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Table 1 Participant characteristics (n = 33)

From: Societal perspectives on disease and treatment attributes characterizing rare diseases: a qualitative study from the United States

Characteristic Overall (n = 33) San Francisco (n = 8) Dallas (n = 9) Seattle (n = 16)
n % n % n % n %
Male sex 16 48.5 4 50.0 5 55.6 7 43.8
Median (range) age (years) 51 (26–77) 52 (30–71) 50 (26–65) 52 (26–77)
Highest education level
 Graduate studies 4 12.1 2 25.0 0 0.0 2 12.5
 College/university 20 60.6 6 75.0 7 77.8 7 43.8
 Grade or high school 9 27.3 0 0.0 2 22.2 7 43.8
Relationship status
 Single 12 36.4 3 37.5 5 55.6 4 25.0
 Married/partnership 19 57.6 4 50.0 4 44.4 11 68.8
 Divorced/other 2 6.0 1 12.5 0 0.0 1 6.3
# children < 18 years at home
 0 22 66.7 6 75.0 4 44.4 4 25.0
 1 6 18.2 2 25.0 1 11.1 4 25.0
 2+ 5 15.2 0 0.0 3 33.3 5 31.3
Household income
 Less than 25,000 2 6.1 0 0.0 1 11.1 1 6.3
 25,000–49,999 8 24.2 1 12.5 4 44.4 3 18.8
 50,000–99,999 9 27.3 0 0.0 3 33.3 6 37.5
 100,000–149,999 6 18.2 2 25.0 0 0.0 4 25.0
 150,000–199,999 4 12.1 1 12.5 1 11.1 2 12.5
 200,000+ 4 12.1 4 50.0 0 0.0 0 0.0
Rare disease
 Familiar with a rare disease 10 30.3 2 25.0 1 11.1 7 43.8
  Self/family member affected 8 24.2 2 25.0 0 0.0 6 37.5
 Not familiar with a rare disease 23 69.7 6 75.0 8 88.9 9 56.2
  1. Participants in the overall sample were recruited according to the broad age and sex distribution of the general public of the US, and to reflect a mix of familiarities with rare diseases