Table 1 Caregiver characteristics (N = 10)
Characteristic | Mean (SD) | Range |
|---|---|---|
Age (years) | 44 (5.4) | 26–52 |
Relationship to individual with nmDMD | N (%) | |
Father | 5 (50) | |
Mother | 5 (50) | |
Ethnic background | ||
White | 10 (100) | |
Education | ||
O level/GSCE or equivalent | 3 (30) | |
A Level or Highers | 1 (10) | |
Higher education below degree level | 0 (0) | |
University degree or higher | 6 (60) | |
Employment | ||
Employed full-time | 6 (60) | |
Employed part-time | 2 (20) | |
Full-time homemaker/caregiver | 2 (20) | |
Others in household | ||
Partner | 9 (90) | |
Other children | 8 (80) | |
Changes to work in order to care for individual with nmDMDa | ||
Reduce working hours | 4 (40) | |
Change jobs | 1 (10) | |
Stop working | 1 (10) | |
None of the above | 5 (50) | |
Help with caring | ||
Yes | 7 (70) | |
No | 3 (30) | |
Time spent caring for individual with nmDMD | Mean hours/week | |
Practical care | Emotional care | |
Participant | 33 | 26.3 |
Other parent/partner (N = 7) | 27 | 18 |
Other family member (N = 1) | 12 | 2 |
Paid personal assistant (N = 1) | 10 | 5 |
Other (N = 1 learning support assistant) | 36 | 36 |