Table 1 Characteristics of caregivers included in this study and their children with MLD
Characteristic | Total (N = 12) |
|---|---|
Caregivers, N = 12 | |
Sex, n (%) | |
Women | 10 (83) |
Men | 2 (17) |
Age | |
Mean (range), years | 37.4 (30–51) |
Race/ethnicity, n (%) | |
White | 10 (83) |
White/Asian | 1 (8) |
White/Pacific Islander | 1 (8) |
Employment, n (%) | |
Full-time | 6 (50) |
Part-time | 2 (17) |
Not employed | 4 (33) |
Education, n (%) | |
High school | 2 (17) |
Some college | 5 (42) |
College degree | 5 (42) |
Geographical region in the USA, n (%) | |
Northeast | 2 (17) |
Southeast | 4 (33) |
Midwest | 2 (17) |
West | 4 (33) |
Children with MLD, N = 12 | |
Sex, n (%) | |
Boys | 7 (58) |
Girls | 5 (42) |
Age at time of interviewa | |
Mean (range), years | 6.1 (3–11) |
Age at symptom onset | |
Mean (range), months | 17.6 (6–24) |
Age at diagnosis | |
Mean (range), months | 29.8 (22–48) |
Race/ethnicity, n (%) | |
White | 10 (83) |
White/Asian | 1 (8) |
White/Pacific Islander | 1 (8) |