Table 1 Main characteristics of the included Patient-Reported Outcome Measures (PROMs)

DISABKIDS

12/37

8–16

Chronic Disease

Yes

4 weeks

5-point Likert-scale

Physical limitation (2/6)

Treatment (2/6)

Independence (2/6)

Emotions (2/7)

Social exclusion (2/6)

Social inclusion (2/6)

[52,53,54,55, 68,69,70,71]

KIDSCREEN

10/27/52

8–18

Generic

Yes

Last week

5-point Likert-scale

KIDSCREEN 10:

 Unidimensional trait (10)

 Overall health perception (1)

[47, 48, 72,73,74]

KIDSCREEN 27:

 Physical well-being (5)

 Psychological well-being (7)

 Autonomy and parents (7)

 Social support and peers (4)

 School environment (4)

KIDSCREEN 52:

Physical well-being (5)

 Psychological well-being (6)

 Moods and emotions (7)

 Self-perception (5)

 Autonomy (5)

 Parent relations and home (6)

 Social support and peers (6)

 School environment (6)

 Social acceptance/bullying (3)

 Financial resources (3)

KINDL-R

Generic

Kid

7–13

Generic

Yes

Past week

5-point Likert-scale

Physical (4)

Emotional (4)

Self-esteem (4)

Family (4)

Friends (4)

School (4)

[49, 50, 75,76,77]

KINDL-R

Oncology Module

Kid

7–17

Cancer

No

Past week

3-/4-/5-point Likert-scale

Physical well-being (4)

Psychological well-being (4)

Friends (3)

School (2)

Treatment (11)

[60]

PAC-QoL Child (provisional)

8–12

Advanced cancer

No

Last week

4-point Likert-scale

Physical comfort (?)

Psychological well-being (?)

Social interaction (?)

Resilience (?)

Quality of care (?)

[61, 62]

PedsQL

Brain Tumor Module

Child

8–12

Brain Tumor

Yes

7 days

5-point Likert-scale

Cognitive problems (7)

Pain and hurt (3)

Movement and balance (3)

Procedural anxiety (3)

Nausea (5)

Worry (3)

[63, 78,79,80,81]

PedsQL

Cancer Module 3.0

Child

8–12

Cancer

Yes

one month

5-point Likert-scale

Pain and hurt (2)

Nausea (5)

Procedural anxiety (3)

Treatment anxiety (3)

Worry (3)

Cognitive problems (5)

Perceived physical appearance (3)

Communication (3)

[42, 78,79,80]

PedsQL

Generic Core Scale 4.0

Child

8–12

Generic

Yes

one month

5-point Likert-scale

Health and activities (8)

Feelings (5)

Social functioning (5)

School (5)

[42, 51, 78,79,80, 82,83,84]

PROMIS v2.0

Pediatric Profile

25/37/49

8–17

Generic and/or chronic Disease

Yes

7 days

5-point Likert-scale

Physical function mobility (4/6/8)

Anxiety (4/6/8)

Depressive symptoms (4/6/8)

Fatigue (4/6/8)

Peer relationships (4/6/8)

Pain interference (4/6/8)

Pain intensity (1)

[56, 57, 85,86,87,88,89,90,91,92,93,94,95,96,97,98,99]

QOLCC-7-12

7–12

Cancer

Yes

N/A

N/A

Physical function (5)

Psychological function (6)

Social function (7)

Treatment/symptoms (6)

Cognitive function (6)

Understanding illness (4)

Patient-communication (6)

[64, 65, 100, 101]

SQOLPOP

7–12

Cancer

Yes

N/A

N/A

N/A

[66, 67]

TACQOL

6–15

Chronic Disease

Yes

2 weeks

4-point Likert-scale

Body (8)

Motor (8)

Autonomy (8)

Cognition (8)

Social (8)

Positive emotions (8)

Negative emotions (8)

[58, 59, 102]