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Table 2 List of PRO measures used (n = 26)

From: Assessing the collection and reporting of patient-reported outcome data in interventional cancer trials: a single institution, retrospective systematic evaluation

Patient reported outcome title

No. of trials (%)

EORTC-QLQ-C30

10 (39)

Patient experience questionnaires (various, non-validated)

6 (23)

+ Visual analogue scales (various, validated)

5 (19)

EORTC-QLQ-LC13

3 (12)

Hospital Anxiety and Depression Scale

3 (12)

EQ-5D

3 (12)

Economics questionnaires (various, non-validated)

3 (12)

EORTC-QLQ-HN35

2 (8)

+ Brief Pain Inventory

2 (8)

+ Inflammatory Bowel Disease Questionnaire

2 (8)

Medical Research Council Dyspnoea Scale

2 (8)

St George’s Respiratory Questionnaire

2 (8)

UCLA Prostate Cancer Index

1 (4)

Functional Assessment of Cancer Therapy General Questionnaire

1 (4)

Xerostomia Questionnaire

1 (4)

EORTC-QLQ-CR29

1 (4)

Cleveland Clinic Incontinence Score

1 (4)

*Toxicity questionnaire (non-validated)

1 (4)

Borg Dyspnoea Scale

1 (4)

Lar Scales

1 (4)

EORTC-QLQ-PAN26

1 (4)

EORTC-QLQ-CR38

1 (4)

*Numerical Rating Scale

1 (4)

Neuropathic Pain Symptom Inventory

1 (4)

Short Form-36

1 (4)

Appetite, Hunger and Sensory Perception Questionnaire

1 (4)

University of Washington Quality of Life Questionnaire

1 (4)

*Measure Yourself Concerns and Wellbeing Questionnaire

1 (4)

Leeds Assessment of Neuropathic Symptoms and Signs Pain Score

1 (4)

*Palliative care Outcome Scale

1 (4)

Dyspnea-12 Scale

1 (4)

King’s Brief Interstitial Lung Disease Questionnaire

1 (4)

Expanded Prostate Cancer Index Composite

1 (4)

Tolerability (non-validated)

1 (4)

Body Image Scale

1 (4)

*Richards-Campbell Sleep Questionnaire

1 (4)

Sleep in the ICU questionnaire (non-validated)

1 (4)

  1. EORTC, European Organisation for Research and Treatment of Cancer; QLQ, quality of life questionnaire; C30, core module 30 items; LC13, lung cancer module 13 items; EQ-5D, Euroqol questionnaire 5 dimensions; HN35, head and neck cancer module 35 items; UCLA, University of California, Los Angeles; CR29, colorectal cancer module 29 items; PAN26, pancreatic cancer module 26 items; CR38, colorectal cancer module 38 items; ICU, intensive care unit
  2. *Used as primary outcome measure for one study; + used as primary outcome measure for two studies