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Table 2 Asynchronous focus group participant demographics from survey (n = 10)

From: Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome

 

Median

Range

Age (years)

35

(32–45)

 

Count

 

Countries

  

 USA

8

5 states

 Australia

2

2 states/territories

 

Count

% of respondents

Marital Status

  

 Married/Partnered

8

80%

 Single

1

10%

 Separated/divorced

1

10%

Sex

  

 Female

10

100%

Relationship to child

  

 Biological mother

10

100%

Race

  

 White

10

100%

Education

  

 Did not finish HS

1

10%

 High school graduate

1

10%

 Some college

2

20%

 Bachelor’s degree

3

30%

 More than a bachelor’s degree

3

30%

Income

  

 Less than $25,000

2

20%

 $100,000–$149,000

5

50%

 $150,000 or more

2

20%

 Unanswered

1

10%

  1. n = 11 (data missing from 1 participant)