Fig. 1

Conceptual model on the impact of caring for an individual with ambulatory nonsense mutation Duchenne muscular dystrophy

Footnote: The conceptual model is designed to be read from the top, where there are the most proximal impacts, to the bottom, where there are more distal impacts. The arrows show the relationships between the concepts, which are either unidirectional (e.g. work had an impact on emotional wellbeing) or bidirectional (e.g. relationships impacted social impacts and vice versa). Some relationships are between the larger external boxes (e.g. emotional impacts had an impact on sleep), whereas others are between the internal boxes (e.g. partner relationships impacted family relationships)