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Table 2 Cognitive debriefing participant feedback on the Early Parkinson’s Function Slowness PRO instrument

From: Development and early qualitative evidence of two novel patient-reported outcome instruments to assess daily functioning in people with early-stage Parkinson’s

Item name

Early Parkinson’s Function Slowness PRO

Group A and B*

N = 59

Group A

N = 30

Most relevant

n

Less/least relevant

n

Not relevant

n

Clarity issue

n

Response problem

n

Handwriting

13

1

1

1

3

Typing

4

1

1

1

Using a computer mouse

7

1

1

3

Doing up buttons

5

2

2

1

Doing up a zip

1

2

1

3

Brushing your teeth

5

4

1

1

Opening jars, or bottles

3

1

1

5

Using a knife

1

2

2

1

1

Using a fork

1

2

2

1

3

Getting a card or money in or out of a wallet

9

1

1

1

Counting money

5

3

2

1

1

Using a smart phone or tablet

3

1

2

2

Opening envelopes

1

2

1

Taking a plug in or out of a socket

1

Accessing or using your pockets

5

1

Buckling a seat belt

1

1

3

Reaching for things high up on a shelf

1

5

1

1

Carrying or moving things

2

1

1

1

2

Lifting or carrying things

3

1

1

4

1

Walking inside the house

1

3

1

2

Climbing up or down the stairs

3

3

1

4

Walking on uneven ground

5

2

2

Walking on a busy street or crowded area

2

1

2

Getting in or out of a chair

2

2

1

Getting in or out of bed

3

1

1

Putting on shoes

3

1

1

1

1

Dressing

6

4

2

2

Having a shower

2

3

1

Preparing food or cooking

5

1

2

1

Eating

4

1

2

1

Performing household chores

2

1

1

1

Running errands outside the house

1

1

1

1

Doing your hobbies or other leisure activities

4

2

1

2

Performing your work or tasks within your daily routine

1

1

2

Multitasking

4

1

6

2

Keeping things organized

1

1

4

2

Finding the right word to say in the middle of a conversation

6

1

3

Speaking

3

1

3

Thinking or processing things

2

1

Reading

1

2

1

1

Following written instructions

1

1

1

Reacting to things in real time to avoid potential accidents

1

1

7

  1. PRO: patient-reported outcome
  2. *Group A, N = 30; Group B, N = 29. One transcript from Group A was unable to be analysed due to poor audio quality, resulting in 30, rather than 31, cognitive debriefing participants for this group
  3. No issues were identified within the recall period
  4. Items with greatest clarity issues are marked in bold