Experience and measurement of fatigue in adults with Crohn’s disease: results from qualitative interviews and a longitudinal 2-week daily diary pilot study

Regueiro, Miguel; Delbecque, Laure; Hunter, Theresa; Stassek, Larissa; Harding, Gale; Lewis, James

doi:10.1186/s41687-023-00612-9

Journal of Patient-Reported Outcomes

Table 6 FACIT-F descriptive characteristics, Days 1, 7, and 14

From: Experience and measurement of fatigue in adults with Crohn’s disease: results from qualitative interviews and a longitudinal 2-week daily diary pilot study

Measures	Day 1				Day 7				Day 14
Measures	N	Mean (SD)	Median	Range	N	Mean (SD)	Median	Range	N	Mean (SD)	Median	Range
FACIT-F^a
Total score^b	76	27.62 (12.82)	27.0	4.0–50.0	64	28.31 (13.75)	27.5	1.0–51.0	66	28.43 (12.99)	27.0	4.0–50.0
1: I feel fatigued	76	1.24 (1.21)	1.0	0.0–4.0	64	1.44 (1.18)	1.0	0.0–4.0	66	1.55 (1.18)	1.5	0.0–4.0
2: I feel weak all over	76	2.30 (1.21)	2.0	0.0–4.0	64	2.47 (1.36)	2.0	0.0–4.0	66	2.41 (1.24)	2.0	0.0–4.0
3: I feel listless (“washed out”)	76	2.16 (1.35)	2.0	0.0–4.0	64	2.19 (1.32)	2.0	0.0–4.0	66	2.33 (1.32)	2.0	0.0–4.0
4: I feel tired	76	1.28 (1.21)	1.0	0.0–4.0	64	1.45 (1.18)	1.0	0.0–4.0	66	1.50 (1.23)	1.0	0.0–4.0
5: I have trouble starting things because I am tired	76	1.83 (1.41)	2.0	0.0–4.0	64	2.05 (1.45)	2.0	0.0–4.0	66	2.03 (1.38)	2.0	0.0–4.0
6: I have trouble finishing things because I am tired	76	1.96 (1.39)	2.0	0.0–4.0	64	2.17 (1.38)	2.0	0.0–4.0	66	2.03 (1.41)	2.0	0.0–4.0
7: I have energy	76	1.78 (0.92)	2.0	0.0–4.0	64	1.69 (1.02)	1.0	0.0–4.0	66	1.80 (0.93)	2.0	0.0–4.0
8: I am able to do my usual activities	76	2.62 (0.95)	3.0	1.0–4.0	64	2.47 (1.08)	2.0	0.0–4.0	66	2.52 (1.01)	3.0	0.0–4.0
9: I need to sleep during the day	76	2.17 (1.33)	2.0	0.0–4.0	64	2.05 (1.45)	2.0	0.0–4.0	65	2.23 (1.40)	2.0	0.0–4.0
10: I am too tired to eat	76	3.16 (1.06)	4.0	0.0–4.0	64	3.14 (1.15)	4.0	0.0–4.0	66	3.14 (1.12)	3.5	0.0–4.0
11: I need help doing my usual activities	76	3.05 (1.18)	4.0	0.0–4.0	64	3.05 (1.20)	3.0	0.0–4.0	66	2.89 (1.28)	3.0	0.0–4.0
12: I am frustrated by being too tired to do the things I want to do	76	1.93 (1.57)	2.0	0.0–4.0	64	1.91 (1.58)	2.0	0.0–4.0	66	1.74 (1.49)	1.5	0.0–4.0
13: I have to limit my social activity because I am tired	76	2.14 (1.52)	2.0	0.0–4.0	64	2.25 (1.46)	2.0	0.0–4.0	66	2.27 (1.41)	2.0	0.0–4.0

^aThe mean scores for individual FACIT-F items are the mean Likert scale responses; higher scores indicate less severe levels of fatigue
^bThe FACIT-F total score can range from 0 to 52; higher scores indicate less fatigue/better quality of life
Abbreviations: FACIT-F, Functional Assessment of Chronic Illness Therapy–Fatigue; SD, standard deviation

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