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Table 4 HRQL Impacts Reported by ≥10% of Study Participants

From: A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn’s disease from patient and caregiver perspective

  Children Parents Total (N = 49) Total %
Age of child Total (N = 31) Age of child Total (N = 18)
5–7 (N = 3) 8–11 (N = 8) 12–17 (N = 20) 2–4 (N = 3) 5–7 (N = 6) 8–11 (N = 9)
Impact on physical activity 0 6 18 24 (77%) 1 2 6 9 (50%) 33 67%
Impact on social life 1 5 11 17 (55%) 3 4 5 12 (67%) 29 59%
Impact on school 2 6 10 18 (58%) 0 3 8 11 (61%) 29 59%
Sad/low mood 2 4 10 16 (52%) 3 2 4 9 (50%) 25 51%
Annoyed/frustrated 0 3 12 15 (48%) 2 2 2 6 (33%) 21 43%
Restricted diet 0 3 10 13 (42%) 1 2 5 8 (44%) 21 43%
Worried/scared 0 2 9 11 (35%) 2 0 2 4 (22%) 15 31%
Appetite loss 0 0 7 7 (23%) 1 2 5 8 (44%) 15 31%
Impact on sleep 0 2 5 7 (23%) 1 3 3 7 (39%) 14 29%
Having to plan around CD 0 1 5 6 (19%) 1 2 2 5 (28%) 11 22%
Relationships with friends and family 0 1 4 5 (16%) 0 1 3 4 (22%) 9 18%
Weight loss 0 1 2 3 (10%) 1 1 4 6 (33%) 9 18%
Embarrassed 0 2 3 5 (16%) 0 1 2 3 (17%) 8 16%
Impact on traveling/car ride 0 1 2 3 (10%) 1 1 2 4 (22%) 7 14%
Impact on ability to concentrate 0 0 3 3 (10%) 0 0 2 2 (11%) 5 10%