Skip to main content

Table 2 Frequency^ of symptoms reported by 15 adult participants with SIH.

From: Patient experience of spontaneous intracranial hypotension (SIH): qualitative interviews for concept elicitation

Symptom as described by the patient (medical term)

Total (n)

Unprompted1 (n)

Head pain/headache

15

15

Ringing in ears / muffled hearing (tinnitus)

13

5

Ear fullness / pressure, and/or pain

9

6

Neck pain

9

5

Interscapular pain

9

3

Nausea

9

2

Fatigue

8

2

Cognitive/memory issues

8

1

Dizziness / light headedness / sense of imbalance (disequilibrium)

7

5

Difficulty finding words (anomic aphasia)

6

0

Head pressure

6

6

Sensitivity to sound (hyperacusis)

6

0

Sensitivity to light (photophobia)

6

1

Blurry vision / double vision (diplopia)

3

0

Hearing loss

3

1

Impaired speech (e.g., difficulty forming words, stutter)

2

2

Runny nose or liquid drainage (rhinorrhea)

2

1

Vomiting

2

0

Loss of mobility

1

1

Low back pain

1

1

Difficulty swallowing (dysphagia)

1

1

Eyeball pain (ophthalmalgia)

1

1

Sensitivity to smell (hyperosmia)

1

0

  1. 1Indicates the subset of total patients who offered this symptom themselves after the first open-ended question. The total n includes all patients who endorsed the symptom before/after specific prompting from the interviewer. ^Frequency counts only include participants who were “sure” about experiencing each symptom (some participants reported uncertainty about experiencing certain symptoms or the source of the symptom)