Table 3 Ped-PRO-CTCAE items presenting comprehension difficulties in rounds 1–3 with subsequent revisions

General Pain

Maumivu

Moved to different question order in the survey

Maumivu

N/A

N/A

N/A

Problems with not being able to poop

Tatizo la kutopata haja kubwa

Added alternative word meaning “defecate” to probe and compare if “poop” or “defecate” was more comprehensive

Tatizo la kutopata choo/haja kubwa

N/A

N/A

N/A

Pain in your mouth or throat

Maumivu katika kinywa chako au koo

Change word “in” to “inside” your mouth or throat

Maumivu katika mdomo au koo

N/A

N/A

N/A

Numbness or tingly feeling in your hands or feet

Kuhisi ganzi

Add example “the feeling you get when you sleep on your arm or leg”

Kuhisi ganzi (Inafanana na ile hali unayopata baada ya kulalia mkono au kukalia mguu moja vibaya)

Add example “hand or foot falling asleep” to the question

Kuhisi ganzi (kama mkono au mguu kulala)

1/4 (25)

Worried or nervous

Woga au hofu

Add example of “feeling you get before having to take a test”

Woga au hofu

Removed example and changed word for worried to “wasi wasi”

Wasiwasi

0/4 (0)

Problems Sleeping

Tatizo la kupata usingiz

Add “or” in the question stem: Trouble falling asleep or waking up

Tatizo la kupata usingiz

Word change from “kupata” to “kutopata”

Tatizo la kutopata usingizi

0/4 (0)