Table 4 HRQL Impacts Reported by ≥10% of Study Participants
Children | Parents | Total (N = 49) | Total % | |||||||
|---|---|---|---|---|---|---|---|---|---|---|
Age of child | Total (N = 31) | Age of child | Total (N = 18) | |||||||
5–7 (N = 3) | 8–11 (N = 8) | 12–17 (N = 20) | 2–4 (N = 3) | 5–7 (N = 6) | 8–11 (N = 9) | |||||
Impact on physical activity | 0 | 6 | 18 | 24 (77%) | 1 | 2 | 6 | 9 (50%) | 33 | 67% |
Impact on social life | 1 | 5 | 11 | 17 (55%) | 3 | 4 | 5 | 12 (67%) | 29 | 59% |
Impact on school | 2 | 6 | 10 | 18 (58%) | 0 | 3 | 8 | 11 (61%) | 29 | 59% |
Sad/low mood | 2 | 4 | 10 | 16 (52%) | 3 | 2 | 4 | 9 (50%) | 25 | 51% |
Annoyed/frustrated | 0 | 3 | 12 | 15 (48%) | 2 | 2 | 2 | 6 (33%) | 21 | 43% |
Restricted diet | 0 | 3 | 10 | 13 (42%) | 1 | 2 | 5 | 8 (44%) | 21 | 43% |
Worried/scared | 0 | 2 | 9 | 11 (35%) | 2 | 0 | 2 | 4 (22%) | 15 | 31% |
Appetite loss | 0 | 0 | 7 | 7 (23%) | 1 | 2 | 5 | 8 (44%) | 15 | 31% |
Impact on sleep | 0 | 2 | 5 | 7 (23%) | 1 | 3 | 3 | 7 (39%) | 14 | 29% |
Having to plan around CD | 0 | 1 | 5 | 6 (19%) | 1 | 2 | 2 | 5 (28%) | 11 | 22% |
Relationships with friends and family | 0 | 1 | 4 | 5 (16%) | 0 | 1 | 3 | 4 (22%) | 9 | 18% |
Weight loss | 0 | 1 | 2 | 3 (10%) | 1 | 1 | 4 | 6 (33%) | 9 | 18% |
Embarrassed | 0 | 2 | 3 | 5 (16%) | 0 | 1 | 2 | 3 (17%) | 8 | 16% |
Impact on traveling/car ride | 0 | 1 | 2 | 3 (10%) | 1 | 1 | 2 | 4 (22%) | 7 | 14% |
Impact on ability to concentrate | 0 | 0 | 3 | 3 (10%) | 0 | 0 | 2 | 2 (11%) | 5 | 10% |