Table 3 Top sub-concepts by Hemo-TEM domain
Sub-concept by Hemo-TEM domain | Prophylactic regimen (n = 19) n (%) | On demand regimen (n = 5) n (%) | Inhibitor regimen (n = 6) n (%) | Patient total (n = 30) n (%) |
|---|---|---|---|---|
Injection difficulties | ||||
Inserting the needle correctly | 10 (53) | 2 (40) | 4 (67) | 16 (53) |
Fitting treatment into daily schedule | 8 (42) | 3 (60) | 2 (33) | 13 (43) |
Treatment frequency | 10 (53) | 0 | 3 (50) | 13 (43) |
Time to prepare and administer treatment | 9 (47) | 1 (20) | 3 (50) | 13 (43) |
Finding a good site/vein | 7 (37) | 1 (20) | 1(17) | 9 (30) |
Adherence Issues | Â | Â | Â | Â |
Missing treatments | 12 (63) | 1 (20) | 3 (50) | 16 (53) |
Delayed treatments | 10 (53) | 0 | 2 (33) | 12 (40) |
Refrigerating medication | 8 (42) | 0 | 2 (33) | 10 (33) |
Remembering to administer treatment | 5 (26) | 1 (20) | 1 (17) | 7 (23) |
Infusing per doctor's recommendation/instructions | 5 (26) | 1 (20) | 0 | 6 (20) |
Emotional burden of treatment | Â | Â | Â | Â |
Worry | 9 (47) | 3 (60) | 2 (33) | 14 (47) |
Emotionally resolved/used to treatment | 5 (26) | 2 (40) | 4 (67) | 11 (37) |
Anxiety/nervousness | 6 (32) | 2 (40) | 0 | 8 (27) |
Relief/comfort | 4 (21) | 2 (40) | 2 (33) | 8 (27) |
Denial/resistance | 7 (37) | 0 | 0 | 7 (23) |
Treatment-related physical burden | Â | Â | Â | Â |
Blown veins | 10 (53) | 2 (40) | 3 (50) | 15 (50) |
Pain | 12 (63) | 1 (20) | 2 (33) | 15 (50) |
Scarring | 9 (47) | 2 (40) | 3 (50) | 14 (47) |
Soreness | 7 (37) | 0 | 4 (67) | 11 (37) |
Coldness | 7 (37) | 2 (40) | 1 (17) | 10 (33) |
Interference with daily life |  |  |  |  |
Travel | 12 (63) | 4 (80) | 6 (100) | 22 (73) |
Miss a day of work | 4 (21) | 1 (20) | 2 (33) | 8 (27) |
Social activities | 6 (32) | 0 | 1 (17) | 7 (23) |
Stopping activities to treat bleed | 3 (16) | 2 (40) | 0 | 5 (17) |
Leave work early/arrive late | 4 (21) | 0 | 1 (17) | 5 (17) |