Table 1 Participant characteristics (n = 33)
Characteristic | Overall (n = 33) | San Francisco (n = 8) | Dallas (n = 9) | Seattle (n = 16) | ||||
|---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |
Male sex | 16 | 48.5 | 4 | 50.0 | 5 | 55.6 | 7 | 43.8 |
Median (range) age (years) | 51 | (26–77) | 52 | (30–71) | 50 | (26–65) | 52 | (26–77) |
Highest education level | ||||||||
Graduate studies | 4 | 12.1 | 2 | 25.0 | 0 | 0.0 | 2 | 12.5 |
College/university | 20 | 60.6 | 6 | 75.0 | 7 | 77.8 | 7 | 43.8 |
Grade or high school | 9 | 27.3 | 0 | 0.0 | 2 | 22.2 | 7 | 43.8 |
Relationship status | ||||||||
Single | 12 | 36.4 | 3 | 37.5 | 5 | 55.6 | 4 | 25.0 |
Married/partnership | 19 | 57.6 | 4 | 50.0 | 4 | 44.4 | 11 | 68.8 |
Divorced/other | 2 | 6.0 | 1 | 12.5 | 0 | 0.0 | 1 | 6.3 |
# children < 18 years at home | ||||||||
0 | 22 | 66.7 | 6 | 75.0 | 4 | 44.4 | 4 | 25.0 |
1 | 6 | 18.2 | 2 | 25.0 | 1 | 11.1 | 4 | 25.0 |
2+ | 5 | 15.2 | 0 | 0.0 | 3 | 33.3 | 5 | 31.3 |
Household income | ||||||||
Less than 25,000 | 2 | 6.1 | 0 | 0.0 | 1 | 11.1 | 1 | 6.3 |
25,000–49,999 | 8 | 24.2 | 1 | 12.5 | 4 | 44.4 | 3 | 18.8 |
50,000–99,999 | 9 | 27.3 | 0 | 0.0 | 3 | 33.3 | 6 | 37.5 |
100,000–149,999 | 6 | 18.2 | 2 | 25.0 | 0 | 0.0 | 4 | 25.0 |
150,000–199,999 | 4 | 12.1 | 1 | 12.5 | 1 | 11.1 | 2 | 12.5 |
200,000+ | 4 | 12.1 | 4 | 50.0 | 0 | 0.0 | 0 | 0.0 |
Rare disease | ||||||||
Familiar with a rare disease | 10 | 30.3 | 2 | 25.0 | 1 | 11.1 | 7 | 43.8 |
Self/family member affected | 8 | 24.2 | 2 | 25.0 | 0 | 0.0 | 6 | 37.5 |
Not familiar with a rare disease | 23 | 69.7 | 6 | 75.0 | 8 | 88.9 | 9 | 56.2 |