Skip to main content

Table 1 Characteristics of the Study Population

From: Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

Characteristics and N

Values

Frequency

Percentage

Gender (N = 39)

male

20

51

female

19

49

Ethnicity (N = 34)

Hispanic/Latino

2

6

Non-Hispanic

30

88

Ashkenazi Jewish

2

6

Race (N = 39)

White

34

87

Black and other

5

13

Mother’s education (N = 38)

High school/GED or less

7

18

Some college or trade school

6

16

College of more

25

66

Father’s education (N = 36)

High school/GED or less

5

14

Some college or trade school

9

25

College of more

22

61

Diagnosis (N = 39)

monostotic FD

8

21

polyostotic FD

19

49

FD and McCune Albright

12

31

Craniofacial FD (N = 38)

no

21

54

yes

18

46

CF Zone 1 (N = 18)

no

6

33

yes

12

67

CF Zone 2 (N = 18)

no

7

39

yes

11

61

CF Zone 3 (N = 18)

no

7

39

yes

11

61

CF Zone 4 (N = 18)

no

10

56

yes

8

44

CF Zone 5 (N = 18)

no

13

72

yes

5

28

CF Disease Burden (N = 18)

1

7

39

2

3

17

3

3

17

4

0

0

5

5

28