Table 1 Characteristics of the included studies
PROM | References | n | Age Mean (SD, range) yr | Gender % female | Disease | Country | Language |
|---|---|---|---|---|---|---|---|
ABILHAND-Kids (Original version) | [41] | 20 | 7.6 (2.4, 4–12) | 25% | RD | The Netherlands | English |
|  | [40] | 20 | 8.7 (2.9, 4–12) | 50% | ULRD | The Netherlands | English |
| Â | [42] | 27 | 10 (4) | 41% | Unilateral or bilateral CP | The Netherlands | English |
|  | [48] | 16 | 13 (2.3, 9–17) | 56% | Spastic, unilateral CP | Germany | German (translational process not documented) |
|  | [33] | 113 | 10 (6–15) | 41% | CP | Belgium | French |
|  | [23] | 52 | 9.1 (1.9, 6–12) |  | Unilateral, spastic CP | USA, The Netherlands, Belgium | English |
ABILHAND-Kids (Ukrainian version) | [27] | 113 | 10.3 (2.9, 6–16) | 40% | CP | Ukraine | Ukrainian |
ABILHAND-Kids (Danish version) | [28] | 150 | 10 (2.7, 6–15) | 40.7% | CP | Denmark | Danish |
ABILHAND-Kids (Turkish version) | [29] | 109 | 9.3 (2.9, 6–15) | 43% | CP | Turkey | Turkish |
ABILHAND-Kids (Arabic version) | [30] | 154 | 7.4 (2.9) | 45.5% | CP | Saudi Arabia | Arabic |
ABILHAND-Kids (Persian version) | [31] | 50 | 7.9 (2.2, 6–15) | 40% | CP | Iran | Persian |
ChARM | [36] | 148 | 10.1 (3.3, 4.7–16.9) | 39% | CP | UK | English |
CHEQ | [49] | 34 | 12.1 (3.9) | 47% | Unilateral CP | Sweden | Swedish (translational process not documented) |
| Â | [37] | 242 | 9.8 (3.4) | 43% | Unilateral CP | Australia, UK, Israel, Italy, the Netherlands, Sweden | English, Hebrew, Italian, Dutch, Swedish (translational process not documented) |
| Â | [34] | 86 | 12 (3) | 51% | Unilateral CP, OBPP, ULRD | Sweden | English |
CHQ | [50] | 18 | 11.6 (10–17) | 72% | NBPP | USA | English |
CHSQ (Original version) | [38] | 123 | 7.17 (2.57) | 28.5% | Various known disabilities (e.g., cerebral palsy, brachial plexus birth palsy) | Australia, Taiwan | English, Taiwan Chinese |
CHSQ (Turkish version) | [32] | 112 | 7.39 (2.51, 3–12) | 39% | Hemiplegic CP | Turkey | Turkish |
DHI | [43] | 23 | 10.87 (2.8, 7–16) | 39.2% | Unilateral CP | Turkey | English |
HUH | [44] | 260 | NBPP group: median age 6.9 (3.0–10.5) UCP group: median age 6.4 (3.0–10.8) | NBPP: 52% UCP: 49% | NBPP or unilateral CP | The Netherlands | English |
|  | [35] | 322 | Unilateral CP group: 6.5 (2.2, 3.0–10.8) NBPP group: 6.8 (2.0, 3.0–10.4) | Unilateral CP: 52% NBPP: 50% | Unilateral CP, NBPP | The Netherlands | English |
IMAL | [51] | 66 | 1.14 (0.44) | 52% | Hemiplegic/quadriplegic CP | USA | English |
PEDI self-care domain | [52] | 45 | 5.1 (3.6–6.8) | 64% | OBPP | Canada | English |
PODCI | [53] | 23 | 5.6 (3.5–8.6) | 61% | BPBP | USA | English |
|  | [54] | 150 | 5 (2–10) | 55% | BPBP | USA | English |
|  | [24] | 23 | 6.3 (4.4–12.8) | 70% | BPBP | USA | English |
|  | [50] | 18 | 11.6 (10–17) | 72% | NBPP | USA | English |
| Â | [55] | 109 | - (-) | 46% | Congenital upper limb differences | USA | English |
PODCI (v2.0; Original version) | [25] | 125 | 11 (2–18) | 43.2% | Acute hand and wrist injuries | USA | English |
PODCI (v2.0; Dutch version) | [26] | 10 | 5.3 (2.4) | 50% | NBPP | The Netherlands | Dutch |
PROMIS – Upper Extremity item bank (short form, CAT) | [56] | 32 | 11.4 (3.9) | 41% | Congenital hand differences | USA | English |
QuickDASH | [57] | 149 | - (8–18) | 48% | Several types of upper extremity injuries | USA | English |
Revised PMAL | [39] | 61 | 4.5 (-) | 39% | Spastic hemiplegic CP | Australia | English |