Table 2 Descriptive information and reliability data for TBI-CareQOL measures
From: The reliability and validity of the TBI-CareQOL system in four diverse caregiver groups
| Â | M (SD) | Internal consistency | Floor % | Ceiling % |
|---|---|---|---|---|
Caregivers of persons with spinal cord injury (n = 19) | ||||
Caregiver-specific HRQOL | ||||
TBI-CareQOL caregiver-specific anxiety | 44.4 (7.92) | 0.90 | 21.05 | 0.00 |
TBI-CareQOL caregiver strain | 49.3 (7.62) | 0.88 | 0.00 | 0.00 |
Mental HRQOL | ||||
Neuro-QoL anxiety SF | 50.2 (8.75) | 0.84 | 36.84 | 0.00 |
Neuro-QoL depression SF | 49.2 (7.91) | 0.74 | 42.11 | 0.00 |
PROMIS anger SF | 50.8 (10.59) | 0.94 | 0.00 | 0.00 |
Neuro-QoL positive affect and well being SF | 54.2 (6.17) | 0.92 | 0.00 | 5.26 |
NIH toolbox self-efficacy SF | 47.2 (5.71) | 0.76 | 0.00 | 0.00 |
NIH toolbox perceived stress SF | 51.6 (11.44) | 0.88 | 0.00 | 0.00 |
Social HRQOL | ||||
Neuro-QoL ability to participate in SRA SF | 47.2 (10.24) | 0.95 | 5.26 | 15.79 |
Physical HRQOL | ||||
PROMIS sleep related impairment SF | 54.1 (8.39) | 0.91 | 0.00 | 0.00 |
PROMIS fatigue SF | 51.3 (9.96) | 0.95 | 10.53 | 0.00 |
Caregivers of Persons with Huntington Disease (n = 21) | ||||
Caregiver-specific HRQOL | ||||
TBI-CareQOL caregiver-specific anxiety | 51.4 (7.19) | 0.90 | 0.00 | 0.00 |
TBI-CareQOL caregiver strain | 50.4 (7.02) | 0.89 | 0.00 | 0.00 |
Mental HRQOL | ||||
Neuro-QoL anxiety SF | 54.5 (8.03) | 0.92 | 14.29 | 0.00 |
Neuro-QoL depression SF | 51.4 (9.96) | 0.92 | 38.10 | 0.00 |
PROMIS anger SF | 51.3 (12.02) | 0.95 | 0.00 | 0.00 |
Neuro-QoL positive affect and well being SF | 51.9 (7.07) | 0.97 | 0.00 | 0.00 |
NIH toolbox self-efficacy SF | 48.0 (8.75) | 0.94 | 0.00 | 0.00 |
NIH toolbox perceived stress SF | 46.1 (13.49) | 0.93 | 0.00 | 0.00 |
Social HRQOL | ||||
Neuro-QoL ability to participate in SRA SF | 49.6 (7.61) | 0.88 | 0.00 | 9.52 |
Physical HRQOL | ||||
PROMIS sleep related impairment SF | 51.4 (8.34) | 0.93 | 0.00 | 0.00 |
PROMIS fatigue SF | 49.0 (9.05) | 0.94 | 4.76 | 0.00 |
Caregivers of persons with HCT (n = 30) | ||||
Caregiver-specific HRQOL | ||||
TBI-CareQOL caregiver-specific anxiety | 47.2 (5.86) | 0.78 | 3.33 | 0.00 |
TBI-CareQOL caregiver strain | 47.6 (7.12) | 0.84 | 3.33 | 0.00 |
Mental HRQOL | ||||
Neuro-QoL anxiety SF | 53.8 (8.25) | 0.88 | 16.67 | 0.00 |
Neuro-QoL depression SF | 50.1 (7.40) | 0.76 | 33.33 | 0.00 |
PROMIS anger SF | 49.6 (8.99) | 0.89 | 0.00 | 0.00 |
Neuro-QoL positive affect and well being SF | 53.8 (5.16) | 0.93 | 0.00 | 0.00 |
NIH toolbox self-efficacy SF | 50.4 (9.01) | 0.90 | 0.00 | 6.67 |
NIH toolbox perceived stress SF | 49.5 (10.22) | 0.90 | 0.00 | 0.00 |
Social HRQOL | ||||
Neuro-QoL ability to participate in SRA SF | 46.0 (7.78) | 0.90 | 3.33 | 3.33 |
Physical HRQOL | ||||
PROMIS sleep related impairment SF | 51.2 (10.97) | 0.93 | 10.00 | 0.00 |
PROMIS fatigue SF | 50.4 (10.38) | 0.94 | 3.33 | 3.33 |
Caregivers of persons with traumatic brain injury (n = 139) | ||||
Caregiver-specific HRQOL | ||||
TBI-CareQOL caregiver-specific anxiety | 51.2 (9.18) | 0.92 | 7.19 | 0.00 |
TBI-CareQOL caregiver strain | 50.0 (8.69) | 0.88 | 3.60 | 0.72 |
Mental HRQOL | ||||
Neuro-QoL anxiety SF | 57.1 (7.80) | 0.86 | 7.91 | 0.72 |
Neuro-QoL depression SF | 53.3 (7.27) | 0.84 | 15.83 | 0.00 |
PROMIS anger SF | 52.0 (9.47) | 0.91 | 0.00 | 0.00 |
Neuro-QoL positive affect and well being SF | 52.9 (5.81) | 0.90 | 0.00 | 1.44 |
NIH toolbox self-efficacy SF | 47.2 (8.90) | 0.91 | 0.00 | 1.44 |
NIH toolbox perceived stress SF | 54.0 (10.53) | 0.89 | 0.00 | 0.00 |
Social HRQOL | ||||
Neuro-QoL ability to participate in SRA SF | 47.0 (8.43) | 0.91 | 2.16 | 8.63 |
Physical HRQOL | ||||
PROMIS sleep related impairment SF | 54.9 (9.28) | 0.92 | 2.16 | 0.72 |
PROMIS fatigue SF | 52.4 (9.97) | 0.94 | 7.19 | 4.32 |