The sensory-reactivity PROM set: identification of a parent reported outcome measure set for autism spectrum disorder

Journal of Patient-Reported Outcomes

Table 1 Final sensory reactivity-PROM set

Relevant outcomes	PROMIS item banks	Validated PROM (sub) scales
Directly related to sensory reactivity
1. Sensory stimulation tolerance		SSP or SEQ-3.0
2. Sensitivity to sensory stimuli		SSP or SEQ-3.0
Indirectly related to sensory reactivity
3. Irritable behavior		ABC-Irritability
4. Anxiety	Anxiety (v2.0) Psychological stress experiences (v1.0)
5. Mood problems	Depressive symptoms (v2.0) Life satisfaction (v1.0)
6. Sleep problems	Sleep-related impairment (v1.0) Sleep disturbance (v1.0)
7. Fatigue	Fatigue (v2.0)
8. Physical complaints	Physical stress experiences (v1.0)
9. Daily functioning and participation	Cognitive function (v.1.1)	CASP or PEM-CY
10. Routines, structure and dealing with change		RBS-R Ritualistic Behavior RBS-R Sameness Behavior
11. Problems in social interaction and communication	Peer relationships (v2.0) Family relationships (v1.0)

ABC, Aberrant Behavior Checklist; CASP, Child and Adolescent Scale of Participation; PEM-CY, Participation and Environment Measure for Children and Youth; RBS-R, Repetitive Behavior Scale-Revised; SSP, Short Sensory Profile