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Journal of Patient-Reported Outcomes

Table 4 Test–Retest Reliability of the cTTP-PEQ Domain Scores

From: Psychometric evaluation of a patient-reported outcomes instrument for congenital thrombotic thrombocytopenic purpura

Domain

n

Intraclass Correlation

Pain/Bruising

24

0.849

Cognitive Impairment

24

0.943

Visual Impairment

24

0.913

Mood

24

0.762

Treatment Burden

18

0.896

Total cTTP score

24

0.955

  1. Analysis includes participants who reported “no change” on PGI-C on Day 14. Treatment Burden items were completed only by those who received TTP treatment in the past 2 weeks
  2. Domains are based on a conceptual model because the small sample size did not allow for domains to be constructed using factor analysis
  3. cTTP Congenital thrombotic thrombocytopenic purpura, cTTP-PEQ Congenital Thrombotic Thrombocytopenic Purpura–Patient Experience Questionnaire, PGI-C Patient Global Impression of Change, PRO Patient-reported outcome, TTP Thrombotic thrombocytopenic purpura
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