Skip to main content

Table 1 Characteristics of the Study Population

From: Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

Characteristics and N Values Frequency Percentage
Gender (N = 39) male 20 51
female 19 49
Ethnicity (N = 34) Hispanic/Latino 2 6
Non-Hispanic 30 88
Ashkenazi Jewish 2 6
Race (N = 39) White 34 87
Black and other 5 13
Mother’s education (N = 38) High school/GED or less 7 18
Some college or trade school 6 16
College of more 25 66
Father’s education (N = 36) High school/GED or less 5 14
Some college or trade school 9 25
College of more 22 61
Diagnosis (N = 39) monostotic FD 8 21
polyostotic FD 19 49
FD and McCune Albright 12 31
Craniofacial FD (N = 38) no 21 54
yes 18 46
CF Zone 1 (N = 18) no 6 33
yes 12 67
CF Zone 2 (N = 18) no 7 39
yes 11 61
CF Zone 3 (N = 18) no 7 39
yes 11 61
CF Zone 4 (N = 18) no 10 56
yes 8 44
CF Zone 5 (N = 18) no 13 72
yes 5 28
CF Disease Burden (N = 18) 1 7 39
2 3 17
3 3 17
4 0 0
5 5 28