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Table 7 Characteristics of PSC participants

From: Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

Participant characteristic N (%)
Gender (male) 17 (61%)
Age (median = 50; range = 22–70)
 20–29 1 (4%)
 30–39 6 (21%)
 40–49 5 (18%)
 50–59 9 (32%)
 60–70 6 (21%)
Ethnicity
 White British 23 (82%)
 White other 3 (11%)
 Asian British 2 (7%)
Marital status
 Single 7 (25%)
 Married 17 (61%)
 Divorced 4 (14%)
Time since first symptoms
 > 10 years 14 (50%)
 6–10 years 9 (32%)
 1–5 years 3 (11%)
 < 1 year 2 (7%)
Co-morbidities
 IBD 18 (64%)
 Osteoporosis 6 (21%)
 Other autoimmune conditionsa 5 (18%)
 Asthma 2 (7%)
 Depression 2 (7%)
  1. aAnkylosing spondylitis, psoriasis, pulmonary sarcoidosis, rheumatoid arthritis