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Table 1 Patient characteristics

From: Qualitative concept elicitation and cognitive debriefing interviews of symptoms, impacts and selected customized PROMIS® Short Forms: a study in patients with axial spondyloarthritis

Characteristic

Total sample (N = 28)

Age (years), mean (range)

52.8 (32–79)

Male, n (%)

16 (57)

Current living status, n (%)*

 Living with partner

17 (61)

 Living alone

6 (21)

 Living with children

5 (18)

 Living with other family members

3 (11)

 Living with parent(s)

1 (4)

Race, n (%)

 White/Caucasian/European

20 (71)

 African American/African Heritage

5 (18)

 White Arabic/North African Heritage

1 (4)

 Mixed race

1 (4)

 Other

1 (4)

Highest level of education, n (%) [German option]

 Some high school (15 to 17) [Secondary school]

12 (43)

 College or university degree (2/4 years) [University degree]

5 (18)

 Some years of college (17 to 18) [University visit]

5 (18)

 Graduate or professional degree [Postgraduate degree]

5 (18)

 High school diploma or GED [High school]

1 (4)

Work status, n (%)

 Working full-time

12 (43)

 Not working due to axSpA

5 (18)

 Retired

5 (18)

 Looking for work

2 (7)

 Full-time homemaker

1 (4)

 Working part-time

1 (4)

 Unemployed

1 (4)

 Student

1 (4)

Time since diagnosis date (years), mean (range)

9.5 (0.3–31.3)

Type of axSpA, n (%)

 Ankylosing spondylitis

16 (57)

 nr-axSpA

12 (43)

Current BASDAI score, mean (range)

6.4 (4–10)

ASAS features currently being experienced, n (%)

 Inflammatory back pain

27 (96)

 Arthritis

18 (64)

 Elevated CRP

16 (57)

 Good response to NSAIDs

13 (46)

 HLA-B27

9 (32)

 Crohn’s/colitis

5 (18)

 Psoriasis

5 (18)

 Enthesitis (heel/elbow)

3 (11)

 Dactylitis

3 (11)

 Uveitis

2 (7)

 Family history of SpA

2 (7)

Patient-reported health in general, n (%)

 Excellent

0 (0)

 Good

12 (43)

 Fair

12 (43)

 Poor

3 (11)

 Very poor

1 (4)

Presence of co-morbid conditions, n (%)

 Yes

20 (71)

 No

8 (29)

Co-morbid conditions, n (%)

 Ulcerative colitis

5 (18)

 Hypertension

4 (14)

 Psoriasis

4 (14)

 Depression/anxiety

3 (11)

 Gastroesophageal reflux disease

2 (7)

 Asthma

2 (7)

 Migraine with/without aura

2 (7)

  1. *More than one option was selected by some participants
  2. Two participants had missing data for time since diagnosis date
  3. Comorbidities with n = 1 are not reported
  4. ASAS Assessment of Spondylarthritis international Society, axSpA axial spondyloarthritis, BASDAI Bath Ankylosing Spondylitis Disease Activity Index, CRP C-reactive protein, HLA‑B27 human leukocyte antigen B27, nr non-radiographic, NSAID non-steroidal anti-inflammatory drug, SpA spondylarthritis