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Table 2 Asynchronous focus group participant demographics from survey (n = 10)

From: Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome

  Median Range
Age (years) 35 (32–45)
  Count  
Countries   
 USA 8 5 states
 Australia 2 2 states/territories
  Count % of respondents
Marital Status   
 Married/Partnered 8 80%
 Single 1 10%
 Separated/divorced 1 10%
Sex   
 Female 10 100%
Relationship to child   
 Biological mother 10 100%
Race   
 White 10 100%
Education   
 Did not finish HS 1 10%
 High school graduate 1 10%
 Some college 2 20%
 Bachelor’s degree 3 30%
 More than a bachelor’s degree 3 30%
Income   
 Less than $25,000 2 20%
 $100,000–$149,000 5 50%
 $150,000 or more 2 20%
 Unanswered 1 10%
  1. n = 11 (data missing from 1 participant)