Table 3 Names of all PROMs included, their abbreviations, reference and percentage of items measuring communicative participation

Aphasia communication outcome measure (ACOM)

[37]

59

33 (55.9)

17

2

1

12

1

Aphasia Impact Questionnaire (AIQ)

[38]

21

5 (23.8)

5

Assessment of Language Use in Social Contexts for Adults (ALUSCA)

[39]

91

91 (100)

61

22

4

4

Communication and language assessment questionnaire for persons with multiple sclerosis (CLAMS)

[40]

11

0 (0)

Communication confidence rating scale for Aphasia (CCRSA)

[41]

10

3 (30)

2

1

Communication Disability Profile (CDP)

[42]

35

13 (37.1)

5

8

Communication Outcome after Stroke (COAST)

[43]

20

7 (35)

5

2

Communicative Activities Checklist (COMACT)

[44]

45

14 (31.1)

6

1

6

1

Communicative Participation Item Bank (CPIB)

[20]

46

46 (100)

19

1

2

21

3

Conversation and Communication Questionnaire for People with Aphasia (CCQA)

[45]

14

4 (28.6)

4

Dysarthria Impact Profile (DIP)

[46]

52

15 (28.8)

9

1

5

Emotional Communication in Hearing Questionnaire (EMO-CHeQ)

[47]

16

7 (43.8)

6

1

Experienced Communication in Dementia Questionnaire (ECD-P)

[48]

24

15 (62.5)

8

7

Freiburg Questionnaire of linguistic pragmatics (FQLP)

[49]

11

2 (18.2)

1

1

HDQLIFE Speech Difficulties

[50]

27

6 (22.2)

6

Hearing Screening of the Elderly (SHSE)

[51]

20

10 (50)

8

1

1

Speech handicap index (SHI)

[52]

30

9 (30)

8

1

Living with Dysarthria (LwD)

[53]

50

19 (38)

12

1

6

Neuro-QoL Scale v1.0 - Communication

[54]

5

2 (40)

2

Overall Assessment of the Speaker’s Experience of Stuttering - Adults (OASES-A)

[55]

100

32 (32)

15

7

6

4

Quality of Life in the Speaker with Dysarthria (QOL-DyS)

[56]

40

25 (62.5)

16

8

1

Quality of life questionnaire Aphasia (QLQA)

[57]

37

14 (37.8)

12

2

Satisfaction with Communication in Everyday Speaking Situations Scale (SCESS)

[58]

1

1 (100)

1

Self-efficacy for situational communication management questionnaire (SESMQ)

[59]

20

16 (80)

1

1

12

1

1

Stroke Communication Scale (SCS)

[60]

35

5 (14.3)

4

1

Stuttering Generalization Self Measure (SGSM)

[61]

18

9 (50)

1

7

1

Tinnitus and Hearing Survey (THS)

[62]

10

3 (30)

3

Tinnitus Functional Index (TFI)

[63]

25

2 (8)

2

Tinnitus Primary function Questionnaire (TPF)

[64]

20

0 (0)

Traumatic Brain Injury - Quality of life Communication Item Bank (TBI-QOL communication)

[65]

31

17 (54.8)

11

6

Verbal Activity Log (VAL)

[66]

12

11 (91.7)

6

3

2

Vocal Fatigue Index (VFI)

[67]

19

1 (5.3)

1