1%) | |||
 ≥ 16–20 years | 125 (30.7%) | |||
Type of cancer | Bone and soft tissue sarcoma | 19 (4.7%) | NA | Â |
Melanoma | 24 (5.9%) | |||
Colon and rectum | 11 (2.7%) | |||
Breast | 153 (37.6%) | |||
Female genitalia | 29 (7.1%) | |||
Germ cell tumors | 55 (13.5%) | |||
Lymphoid haematological malignancies | 44 (10.8%) | |||
Myeloid hematological malignancies | 13 (3.2%) | |||
Thyroid gland | 15 (3.7%) | |||
Central nervous system | 22 (5.4%) | |||
Other3 | 22 (5.3%) | |||
Primary treatment modality | Surgery | 338 (83.0%) | NA | Â |
Chemotherapy | 237 (58.2%) | |||
Radiotherapy | 231 (56.8%) | |||
Hormone therapy | 84 (20.6%) | |||
Targeted therapy | 40 (9.8%) | |||
Stem cell therapy | 14 (3.4%) |