Table 2 Caregiver feedback on YC-PEM content modifications
Proposed modification | Rationale | Codes | |||
|---|---|---|---|---|---|
Participation assessment | |||||
Yes, be more interactive rephrased as Yes, interact more | Upgrades to participation assessment further clarifies that changing participation is not about changing the child to ‘be more’; rather, changing participation is about creating opportunities for the child to get more involved in the type of activity | No, was not stuck Yes, was stuck | |||
Yes, be more helpful rephrased as Yes, help more | |||||
Environmental assessment | |||||
|---|---|---|---|---|---|
Proposed modification | Rationale | Codes | |||
Clarify items | Remove or simplify terms | Add item examples | Understanding environmental content modifications | ||
Home The attitudes and actions of babysitters, therapists, and other professionals who care for your child at home (e.g., microaggressive/ allyship behaviors) Community The attitudes and actions of other members of the community towards your child (e.g., microaggressive/allyship behavior of staff at stores and restaurants, instructors, coaches, childcare provider, other families) | Upgrades to environmental assessment include anti-racist terms (e.g., microaggressions, implicit bias) in the item examples, caregivers may be inclined to consider, report, and share their expertise about issues of this type | Home Lack of comprehension Community Confusion with location and job roles | Home Anti-racist terms may not be needed Assumed education level Include full question Community Anti-racist terms may be unnecessary or triggering Learning opportunity Use of simple words | Home Allyship example Microaggression example More descriptive example Community Microaggression example | Home All services are virtual Anti-racist term description Child’s interactions with individuals Monitoring who comes in the house Community Caregiver judged based on child’s behavior No one that looks like the child Positive community interactions support participation Strangers in the community |
Community Your child’s relationships with peers (e.g., neighbor) | N/A | Community Neighbor may not be needed | Community Expand or specific examples to clarify neighbor | Community Building social skills Difference in peer intimacy levels | |
Home Policies (e.g., inclusive/discriminatory policies pertaining to a residence or workplace, such as family leave or working from home, time off, work hours) Community Policies (e.g., inclusive/discriminatory policies by neighborhood, childcare, or employer) | Home Lack of comprehension Community Confusion over neighborhood policy Understands but can’t explain | Home Assumed health literacy Parenting policies Community Referring back to previous policy questions | Home More descriptive examples Community Specific neighborhood examples | Home Residence policies Work flexibility and acknowledgement of caregiver priorities Community Challenging childcare policies and procedures Safe and inclusive communities Securing and sustaining employment | |