From: Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.
 | What research in COPD matters most to you? (Baseline survey) | What other things do you want to tell us about research for COPD that matters to you, or do you have any other comments for the researchers? (Baseline survey) | What other things do you want to tell us about research for COPD that matters to you, or do you have any other comments for the researchers? (Longitudinal survey) |
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Number of responses | n = 515 (%) | n = 2066 (%) | n = 647 (%) |
Coding agreement before adjudication | |||
Full coding agreement | 339 (66) | 1100 (53.2) | 342 (52.8) |
Partial agreement | 98 (19) | 112 (5.4) | 14 (2.1) |
Disagreement | 76 (15) | 855 (41.3) | 291 (44.9) |
Density mapping to each domain after adjudication | |||
Domain 1 (family/social/community research) | 116 (22.5) | 104 (5) | 16 (2.4) |
Domain 2 (well-being) | 107 (20.8) | 142 (6.8) | 12 (1.8) |
Domain 3 (curative research) | 77 (15) | 230 (11.1) | 32 (4.9) |
Domain 4 (biomedical therapies) | 75 (14.6) | 201 (9.7) | 28 (4.3) |
Domain 5 (policy concerns) | 54 (10.5) | 166 (8) | 30 (4.6) |
Domain 6 (holistic therapies) | 31 (6) | 43 (2) | 12 (1.8) |
Domain 7 (ambiguous) | 55 (10.7) | 1181 (57.1) | 515 (79.9) |