Table 1 Sample characteristics
From: The reliability and validity of the TBI-CareQOL system in four diverse caregiver groups
Variable | HD | SCI | HCT | TBI |
|---|---|---|---|---|
(n = 21) | (n = 19) | (n = 30) | (n = 139) | |
Sex (%) | ||||
Female | 62 | 74 | 73 | 78 |
Male | 38 | 26 | 23 | 22 |
Not reported | 0 | 0 | 3 | 0 |
Race (%) | ||||
American Indian or Alaska Native (including all Original Peoples of the Americas) | 0 | 0 | 0 | 1 |
Asian | 0 | 11 | 3 | 3 |
Black or African American (including Africa, Caribbean) | 0 | 11 | 0 | 17 |
White or Caucasian (including Middle Eastern) | 100 | 74 | 90 | 73 |
More than one race | 0 | 5 | 7 | 5 |
Missing | 0 | 0 | 0 | 1 |
Ethnicity (%) | ||||
Non-Hispanic | 90 | 95 | 100 | 83 |
Hispanic | 10 | 0 | 0 | 17 |
Missing | 0 | 5 | 0 | 0 |
Marital status (%) | ||||
Married or Cohabitating | 81 | 89 | 80 | 76 |
Not married but has significant other | 0 | 5 | 0 | 6 |
Single and divorced | 14 | 0 | 10 | 9 |
Single and never married | 0 | 5 | 10 | 7 |
Single and widowed | 0 | 0 | 0 | 1 |
Missing | 5 | 0 | 0 | 0 |
Work status (%) | ||||
Full-time (at least 40Â h per week) | 52 | 42 | 43 | 48 |
Part-time | 5 | 26 | 7 | 11 |
Homemaker | 0 | 0 | 3 | 9 |
Student | 0 | 0 | 3 | 4 |
Retired | 43 | 16 | 27 | 20 |
Disabled | 0 | 0 | 0 | 4 |
Unemployed | 0 | 16 | 17 | 4 |
Age (years) | ||||
M (SD) | 60.8 (9.39) | 50.4 (15.09) | 54.4 (14.33) | 51.2 (15.35) |
Time in caregiver role (years) | ||||
M (SD) | 9.0 (7.69) | 13.0 (7.6) | 2.4 (3.6) | 7.2 (5.76) |
Relationship to patient (%) | ||||
Partner/Spouse | 71 | 42 | 63 | 45 |
Child | 0 | 21 | 3 | 12 |
Parent | 14 | 11 | 20 | 28 |
Sibling | 10 | 5 | 10 | 10 |
Other family | 0 | 0 | 0 | 1 |
In-law | 0 | 5 | 0 | 0 |
Friend | 5 | 16 | 3 | 1 |
Missing | 0 | 0 | 0 | 1 |
Time caregiving (%) | ||||
1-2Â h/day or less | 48 | 21 | 33 | 55 |
3-4Â h/day (half a working day) | 38 | 32 | 37 | 21 |
5-8Â h/day (full working day) | 10 | 26 | 10 | 10 |
9-12Â h/day | 0 | 0 | 7 | 4 |
 > 12 h/day or round-the-clock care | 5 | 21 | 10 | 10 |
Missing | 0 | 0 | 3 | 0 |
Age of care-recipient (years) | ||||
M (SD) | 57.9 (9.61) | 48.1 (14.97) | 54.1 (16.31) | 43.3 (16.54) |
Sex of care-recipient (%) | ||||
Female | 48 | 37 | 27 | 15 |
Male | 52 | 63 | 73 | 85 |
UHDRS independence scale (%) | ||||
30: minimal assistance in own feeding, bathing, toileting | 0 | 0 | 3 | – |
40: chronic care facility needed; limited self-feeding, liquified diet | 0 | 0 | 0 | – |
50: 24-h supervision appropriate; assistance required for bathing, eating, toileting | 24 | 63 | 0 | – |
60: minor assistance in dressing, toileting, bathing; food must be cut for subject | 14 | 21 | 7 | – |
70: self-care maintained for bathing, limited household duties (cooking and use of knives), driving terminates; unable to manage finances | 14 | 5 | 27 | – |
80: pre-disease level of employment changes or ends; cannot perform household chores to pre-disease level, may need help with finances | 10 | 5 | 23 | – |
90: no physical care needed if difficult tasks are avoided | 19 | 5 | 23 | – |
100: no special care needed | 19 | 0 | 13 | – |
Missing | 0 | 0 | 3 | – |