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Table 7 Characteristics of PSC participants

From: Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease

Participant characteristic

N (%)

Gender (male)

17 (61%)

Age (median = 50; range = 22–70)

 20–29

1 (4%)

 30–39

6 (21%)

 40–49

5 (18%)

 50–59

9 (32%)

 60–70

6 (21%)

Ethnicity

 White British

23 (82%)

 White other

3 (11%)

 Asian British

2 (7%)

Marital status

 Single

7 (25%)

 Married

17 (61%)

 Divorced

4 (14%)

Time since first symptoms

 > 10 years

14 (50%)

 6–10 years

9 (32%)

 1–5 years

3 (11%)

 < 1 year

2 (7%)

Co-morbidities

 IBD

18 (64%)

 Osteoporosis

6 (21%)

 Other autoimmune conditionsa

5 (18%)

 Asthma

2 (7%)

 Depression

2 (7%)

  1. aAnkylosing spondylitis, psoriasis, pulmonary sarcoidosis, rheumatoid arthritis