Table 2 Cognitive debriefing adolescent respondent sample: summary

Age

 Mean

14.4

12.5

14.3

 Median

14

12.5

14

 (range)

(12–17)

(12–13)

(12–17)

Race/Ethnicity, n (%)

 Asian-American

1 (5.6)

0 (0)

1 (5)

 Black/African-American

2 (11.1)

0 (0)

2 (10)

 Latino/Hispanic

1 (5.6)

0 (0)

1 (5)

 White/Caucasian

13 (72.2)

2 (100)

15 (75)

 Another Group Not Listed

1 (5.6)

0 (0)

1 (5)

Current School Grade, n (%)

 6

2 (11.1)

1 (50)

3 (15)

 7

2 (11.1)

1 (50)

3 (15)

 8

3 (16.7)

0 (0)

3 (15)

 9

4 (22.2)

0 (0)

4 (20)

 10

3 (16.7)

0 (0)

3 (15)

 12

2 (11.1)

0 (0)

2 (10)

 High school graduate/college

1 (5.6)

0 (0)

1 (5)

 Another Group Not Listed

1 (5.6)

0 (0)

1 (5)

Hemophilia Type, n (%)

 Type A

17 (5.6)

2 (100)

19 (95)

 Type B

1 (94.4)

0 (0)

1 (5)

Hemophilia Severity Level, n (%)

 Severe

18 (100)

2 (100)

20 (100)

Number of comorbidities

 Mean

.38

1

.45

 Median

0

1

0

 (range)

(0–2)

(1)

(0–2)

Lifetime Inhibitor Status, n (%)

 Current inhibitor

0 (0)

2 (100)

2 (10)

  … inhibitor status high

-

1 (50)

1 (5)

 Past inhibitor

3 (16.7)

0 (0)

3 (15)

 Never had inhibitor

15 (83.3)

0 (0)

15 (75)

% of Time Self-Infuses Without Assistance

 Mean

86.3

96.5

87.3

 Median

98

96.5

98

 (range)

(50–100)

(94–99)

(50–100)

Current Regimen, n (%)

 Current Inhibitor regimen

–

2 (100)

2 (10)

 Prophylactic, regimen (no current inhibitor)

18 (100)

–

18 (90)