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Table 4 Cognitive debriefing participant feedback on the Early Parkinson’s Mobility PRO instrument

From: Development and early qualitative evidence of two novel patient-reported outcome instruments to assess daily functioning in people with early-stage Parkinson’s

Item Name

Early Parkinson’s Mobility PRO

Group A and B*

N = 59

Group B

N = 29

Most relevant

n

Not relevant

n

Clarity issue

n

Response problem

n

Recall period

n

Difficulty getting out of a chair

4

2

4

3

2

Difficulty sitting from standing up

1

2

1

1

Difficulty bending

3

2

4

Difficulty sitting for long periods

7

3

6

1

Difficulty standing for long periods

7

2

3

1

Difficulty rolling over in bed

3

2

Difficulty walking for a long time

1

6

4

1

Difficulty walking inside the house

1

1

Difficulty walking outdoors

1

5

Difficulty walking in unfamiliar places

1

1

6

Difficulty walking in a crowded room or area

1

Difficulty with walking down the stairs

1

1

Difficulty with walking up the stairs

1

Dragging your leg or foot when walking

9

3

4

1

Needing to concentrate on your walking

9

3

3

1

Needing to put more effort on your walking

5

2

5

2

1

Problems with your arm swing when walking

17

1

2

Problems with your balance when standing still

4

1

2

2

Problems with your balance when walking

7

1

1

2

Problems with your balance when moving

2

2

5

1

Clumsiness when walking

2

1

Shuffling when walking

1

1

1

Sudden freezing when walking

1

2

2

Walking with a limp

2

3

2

Stumbling when walking

2

1

2

Falling

3

1

1

  1. PRO: patient-reported outcome
  2. *Group A, N = 30; Group B, N = 29. One transcript from Group A was unable to be analysed due to poor audio quality, resulting in 30, rather than 31, cognitive debriefing participants for this group
  3. No items were reported as being least relevant
  4. Items with greatest clarity issues are marked in bold