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Table 1 Caregiver characteristics (N = 10)

From: A qualitative study on the impact of caring for an ambulatory individual with nonsense mutation Duchenne muscular dystrophy

Characteristic Mean (SD) Range
Age (years) 44 (5.4) 26–52
Relationship to individual with nmDMD   N (%)
 Father   5 (50)
 Mother   5 (50)
Ethnic background
 White   10 (100)
Education
 O level/GSCE or equivalent   3 (30)
 A Level or Highers   1 (10)
 Higher education below degree level   0 (0)
 University degree or higher   6 (60)
Employment
 Employed full-time   6 (60)
 Employed part-time   2 (20)
 Full-time homemaker/caregiver   2 (20)
Others in household
 Partner   9 (90)
 Other children   8 (80)
Changes to work in order to care for individual with nmDMDa
 Reduce working hours   4 (40)
 Change jobs   1 (10)
 Stop working   1 (10)
 None of the above   5 (50)
Help with caring
 Yes   7 (70)
 No   3 (30)
Time spent caring for individual with nmDMD Mean hours/week
  Practical care Emotional care
Participant 33 26.3
Other parent/partner (N = 7) 27 18
Other family member (N = 1) 12 2
Paid personal assistant (N = 1) 10 5
Other (N = 1 learning support assistant) 36 36
  1. aTotal is > 10 as participants could select multiple option. SD standard deviation; nmDMD nonsense mutation on the Duchenne Muscular Dystrophy gene