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Table 1 Demographic and clinical characteristics of each sample across stages

From: The endometriosis daily diary: qualitative research to explore the patient experience of endometriosis and inform the development of a patient-reported outcome (PRO) for endometriosis-related pain

Description

 

Stage 1 (N = 30)

Stage 2 (N = 30)

Stage 3 (N = 15)

Demographic characteristics

Age (years)

Mean (Min, max)

29.4 (12, 49)

29.2 (12,49)

32.5 (19, 45)

Length of time experiencing pelvic pain, years

Mean (Min–Max)

8.7 (0.5–27)

5.8 (1–16)

7.13 (1- 27)

Race, n (%)

White

14 (46.7%)

14 (46.7%)

9 (60.0%)

 

Black/African American

12 (40.0%)

9 (30.0%)

3 (20.0%)

 

Other

4 (13.3%)

7 (23.3%)

1 (6.7%)

 

North African or Alaska Native

0 (0.0%)

0 (0.0%)

1 (6.7%)

 

Multi-Racial

0 (0.0%)

0 (0.0%)

1 (6.7%)

Ethnicity, n (%)

Non-Hispanic or Latino

18 (60.0%)

21 (70.0%)

9 (60.0%)

 

Hispanic or Latino

12 (40.0)

9 (30.0%)

6 (40.0%)

Highest level of education (adults only), n (%)

College or university degree

7 (23.3%)

6 (20.0%)

2 (13.3%)

 

High school diploma or General Education Diploma

7 (23.3%)

4 (13.3%)

4 (26.7%)

 

Some years of college

4 (13.3%)

6 (20.0%)

5 (33.3%)

 

Certificate Program

2 (6.7%)

3 (10.0%)

3 (20.0%)

 

Graduate or professional degree

0 (0.0%)

1 (6.7%)

1 (6.7%)

Work status, n (%)

Working full or part time

17 (56.7%)

19 (63.3%)

13 (86.7%)

 

At school or student

10 (33.3%)

9 (30.0%)

1 (6.7%)

 

Full time homemaker

3 (10.0%)

2 (6.7%)

1 (6.7%)

Clinical characteristics

Time since diagnosis*, years

Less than 5 years

15 (50%)

21 (70.0%)

8 (53.3%)

 

6–10 years

6 (20%)

3 (10.0%)

6 (40.0%)

 

Over 10 years

9 (30.0%)

6 (20.0%)

1 (6.7%)

Type of chronic pelvic pain, n (%)

Cyclic pain only

16 (53.3%)

19 (63.3%)

9 (60.0%)

 

Cyclic and non-cyclic pain

14 (46.7%)

11 (36.7%)

6 (40.0%)

Severity of cyclic (menstrual) pelvic pain at screening using 0–10 Numerical Rating Scale (NRS)***, n (%)

Mild (1–4)

7 (23.3%)

6 (20.0%)

5 (33.3%)

 

Moderate (5–7)

12 (40.0%)

9 (30.0%)

5 (33.3%)

 

Severe (8–10)

11 (36.7%)

15 (50.0%)

5 (33.3%)

 

Mean (range)

6.53 (3–10)

7.27 (3–10)

6.07 (2–10)

Severity of non-cyclic (non-menstrual) pelvic pain at screening using 0–10 NRS***, n (%)

Mild (1–4)

10 (33.3%)

12 (40.0%)

4 (26.7%)

 

Moderate (5–7)

13 (43.3%)

9 (30.0%)

7 (46.7%)

 

Severe (8–10)

7 (23.3%)

9 (30.0%)

4 (26.7%)

 

Mean (range)

5.6 (3–10)

6.13 (3–10)

5.87 (2–10)

Diagnostic procedure, n (%)

Surgical diagnosis

30 (100%)

20 (66.7%)

15 (100%)

 

Clinically suspected endometriosis

0 (0.0%)

10 (33.3%)

0 (0.0%)

Hormonal therapy, n (%)

On hormonal therapy

15 (50.0%)

15 (50.0%)

9 (60.0%)

 

Not on hormonal therapy

15 (50.0%)

15 (50.0%)

6 (40.0%)

Current treatment**, pharmacological (non-hormonal), n (%)

Nonsteroidal Anti-Inflammatory Drugs

25 (83.3%)

24 (80.0%)

12 (80.0%)

 

Other pain medications (incl. Acetaminophen)

2 (6.7%)

15 (50.0%)

4 (26.7%)

 

Opiate (incl. codeine, oxycodone)

3 (10%)

3 (10.0%)

1 (6.7%)

  1. *This has been calculated from date of interview
  2. **More than one current/previous treatment was reported for some participants
  3. ***The following interpretative pain severity cut-offs were employed for the 0–10 NRS: 1–4 was considered Mild, 5–7 was considered Moderate, and 8–10 was considered Severe