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Table 2 Distribution of Total and Core Scores on the PEDS-QL in Relation to Published Benchmarks

From: Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

PEDS-QL parent proxy scores for participants aged 2–7 compared to Varni (2003) Healthy Child mean and one standard deviation (at risk) benchmark (N = 13)
  % Scoring above 2003 HC Mean % Scoring less than 1 standard deviation below HC Mean % Scoring more than 1 standard deviation below HC Mean  
Total Score > 81.34, 81.34, 68.18 38 15 46  
Physical Function > 83.26, 83.26, 69.38 29 21 50  
Emotional Function > 80.28, 80.28, 61.64 36 43 21  
Social Function > 82.15, 82.15, 64.74 43 29 29  
School Function > 76.91, 76.19, 59.98 46 23 31  
PEDS-QL parent proxy scores for participants aged 2–7 compared to Huang (2009) benchmarks (N = 13)
  Cutoff Scores % Scoring Above Mild benchmark % Scoring Below Mild benchmark % Scoring Below Moderate benchmark % Scoring Below Serious benchmark
Total Score > 83, 83, 79, 77 38 0 15 46
Physical Function > 91, 91, 88, 84 14 14 0 72
Emotional Function > 75, 75, 75, 75 43 0 0 57
Social Function > 85, 85, 80, 80 43 0 0 57
School Function > 75, 75, 75, 67 0 46 8 46
PEDS-QL self-report scores for participants aged 8–17 compared to Varni (2003) Healthy Child mean and one standard deviation (at risk) benchmark (N = 18)
  % Scoring above 2003 HC Mean % Scoring less than 1 standard deviation below HC Mean % Scoring more than 1 standard deviation below HC Mean  
Total Score > 82.87, 82.87, 69.71 11 28 61  
Physical Function > 86.86, 86.86, 72.98 22 22 56  
Emotional Function > 78.21, 78.21, 59.57 17 22 61  
Social Function > 84.04, 84.04, 66.61 28 22 50  
School Function > 79.92, 79.92, 62.99 22 17 61