Patients’ self-management of adverse events and patient-reported outcomes in advanced renal cell carcinoma treated with targeted therapies: A prospective, longitudinal, observational study

Journal of Patient-Reported Outcomes

Table 1 Questionnaire on patients’ self-management for the adverse events Guide: Please answer the Questions relating to the adverse events that you reported at your previous hospital visit^a

Adverse event	Questions on patients’ self-management	Options to answer
Fatigue	I have tried to lead a well-regulated life to control my fatigue	Very poor Poor Well Very well
Hand-foot syndrome	I have tried to moisturize my hands and feet by applying lotion and taken the prescribed medicines compliantly
Oral mucosal inflammation	I have managed my oral condition by gargling and taken the prescribed medicines compliantly
Diarrhea	I have paid attention to my eating habits and taken medicines if needed
Gastrointestinal symptoms	I have drunk sufficient water, fulfilled a well-regulated eating habit, and taken the prescribed medicine compliantly
Hypertension	I have regularly checked my blood pressure and taken the prescribed medicine compliantly
Anorexia	I have eaten soft food or had frequent small meals and taken nutritional supplements as recommended

^aThe patient survey of AEs was produced in paper format. The form was horizontally long and folded into sections divided for each visit. Patients were able to write the content of their current (next) visit whilst referring to their previous responses on the survey form