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Table 1 Cognitive debriefing participant characteristics

From: Development and early qualitative evidence of two novel patient-reported outcome instruments to assess daily functioning in people with early-stage Parkinson’s

  

Participant sample

UK (N = 30)

USA (N = 30)

Age (years)

Mean (SD)

64.1 (10.3)

64.1 (8.3)

 

Range

37–84

45–75

Gender, n (%)

Female

19 (63)

15 (50)

 

Male

11 (37)

15 (50)

Type, n (%)

Unilateral

24 (80)

18 (60)

 

Bilateral

6 (20)

12 (40)

Year(s) since formal diagnosis, n*

Mean (SD)

4.9 (3.7)

2.0 (0.8)

 

Range

1–17

1–3

 

Median

4

1

 

Less than 2 years, n (%)

7 (23)

20 (67)

 

More than 2 years, n (%)

23 (77)

8 (27)

Ethnicity, n (%)

White

30 (100)

27 (90)

 

Black

2 (7)

 

Asian

1 (3)

Education, n (%)*

PhD/DPhil

1 (3.5)

 

Postgraduate degree

5 (17)

12 (40)

 

Bachelor/Undergraduate/Associate degree

9 (31)

10 (33)

 

Pre-higher education

12 (40)

8 (27)

 

Other

2 (7)

Employment status, n (%)

Working full-time

5 (16)

8 (27)

 

Working part-time

2 (7)

5 (17)

 

Unemployed

2 (7)

4 (13)

 

Retired

21 (70)

13 (43)

Living situation, n (%)

Living alone

8 (26)

7 (23)

 

Living as couple

20 (67)

14 (47)

 

Living with family

2 (7)

9 (30)

  1. A-Level: Advanced Level; DPhil: Doctor of Philosophy; GCSE: General Certificate of Secondary Education; GED: General Educational Development; HNC: Higher National Certificate; NVQ: National Vocational Qualification; O-Level: Ordinary Level; PhD: Doctor of Philosophy; SD, standard deviation; UK, United Kingdom; USA, United States of America
  2. *This table presents sample characteristics of available data. The data for year(s) since formal diagnosis were missing for two cognitive debriefing participants from the USA and data for the education status of one cognitive debriefing participant from the UK was missing
  3. Pre-higher education includes: GCSE/O-Level equivalent; A-Level/Level 3 NVQ or equivalent; and HNC/Level 4 NVQ or equivalent for UK cognitive debriefing participants, and high school graduate/GED equivalent and some college for USA cognitive debriefing participants